1. < Digestive Health

Chronic Digestive Disorders

Posted by rozy288 @rozy288, Jun 5, 2021

I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary

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debkl | @debkl | Aug 9, 2021

Is it possible it's not GI at all, but related to the cervical spine, particularly, the upper levels? The vagus nerve runs very close to these levels. It helps regulate digestion (and breathing and heart rate).

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annie2 | @annie2 | Aug 9, 2021
In reply to @rozy288 "@keetafox i did ask because that pill cam endoscopy can get into places deep in intestines..." + (show)
@rozy288

@keetafox i did ask because that pill cam endoscopy can get into places deep in intestines and colon that other endoscopys cannot .
The Gastro Dr. ( last one , not the one that I have televisit with at Mayo in Sept ) told me no . Can’t have it done because you must show some signs of internal bleeding 🩸. Insurance won’t pay unless you fit the right criteria. So I’m sure I’ll be have the entroscopic endoscopy this next time ( goes further into your small intestines but starts like other traditional one with tube down throat, into stomach into deeper in small intestines). I seem to have so much crazy volcano 🌋 noises which cause the deep 1000’s of wet burping from small intestines. Esp after my dinner is fully digested ( I eat at 5:30 pm ) it starts like 4-7 am bad !!
All I know is I’m sick of 7 years of this life . I’ll keep you posted on my Televisit Sept 7 th . Pray 🙏 pray pray 🙏. I will for you and others suffering too .
We need answers , we need more than .. oh you have Gastritis , or GERD or Eshphogitis , or Small Hiatal Hernia or Diverticulosis ( which I have all of ). Plus 5000 deep wet belches and constant churning , grinding , loud gut . I’ve tried everything!! The only thing I take now is Ultra Pepto 1-2 x day . Doesn’t stop the belching but calms the gut for about 1/2 hour . It’s exhausting….
God Speed , Rosemary

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I hate to see any of us suffering with whatever we have going on. I can't say what it is as the doctors simplify the diagnosis too much. I had thought that this upcoming scope was a Bravo procedure but I learned later on that it is not. Just an endoscopy with a few biopsies to be taken. Same old, same old. I don't expect anything constructive to come of it, but trying to remain somewhat optimistic. Someone on a post commented that nothing can be done for my symptoms except a strict acid watchers diet. That is so depressing to me and not helpful in my current state of mind. I think it ironic that most people hope for no significant findings when they have a procedure. Sadly, we hope they will find something so at least we know what we're dealing with. All the best to you when you have yours done. Mine is Thursday and I will post results one way or the other. In the meantime, prayers for all of us who struggle.

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saygirl | @saygirl | Aug 10, 2021
In reply to @rozy288 "@saygirl i just posted a long comment . When you can read it ok . I..." + (show)
@rozy288

@saygirl i just posted a long comment . When you can read it ok . I pray they can find out your issues too . It’s so so hard..
My Mayo Clinic Jacksonville televisit is finally coming up on Sept 7 th after 5 month wait ! This is my last resort .

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Thank you for your comments. Whenever, I eat anything with salt and don't drink water, my bowel lock up in this hard stool. I am also losing weight. I only eat baked chicken and veggies , now.

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saygirl | @saygirl | Aug 10, 2021

It is so strange. I went to the ER and they discovered that I had digestion. The doctor discovered this after giving me a GI cocktail. But, my bowels are still locked up. They prescribed 2 meds: for indigestion : famotidine (Pepcid) and sucralfate (Caralfate) and 1 for my stool ,polyethylene MIRALAX. now I trying to get these meds. I felt good after taking the cocktail.

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rozy288 | @rozy288 | Aug 11, 2021

@saygirl i have opposite problem, loose dark stool or diarrhea. The gas my body produces is 1000 x more than the average person .it’s non stop wet belching over 3000-4000 a day / night and constant loud churning like a volcano 🌋 erupting .
Chronic …many digestive disorders esp Gastritis / GERD / Esphogitis / small hiatal hernia / diverticulosis. It effects me everyday mostly all day and every meal . I hate eating and I eat healthy and tried every there is out there . It’s sad 😞

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sickofbeinsick1. AKA Tina | @sickofbeinsick1 | Aug 12, 2021

I’m sorry for you. I suffer basically the same, but not sure about wet beach water? I’m down to water, potatoes & Boost.. 🤮 & it’s expensive….of course green beans, asparagus. It’s just not worth the pain to eat real food. ! When I think I’m feeling better, I’ll have some real food…not worth it. Ok, I’m going to say something a lot of people will disagree with (STRONGLY), but when my gut starts hurting bad.. I sip an ounce or 2 of Jagermeister. It has anti-inflammatory properties. It usually helps me, but it’s not very tasty, and obviously not for everyone. DISCLAIMER: I’m not a Dr. and I don’t diagnose, this works for me when I’m EXTREMELY bloated ;& in lots of pain (not all the time), but most.

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sickofbeinsick1. AKA Tina | @sickofbeinsick1 | Aug 12, 2021

P.S. to Rosemary: I’m the one who suggested Jagermeister. I’ll probably get kicked off the site. But I’ve been going thru the same crap as you for about 7 years as well.. I’ve turned to holistic & vitamins. I don’t think Dr’s can help me.. I only have 3 GI’s !! Also, years ago I had a Pharmacological DNA done, I’m heading that way now.
I’ll try to keep you posted

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saygirl | @saygirl | Aug 13, 2021
In reply to @washalien "I seem to do pretty well when I take Colestipol and avoid ANY alcohol. I seem..." + (show)
@washalien

I seem to do pretty well when I take Colestipol and avoid ANY alcohol. I seem to find that I can eat most things without a problem now. (I find I can tolerate Heineken 0.0, which actually has only 0.5% alcohol, and tastes pretty good on a hot summer day.) I've had genetic testing that tells me I'm fine with dairy, so cheese is okay. Since I had cancer, I try to eat mostly organic foods. I'm so sorry you're having to suffer so much. I had a colonoscopy at the beginning of the 8 years, and it didn't show up. I'm pretty sure that the doctor did not check a sample under a microscope. All those years later, I couldn't eat even rice crackers without losing weight and was wasting away. Even though it's a chronic condition, I was thrilled to actually have a diagnosis. Before, I often felt like the ocean was surging inside my gut, and it was loud and painful. I wish you well in Jacksonville, and do ask about microscopic colitis. They're supposed to be the best!

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I have some type of stomach condition, too. I don't know what is wrong. I am just wasting away, too.

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saygirl | @saygirl | Aug 13, 2021
In reply to @rozy288 "@saygirl i have opposite problem, loose dark stool or diarrhea. The gas my body produces is..." + (show)
@rozy288

@saygirl i have opposite problem, loose dark stool or diarrhea. The gas my body produces is 1000 x more than the average person .it’s non stop wet belching over 3000-4000 a day / night and constant loud churning like a volcano 🌋 erupting .
Chronic …many digestive disorders esp Gastritis / GERD / Esphogitis / small hiatal hernia / diverticulosis. It effects me everyday mostly all day and every meal . I hate eating and I eat healthy and tried every there is out there . It’s sad 😞

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Sorry, to hear about your digestive issues.. I hope that it gets better.

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saygirl | @saygirl | Aug 13, 2021
In reply to @livefully "Rosemary, My heart goes out to you. Ive dealt with digestive issues since 3rd grade which..." + (show)
@livefully

Rosemary,
My heart goes out to you. Ive dealt with digestive issues since 3rd grade which was oh like.. 36 years ago but whos counting?!?! .... Been down some pretty rough physical trials and had gotten so bad that for several years, I just prayed that God would take me home to Heaven cause the physical digestive pains and challenges were so completely draining and ruined life. It was rough rough rough. Ugh and shudder. I got into Mayo in January and am working with a few departments one of which is the integrative department and a nutritionist through them. They put me on some supplements and the SCD diet and it has been life-changing!!! The SCD diet is the specific carbohydrate diet. http://www.breakingtheviciouscycle.info/ It takes commitment and work to get going on it but its doable with the support of the nutritionist and my Mayo doc. Mention it to your Mayo doctors and see if they can guide you on it. Of all the diets I have been put on, I am having the most success with this one.
My best to you!

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I don't know which way to go. Do I go the holistic way or the doctor's way to regain my health? I do not have a bowel movement for 10-30 days? Doctors think that I am crazy.

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