Gastritis, Esophagitis, GERD , small Hiatal hernia , diverticulosis

Posted by rozy288 @rozy288, Jun 5, 2021

I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary

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Profile picture for reallymg @reallymg

I don't know all your issues but GI issues are often linked to an out of whack thyroid. I know. I had GI issues for years and when my thyroid issue was found and resolved, it got soooo much better. Good luck!

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Good to know From saygirl

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I can sympathize with what you are going through as I am headed down the same road. In pain day and night. Sometimes symptoms are consistent and sometimes new ones appear. Went without a burning throat for one month, ( I have suffered for eight months), but during that time had stomach issues. Now the burning is back alongside the digestive issues. It is very scary when you don't know what tomorrow will bring. Have been to ENT, Gastro, pain mgmt, medicine mgmt for anti-depressants and Klonopin, two nerve block procedures and scopes. Having another next week. Finding it hard to not just give up. Wishing you continued strength and successful treatment for your condition.

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Profile picture for KRF @keetar

I Have also seen there a new capsules you can swallow that will act like an endoscope scan and take lots of pictures and images all the way through your body I did not ask about that while I was there but something to think about to see if they do it

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@keetafox i did ask because that pill cam endoscopy can get into places deep in intestines and colon that other endoscopys cannot .
The Gastro Dr. ( last one , not the one that I have televisit with at Mayo in Sept ) told me no . Can’t have it done because you must show some signs of internal bleeding 🩸. Insurance won’t pay unless you fit the right criteria. So I’m sure I’ll be have the entroscopic endoscopy this next time ( goes further into your small intestines but starts like other traditional one with tube down throat, into stomach into deeper in small intestines). I seem to have so much crazy volcano 🌋 noises which cause the deep 1000’s of wet burping from small intestines. Esp after my dinner is fully digested ( I eat at 5:30 pm ) it starts like 4-7 am bad !!
All I know is I’m sick of 7 years of this life . I’ll keep you posted on my Televisit Sept 7 th . Pray 🙏 pray pray 🙏. I will for you and others suffering too .
We need answers , we need more than .. oh you have Gastritis , or GERD or Eshphogitis , or Small Hiatal Hernia or Diverticulosis ( which I have all of ). Plus 5000 deep wet belches and constant churning , grinding , loud gut . I’ve tried everything!! The only thing I take now is Ultra Pepto 1-2 x day . Doesn’t stop the belching but calms the gut for about 1/2 hour . It’s exhausting….
God Speed , Rosemary

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Profile picture for annie2 @annie2

I can sympathize with what you are going through as I am headed down the same road. In pain day and night. Sometimes symptoms are consistent and sometimes new ones appear. Went without a burning throat for one month, ( I have suffered for eight months), but during that time had stomach issues. Now the burning is back alongside the digestive issues. It is very scary when you don't know what tomorrow will bring. Have been to ENT, Gastro, pain mgmt, medicine mgmt for anti-depressants and Klonopin, two nerve block procedures and scopes. Having another next week. Finding it hard to not just give up. Wishing you continued strength and successful treatment for your condition.

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@annie2 read my new reply , I just explained it all . I’m so sorry you too are so so sick .
It’s heart breaking to live this way . I fully understand…. Praying 🙏 for us all .

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Profile picture for saygirl @saygirl

What are the remedies for what you have? saygirl

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@saygirl i just posted a long comment . When you can read it ok . I pray they can find out your issues too . It’s so so hard..
My Mayo Clinic Jacksonville televisit is finally coming up on Sept 7 th after 5 month wait ! This is my last resort .

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Is it possible it's not GI at all, but related to the cervical spine, particularly, the upper levels? The vagus nerve runs very close to these levels. It helps regulate digestion (and breathing and heart rate).

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Profile picture for rozy288 @rozy288

@keetafox i did ask because that pill cam endoscopy can get into places deep in intestines and colon that other endoscopys cannot .
The Gastro Dr. ( last one , not the one that I have televisit with at Mayo in Sept ) told me no . Can’t have it done because you must show some signs of internal bleeding 🩸. Insurance won’t pay unless you fit the right criteria. So I’m sure I’ll be have the entroscopic endoscopy this next time ( goes further into your small intestines but starts like other traditional one with tube down throat, into stomach into deeper in small intestines). I seem to have so much crazy volcano 🌋 noises which cause the deep 1000’s of wet burping from small intestines. Esp after my dinner is fully digested ( I eat at 5:30 pm ) it starts like 4-7 am bad !!
All I know is I’m sick of 7 years of this life . I’ll keep you posted on my Televisit Sept 7 th . Pray 🙏 pray pray 🙏. I will for you and others suffering too .
We need answers , we need more than .. oh you have Gastritis , or GERD or Eshphogitis , or Small Hiatal Hernia or Diverticulosis ( which I have all of ). Plus 5000 deep wet belches and constant churning , grinding , loud gut . I’ve tried everything!! The only thing I take now is Ultra Pepto 1-2 x day . Doesn’t stop the belching but calms the gut for about 1/2 hour . It’s exhausting….
God Speed , Rosemary

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I hate to see any of us suffering with whatever we have going on. I can't say what it is as the doctors simplify the diagnosis too much. I had thought that this upcoming scope was a Bravo procedure but I learned later on that it is not. Just an endoscopy with a few biopsies to be taken. Same old, same old. I don't expect anything constructive to come of it, but trying to remain somewhat optimistic. Someone on a post commented that nothing can be done for my symptoms except a strict acid watchers diet. That is so depressing to me and not helpful in my current state of mind. I think it ironic that most people hope for no significant findings when they have a procedure. Sadly, we hope they will find something so at least we know what we're dealing with. All the best to you when you have yours done. Mine is Thursday and I will post results one way or the other. In the meantime, prayers for all of us who struggle.

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Profile picture for rozy288 @rozy288

@saygirl i just posted a long comment . When you can read it ok . I pray they can find out your issues too . It’s so so hard..
My Mayo Clinic Jacksonville televisit is finally coming up on Sept 7 th after 5 month wait ! This is my last resort .

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Thank you for your comments. Whenever, I eat anything with salt and don't drink water, my bowel lock up in this hard stool. I am also losing weight. I only eat baked chicken and veggies , now.

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It is so strange. I went to the ER and they discovered that I had digestion. The doctor discovered this after giving me a GI cocktail. But, my bowels are still locked up. They prescribed 2 meds: for indigestion : famotidine (Pepcid) and sucralfate (Caralfate) and 1 for my stool ,polyethylene MIRALAX. now I trying to get these meds. I felt good after taking the cocktail.

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@saygirl i have opposite problem, loose dark stool or diarrhea. The gas my body produces is 1000 x more than the average person .it’s non stop wet belching over 3000-4000 a day / night and constant loud churning like a volcano 🌋 erupting .
Chronic …many digestive disorders esp Gastritis / GERD / Esphogitis / small hiatal hernia / diverticulosis. It effects me everyday mostly all day and every meal . I hate eating and I eat healthy and tried every there is out there . It’s sad 😞

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