Gastritis, Esophagitis, GERD , small Hiatal hernia , diverticulosis
I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Thanks, Rosemary
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I don't know all your issues but GI issues are often linked to an out of whack thyroid. I know. I had GI issues for years and when my thyroid issue was found and resolved, it got soooo much better. Good luck!
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1 ReactionThis is true but I've been on thyroid all my life and I'm 70. I still have a "tortuous intestine" and complications that must be dealt with by other means. I really wish I could just take my thyroid and it would resolve everything. I'm truly happy for you! And again, it is true the thyroid does affect digestion.
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1 ReactionI really hope you get it figured out it sounds so unfair to have tried and nothing comes of it. Good luck.
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2 ReactionsHi Rosemary Just got back from Mayo after 3 days. For me the messge was stay the course with SIBO treatment after twisted colon surgery (which removed by cecal valve). This might be a chronic situation for me. I also have Sjogrens but dont treat it with immunosuppresants as I dont like them ( personal choice). I will say a prayer for you to get answers after 7 years. I have only dealt with this for 2 years now. Sounds like you have done so much to try and figure this out. Hang in there. I dont think they do the Trio Breath Test at Mayo. I asked about it as well. That would probably be through a functional practictioner but Mayo should definitely be able to do an endoscope that goes into the intestines and takes a biopsy/culture. Have you had one of those done yet? I am wishing you all the best. Remember to be your own advocate. If you think there are other doctors you need to see there besides GI for various symptoms do not hesitate to ask. This is your shot to figure it all out so be brave, be strong and politely demanding. They are there to help you!!! Keep us posted.
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1 ReactionRosemary GI Map is also functional medicine. Mayo will not evaluate those results. I asked them and they said no.I am trying to get a future telehealth appointment with their integrative medicine group at Mayo. Will let you know if I have any luck with that group. Wishing you future days of healing soon!
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1 Reaction@keetafox thanks for the updates . I’m sure you are happy to be home 🏡!
I’m surprised that Mayo Gastro doesn’t do the GI Mapping or Trio Breath test ? That’s in their wheelhouse ( Gastro).
Functional medicine ( is that covered by insurance)? I didn’t think it was ?
I have a long road ahead unfortunately. I’ve had many colonoscopys and endoscopy’s but not the Entroscopy that goes deeper into small intestines. That’s the one I need them to do .
I’ll know more after televisit on Sept 7 th ! Ugh 😣.. it’s so frustrating and it’s hard to cope most days .
God Bless you .. be well .
GI mapping is functional medicine Trio Breath test is new. Think they use the older version that does not detect hydrogen sulfide Sibo which is what I have. I feel your pain and stress. Feels like we will have to cure ourselves most days hang in there
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1 ReactionI Have also seen there a new capsules you can swallow that will act like an endoscope scan and take lots of pictures and images all the way through your body I did not ask about that while I was there but something to think about to see if they do it
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1 ReactionDo you know what your symptoms are called? I have the similar issues. Anything that I eat is not digested. My doctor thinks that I am crazy, have lost weight, unintentional.
What are the remedies for what you have? saygirl