Living with Neuropathy - Welcome to the group

I have neuropathy in my feet as a result of Chemo 20 years ago. The past year or so it has started to affect my balance. Not sure what to do ?

I'm having a hard time finding the product can you be more specific please. Something that looks like it says sold out. I just need more direction. Thank,you so much.

Hi everyone. I am writing for my mother. She is 76 and has diabetic neuropathy. The pain is mostly in her legs and particularly around her thighs. She is currently weening off of Amitriptyline since it didn't help and sky rocketed her glucose levels. She has been really good about keeping her glucose level at the right level so this has really upset her and then the withdrawal. The withdrawal is pretty bad and I am not too happy with her doctor at the moment. I read through pages of stories and have answered questions about ketamine infusions before. I am looking to see if anyone has any suggestions at this point for things I can do to help or options for pain relief. She can't take gabapentin and is not going to take another med like Amitriptyline after the horrendous results. I have looked at the Neuropathy sites and was hoping you all might have some better suggestions. Thank you.

The website is sativagroup and the name of it is Hemp-Aid pain spray. I have a photo of what it looks like but
I am not permitted to post the photo. Let me know if you have any more problems obtaining it

Photo of product. Hemp-Aid

Hello @teray47, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Sorry to hear you are starting to have balance problems. I also have to be careful after first standing up and taking the first few steps due to balance problems. You might find some suggestions in the following discussion:

-- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

Also, the Foundation for Peripheral Neuropathy has some exercises and physical therapy on their website here - https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/

Are you on any medications for your neuropathy or have you tried any alternative therapies?

Hi @mandrake70, While you wait for others to offer what has helped them, you might find reading member posts in this discussion helpful -- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

I am not on any medication as I have no pain with my neuropathy.
I will check out the exercises you suggested.

Hi Colleen, thank you for allowing me to join your group, How do I post a question?

Hi @gailmarie123, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. Posting questions is easy. To reply to a post you are reading, simply click on the REPLY button below the post and type your response or question. If you are not replying to a post but want to post a new question, scroll to the bottom of the discussion and type your question and click the POST COMMENT button.

More tips and how to use Connect can be found in the Get Started on Connect guide here: https://connect.mayoclinic.org/get-started-on-connect/. You can also open the guide from any Connect page by scrolling to the bottom and clicking the link available in the left most footer column.

Do you have a question on neuropathy?