Chronic Digestive Disorders

@keetafox thanks for the updates . I’m sure you are happy to be home 🏡!
I’m surprised that Mayo Gastro doesn’t do the GI Mapping or Trio Breath test ? That’s in their wheelhouse ( Gastro).
Functional medicine ( is that covered by insurance)? I didn’t think it was ?
I have a long road ahead unfortunately. I’ve had many colonoscopys and endoscopy’s but not the Entroscopy that goes deeper into small intestines. That’s the one I need them to do .
I’ll know more after televisit on Sept 7 th ! Ugh 😣.. it’s so frustrating and it’s hard to cope most days .
God Bless you .. be well .

GI mapping is functional medicine Trio Breath test is new. Think they use the older version that does not detect hydrogen sulfide Sibo which is what I have. I feel your pain and stress. Feels like we will have to cure ourselves most days hang in there

I Have also seen there a new capsules you can swallow that will act like an endoscope scan and take lots of pictures and images all the way through your body I did not ask about that while I was there but something to think about to see if they do it

Do you know what your symptoms are called? I have the similar issues. Anything that I eat is not digested. My doctor thinks that I am crazy, have lost weight, unintentional.

What are the remedies for what you have? saygirl

Good to know From saygirl

I can sympathize with what you are going through as I am headed down the same road. In pain day and night. Sometimes symptoms are consistent and sometimes new ones appear. Went without a burning throat for one month, ( I have suffered for eight months), but during that time had stomach issues. Now the burning is back alongside the digestive issues. It is very scary when you don't know what tomorrow will bring. Have been to ENT, Gastro, pain mgmt, medicine mgmt for anti-depressants and Klonopin, two nerve block procedures and scopes. Having another next week. Finding it hard to not just give up. Wishing you continued strength and successful treatment for your condition.

@keetafox i did ask because that pill cam endoscopy can get into places deep in intestines and colon that other endoscopys cannot .
The Gastro Dr. ( last one , not the one that I have televisit with at Mayo in Sept ) told me no . Can’t have it done because you must show some signs of internal bleeding 🩸. Insurance won’t pay unless you fit the right criteria. So I’m sure I’ll be have the entroscopic endoscopy this next time ( goes further into your small intestines but starts like other traditional one with tube down throat, into stomach into deeper in small intestines). I seem to have so much crazy volcano 🌋 noises which cause the deep 1000’s of wet burping from small intestines. Esp after my dinner is fully digested ( I eat at 5:30 pm ) it starts like 4-7 am bad !!
All I know is I’m sick of 7 years of this life . I’ll keep you posted on my Televisit Sept 7 th . Pray 🙏 pray pray 🙏. I will for you and others suffering too .
We need answers , we need more than .. oh you have Gastritis , or GERD or Eshphogitis , or Small Hiatal Hernia or Diverticulosis ( which I have all of ). Plus 5000 deep wet belches and constant churning , grinding , loud gut . I’ve tried everything!! The only thing I take now is Ultra Pepto 1-2 x day . Doesn’t stop the belching but calms the gut for about 1/2 hour . It’s exhausting….
God Speed , Rosemary

@annie2 read my new reply , I just explained it all . I’m so sorry you too are so so sick .
It’s heart breaking to live this way . I fully understand…. Praying 🙏 for us all .

@saygirl i just posted a long comment . When you can read it ok . I pray they can find out your issues too . It’s so so hard..
My Mayo Clinic Jacksonville televisit is finally coming up on Sept 7 th after 5 month wait ! This is my last resort .