stomach swelling after liver transplant four years ago

Posted by deejean123 @deejean123, Jan 24, 2017

I have a concern and would like to hear if anyone else has had this problem -- I was given a new recliner two months ago and in the past two weeks when I get up from it after having it reclined in a semi laying position== I have noticed a pulling in the rt side of my stomach area below my rt breast. In the past week now my stomach is swelling and if I sit on my bed and bend over to put on socks or shoes that I have to tie, my swelling feels like it is being pinched
I go to Cleveland clinic on the 15th of Feb for my yearly checkup and I will have a procedural catscan so I don't want to go to the er and have one here since the appointment is so close == any suggestions

Interested in more discussions like this? Go to the Transplants Support Group.

@rosemarya

@lvowell, It has been a while since you posted. and I want to check in with you. If I am doing my math correctly you are approaching your 6 month post transplant month and are probably well into your recovery and adjusting to your new life as a recipient.
Are you becoming more comfortable with the numbness that you have described?
Will you be having a 4 (or 5 or 6) month check up with your transplant team?

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The swelling in my stomach is much improved. Thanks for checking back in on me.

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@lvowell

The swelling in my stomach is much improved. Thanks for checking back in on me.

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@lvowell, It is good to hear that your stomach is much improved. I want to assure you that we all have these 'bumps' in the road as we heal and as our organs get used to our bodies. My personal bumps have mostly included elevated temperatures that used to result in an ER visit an/or a night in the local hospital for observation. That has not happened for a couple of years, though. (Transplant was 12 years ago)

I invite you to check out the discussions in the transplant group. Here are a couple that you might find interesting and helpful as a newer recipient.
-Liver Transplant Group
https://connect.mayoclinic.org/discussion/liver-support-group/
-Living Life after your Transplant
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/
-Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
I am here and Connect is here anytime you might have a question or if you just want to talk or share your words of support to someone else.

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@rosemarya

@lvowell, It is good to hear that your stomach is much improved. I want to assure you that we all have these 'bumps' in the road as we heal and as our organs get used to our bodies. My personal bumps have mostly included elevated temperatures that used to result in an ER visit an/or a night in the local hospital for observation. That has not happened for a couple of years, though. (Transplant was 12 years ago)

I invite you to check out the discussions in the transplant group. Here are a couple that you might find interesting and helpful as a newer recipient.
-Liver Transplant Group
https://connect.mayoclinic.org/discussion/liver-support-group/
-Living Life after your Transplant
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/
-Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
I am here and Connect is here anytime you might have a question or if you just want to talk or share your words of support to someone else.

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Thanks.

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I'm in UK but I'm going through the Same thing &I don't no wat it could be have u received a diagnosis if so wat was sai

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Have you been told wat is causing ur swollen liver please reply it would really help

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@rosemarya

@lvowell, I had a liver and kidney transplant, too. And, unbelievable as it sounds, I also got a large kidney and liver. I had PSC (Primary Sclerosing Cholangitis) which progressed to end stage liver failure, and then acute kidney failure and dialysis until transplant. My body was swollen with fluid retention due top ascites from the liver failure, and edema from the kidney failure. My native kidneys are now shriveled to the size of prunes, and cause me no problem. I see the liver transplant team and the kidney transplant team each year on my annual check-up. Fortunately, the both use most of the same diagnostic tests.

I would imagine that your body is still healing internally at just 2 months after transplant surgery. Are you able to do any walking or to begin any exercise?

@lvowell, @livertrex, I noticed the numbness when I first transplanted, too. I don't remember when, but the numbness eventually became my new normal, and it doesn't bother me anymore. I am told that the numbness is because nerves were cut during the surgical process. I hope this helps.

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The numbness is my new normal. I had a liver transplant and a kidney added two years ago, For me it's actually an advantage, as I take insulin shots.

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@merryjane

Have you been told wat is causing ur swollen liver please reply it would really help

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Hi MerryJane, Allow me to bring @lvowell and @rgt back into this conversation to share more with you about the cause of their stomach swelling after liver transplant and how it was resolved.

MerryJane, when was your liver transplant? What is your transplant team suggesting is the cause of your discomfort?

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I think mine was a short bout of ascites. It finally went away after some lasik. Best of luck. I just had my 9 month checkup and was asked to participate in a DNA study for successful transplants. Hope it helps future patients.

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@colleenyoung

Hi MerryJane, Allow me to bring @lvowell and @rgt back into this conversation to share more with you about the cause of their stomach swelling after liver transplant and how it was resolved.

MerryJane, when was your liver transplant? What is your transplant team suggesting is the cause of your discomfort?

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Thanks 4 ur concern I had t/plant 13may 2018 iv had no problems apart from numbness along scar line now I've found like I'm carrying a filled balloon I've only ever been 7 half stone now I'm 10 so as u can c I've put on a lot of weight I've a phone consultation with consultant on Monday so hopefully he will say wat it could be .As u no I'm in UK & consultant's r not seeing patients unless it's an emergency through this terrible virus I've been isolating since last March 😢 only going 4 walks our prime minister is opening all things up 19th but I won't be going very far till its finished I hope this post reaches u & aii is safe in ur part ov the world take car &please keep in touch

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@merryjane

Thanks 4 ur concern I had t/plant 13may 2018 iv had no problems apart from numbness along scar line now I've found like I'm carrying a filled balloon I've only ever been 7 half stone now I'm 10 so as u can c I've put on a lot of weight I've a phone consultation with consultant on Monday so hopefully he will say wat it could be .As u no I'm in UK & consultant's r not seeing patients unless it's an emergency through this terrible virus I've been isolating since last March 😢 only going 4 walks our prime minister is opening all things up 19th but I won't be going very far till its finished I hope this post reaches u & aii is safe in ur part ov the world take car &please keep in touch

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@merryjane, I am a liver and kidney recipient, and I want to welcome you to Connect.
I hope that your phone consult goes well on Monday and that you will get a diagnosis that will lead to a treatment. Electronic appointments have become a preferred option for appointments and they do save patients from the risk of travel during this virus.

Have you had a phone consultation before or is this your first one? Will you be connected by video as well as audio?
Have you made a list of the questions that you want to ask?

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