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John Hopkins Webinar on transplant recipients and vaccines

Posted by bosco17 @bosco17, Mar 24, 2021

They said after first shot 17 out of 800+patients had only a minimal antibody reaction .Also being on mycophelonate reduces effect of vaccines.WHATS GOING ON ??????

Interested in more discussions like this? Go to the Transplants Support Group.

nanmargaret | @nanmargaret | Jul 9, 2021
In reply to @contentandwell "I registered for the Johns Hopkins webinar that is today but I somehow lost my confirmation..." + (show)
@contentandwell

I registered for the Johns Hopkins webinar that is today but I somehow lost my confirmation with the way to get into the webinar. I assume the meeting will be recorded. Could someone post how to get to that recording? I would greatly appreciate it.

Thanks.
JK

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@contentandwell I wasn't able to tune in yesterday. I'm a study participant and in the past have emailed them and requested a link to the recorded event. Will do so now and pass it along.
Looking forward to seeing it and hearing responses here.

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1 reply
benlam11 | @benlam11 | Jul 9, 2021
In reply to @jfk "I have had four shots already. two phizer and two Moderna. Still zero antibodies. I’m being..." + (show)
@jfk

I have had four shots already. two phizer and two Moderna. Still zero antibodies. I’m being advised to take a break from getting vaccinated until further examination of possible other combinations that may help us get the benefit from the shots. It seemed a little bit akin to beating my head against a brick wall. But, in this case, it might be justified to keep going. I’m going to give it a rest until something else material breaks. For context, I am a hand transplant, which apparently entails a slightly higher level of immunosuppression than other kinds of transplants, so maybe my findings don’t suggest other types transplant patients.

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I watched the JH webinar yesterday and they said that once the FDA fully approved the vaccines, doctors will be able to suggest a 3rd shot. France has already approved it for transplant patients. Now Pfizer is going down the route of approval for a third shot booster. I had the first two Moderna shots with zero antibodies. After the third shot I did develop some antibodies (again Moderna). Yesterday I took my Fourth shot and in 2 weeks I will have blood work to determine exactly my antibody load. I am a Liver and Kidney transplant patient (June 2019). I live in a city are ( 7 homes per acre ) and crowds are unavoidable. I do mask, and limit myself to groceries and other essential errands. In Las Vegas we have an infection rate of over 9 and increasing rapidly, as only 50% of the population is fully vaccinated.

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athenalee | @athenalee | Jul 10, 2021
In reply to @rosemarya "@jfk, I hope that you, and all of us, will continue to learn more as time..." + (show)
@rosemarya

@jfk, I hope that you, and all of us, will continue to learn more as time passes. I also hope that we will all be patient enough and strong enough to continue protecting ourselves in the interim. During the webinar yesterday, they did say that some recipients are not showing antibodies after additional doses.

I had my liver and kidney transplant 12 years ago. I am retired, and able to choose uncrowded hours to run errands. What about you? How long ago did you have your transplant? Are you able to continue to be masked, and distanced from others to maintain your safety?

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I believe the results so far indicate that two-thirds of the participants did not develop antibodies after the third dose. And, the emphasis remains to be masked at all times, indoors and outdoors.

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1 reply
zon | @zon | Jul 10, 2021

Bottom line that I took away was pretend you are unvaccinated at all times. Also there was breakthrough infections of vaccinated transplant patients.

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benlam11 | @benlam11 | Jul 10, 2021
In reply to @athenalee "I believe the results so far indicate that two-thirds of the participants did not develop antibodies..." + (show)
@athenalee

I believe the results so far indicate that two-thirds of the participants did not develop antibodies after the third dose. And, the emphasis remains to be masked at all times, indoors and outdoors.

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Fortunately I was one of the few that did after the third shot , yet I still do not know how much protection I have. I do remain masked and avoid extreme crowds, as I live in an area always crowded anywhere you go.

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zon | @zon | Jul 10, 2021

I take my 90 day test from 2nd vaccination next week. So far I’ve shown zero. I’m starting a new study from u of Mn. I got the call on Friday asking me to come in for testing. I will update my experience. It’s a two year study and I think 8 in person appointments. Hopefully we will get better answers soon. I personally feel vaccines may not be a successful path but I have hopes for pretreatments and new drugs that lesson impact if infected. I spoke at great length to a study coordinator from Regeneron. They are asking for approval to start study pre treating people immune compromised with monoclonal antibodies. They have had real promising data from treating family members in same house with infected family member. Very low % of family members got COVID. This is most promising in my opinion. I think biggest disappointment is not being included in vaccine studies. It put us a year behind.

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sreed53 | @sreed53 | Jul 11, 2021
In reply to @nanmargaret "@contentandwell I wasn't able to tune in yesterday. I'm a study participant and in the past..." + (show)
@nanmargaret

@contentandwell I wasn't able to tune in yesterday. I'm a study participant and in the past have emailed them and requested a link to the recorded event. Will do so now and pass it along.
Looking forward to seeing it and hearing responses here.

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We’re you able to find the webinar recording? I haven’t been able to find it.

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2 replies
estrada53 | @estrada53 | Jul 11, 2021
In reply to @sreed53 "We’re you able to find the webinar recording? I haven’t been able to find it." + (show)
@sreed53

We’re you able to find the webinar recording? I haven’t been able to find it.

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Hello. I don't see the recording posted yet but I took photos on my phone of some of their slides. I can post them if it would help. Can't say that I am able to interpret everything but someone might!

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nanmargaret | @nanmargaret | Jul 11, 2021
In reply to @sreed53 "We’re you able to find the webinar recording? I haven’t been able to find it." + (show)
@sreed53

We’re you able to find the webinar recording? I haven’t been able to find it.

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It usually takes them a couple of days to send the link. Hoping for tomorrow. I will post as soon as I get it—I'm eager to see it, too

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