1. < Transplants

John Hopkins Webinar on transplant recipients and vaccines

Posted by bosco17 @bosco17, Mar 24, 2021

They said after first shot 17 out of 800+patients had only a minimal antibody reaction .Also being on mycophelonate reduces effect of vaccines.WHATS GOING ON ??????

Interested in more discussions like this? Go to the Transplants Support Group.

scottij | @scottij | Jun 14, 2021
In reply to @rosemarya "I want to call your attention to the next Johns Hopkins Webinar on COVID-19 Antibody Testing..." + (show)
@rosemarya

I want to call your attention to the next Johns Hopkins Webinar on COVID-19 Antibody Testing of Recipients of Solid Organ Transplants (IRB00248540) being led by the transplant team at Johns Hopkins. You can access the link and register thru the link that @athenalee has shared.

Everyone is welcome.
@jerrynord, @kedwards73, @livertrex, @contentandwell, @luckonetj, @nanmargaret, @terry14, @pdennis, @danab, @estrada53, @nanmargaret,@bosco17, @kohlgryl079, @zon, @snorris, @luckonetj, @livertrex, @bellini, @scottij
Let's meet here after the webinar and share what we have learned, and how we can support each other.

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@rosemarya Many thanks. I have registered and look forward to learning a bit more.
Best always,
s!
Scott Jensen

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Mentor
Dana, Volunteer Mentor | @danab | Jun 14, 2021
In reply to @rosemarya "I want to call your attention to the next Johns Hopkins Webinar on COVID-19 Antibody Testing..." + (show)
@rosemarya

I want to call your attention to the next Johns Hopkins Webinar on COVID-19 Antibody Testing of Recipients of Solid Organ Transplants (IRB00248540) being led by the transplant team at Johns Hopkins. You can access the link and register thru the link that @athenalee has shared.

Everyone is welcome.
@jerrynord, @kedwards73, @livertrex, @contentandwell, @luckonetj, @nanmargaret, @terry14, @pdennis, @danab, @estrada53, @nanmargaret,@bosco17, @kohlgryl079, @zon, @snorris, @luckonetj, @livertrex, @bellini, @scottij
Let's meet here after the webinar and share what we have learned, and how we can support each other.

Jump to this post

I registered

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estrada53 | @estrada53 | Jun 15, 2021

Just saw this on MedPage. Authored by the same researcher from Johns Hopkins as our previous reports.
Info on third dose efficacy for transplant recipients. Scroll down to Opinion.
https://www.medpagetoday.com/

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1 reply
estrada53 | @estrada53 | Jun 15, 2021
In reply to @estrada53 "Just saw this on MedPage. Authored by the same researcher from Johns Hopkins as our previous..." + (show)
@estrada53

Just saw this on MedPage. Authored by the same researcher from Johns Hopkins as our previous reports.
Info on third dose efficacy for transplant recipients. Scroll down to Opinion.
https://www.medpagetoday.com/

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I hope I added thd link correctly.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 15, 2021
In reply to @estrada53 "I hope I added thd link correctly." + (show)
@estrada53

I hope I added thd link correctly.

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Ellen, here's the direct link to the article

Testing Third Doses of COVID Vaccine in Transplant Patients
— New study offers hope for protecting this vulnerable population from COVID-19
https://www.medpagetoday.com/opinion/second-opinions/93102

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1 reply
estrada53 | @estrada53 | Jun 15, 2021
In reply to @colleenyoung "Ellen, here's the direct link to the article Testing Third Doses of COVID Vaccine in Transplant..." + (show)
@colleenyoung

Ellen, here's the direct link to the article

Testing Third Doses of COVID Vaccine in Transplant Patients
— New study offers hope for protecting this vulnerable population from COVID-19
https://www.medpagetoday.com/opinion/second-opinions/93102

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Thanks, Colleen.

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JK | @contentandwell | Jun 23, 2021
In reply to @athenalee "Next John Hopkins Webinar on COVID-19 Antibody Testing of Recipients of Solid Organ Transplants (IRB00248540) being..." + (show)
@athenalee

Next John Hopkins Webinar on COVID-19 Antibody Testing of Recipients of Solid Organ Transplants (IRB00248540) being led by the transplant team at Johns Hopkins.

1-hour live webinar on Thursday, July 8, 2021, at 1:00PM EDT to share our updated findings and answer questions.

Please register here: https://jhjhm.zoom.us/webinar/register/WN_Pr8grO9lSp2ojJM5mk8OXw

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Thanks, @athenalee for the shingrix info and the webinar info. I just signed up to attend.

I've searched online for any trials that might be available for immunocompromised patients who would be willing to participate by having a third shot but have not been able to find any. With only one person having a negative experience that may or may not be attributed to the third shot, it is sounding very positive.

Mass General's guidelines are basically to continue to do exactly what we have been doing. I can follow that somewhat but not entirely. We are spending a long weekend in Maine with our son, his wife, our daughter, and her husband in July and per MGH I should not come within 6' of them and should be masked when with them. That is not going to happen. I realize there is a slight risk but they are all fully vaccinated so I think the risk is worth it.

MGH will not advise the third shot until it is approved by the CDC so I hope the CDC doesn't take too long. I don't hold out much hope that they will be quick though, we are overall a small segment of the population.
JK

REPLY
2 replies
athenalee | @athenalee | Jun 24, 2021
In reply to @contentandwell "Thanks, @athenalee for the shingrix info and the webinar info. I just signed up to attend...." + (show)
@contentandwell

Thanks, @athenalee for the shingrix info and the webinar info. I just signed up to attend.

I've searched online for any trials that might be available for immunocompromised patients who would be willing to participate by having a third shot but have not been able to find any. With only one person having a negative experience that may or may not be attributed to the third shot, it is sounding very positive.

Mass General's guidelines are basically to continue to do exactly what we have been doing. I can follow that somewhat but not entirely. We are spending a long weekend in Maine with our son, his wife, our daughter, and her husband in July and per MGH I should not come within 6' of them and should be masked when with them. That is not going to happen. I realize there is a slight risk but they are all fully vaccinated so I think the risk is worth it.

MGH will not advise the third shot until it is approved by the CDC so I hope the CDC doesn't take too long. I don't hold out much hope that they will be quick though, we are overall a small segment of the population.
JK

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Lahey thus far is the same. We should remain vigilant and under the guidance for those not vaccinated.

Here’s an article I read last month about trials in UK, but not necessarily on transplant folks:
https://www.theguardian.com/science/2021/may/19/covid-booster-trial-will-give-third-vaccine-dose-to-uk-volunteers?CMP=Share_iOSApp_Other
This was a story you may have heard: https://www.npr.org/sections/health-shots/2021/06/15/1006382264/a-3rd-dose-of-covid-vaccines-may-boost-immunity-for-transplant-recipients

I imagine the John Hopkins researchers will address it on the upcoming webinar.

Hope you’re enjoying your summer! Athena

REPLY
1 reply
athenalee | @athenalee | Jun 24, 2021
In reply to @contentandwell "Thanks, @athenalee for the shingrix info and the webinar info. I just signed up to attend...." + (show)
@contentandwell

Thanks, @athenalee for the shingrix info and the webinar info. I just signed up to attend.

I've searched online for any trials that might be available for immunocompromised patients who would be willing to participate by having a third shot but have not been able to find any. With only one person having a negative experience that may or may not be attributed to the third shot, it is sounding very positive.

Mass General's guidelines are basically to continue to do exactly what we have been doing. I can follow that somewhat but not entirely. We are spending a long weekend in Maine with our son, his wife, our daughter, and her husband in July and per MGH I should not come within 6' of them and should be masked when with them. That is not going to happen. I realize there is a slight risk but they are all fully vaccinated so I think the risk is worth it.

MGH will not advise the third shot until it is approved by the CDC so I hope the CDC doesn't take too long. I don't hold out much hope that they will be quick though, we are overall a small segment of the population.
JK

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Oh, I actually just read the research study Colleen had posted. It’s the John Hopkins research group, so that’s good.

REPLY
JK | @contentandwell | Jun 29, 2021
In reply to @athenalee "Lahey thus far is the same. We should remain vigilant and under the guidance for those..." + (show)
@athenalee

Lahey thus far is the same. We should remain vigilant and under the guidance for those not vaccinated.

Here’s an article I read last month about trials in UK, but not necessarily on transplant folks:
https://www.theguardian.com/science/2021/may/19/covid-booster-trial-will-give-third-vaccine-dose-to-uk-volunteers?CMP=Share_iOSApp_Other
This was a story you may have heard: https://www.npr.org/sections/health-shots/2021/06/15/1006382264/a-3rd-dose-of-covid-vaccines-may-boost-immunity-for-transplant-recipients

I imagine the John Hopkins researchers will address it on the upcoming webinar.

Hope you’re enjoying your summer! Athena

Jump to this post

@athenalee I have read that they are giving transplant patients the third shot already in Europe. So far there does not appear to be a downside to it so I hope it will be approved soon. Of course the downside to not getting it is that we are vulnerable. I wish I was more comfortable in my antibody rating of 13.83 but I'm not sure how much protection that provides.
JK

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