1. < Transplants

John Hopkins Webinar on transplant recipients and vaccines

Posted by bosco17 @bosco17, Mar 24, 2021

They said after first shot 17 out of 800+patients had only a minimal antibody reaction .Also being on mycophelonate reduces effect of vaccines.WHATS GOING ON ??????

Interested in more discussions like this? Go to the Transplants Support Group.

nanmargaret | @nanmargaret | May 20, 2021

Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the webinar live and requested a link for the recording. Here it is for those of you who would like to view it.

Please see the following link with the webinar recording:
https://jhjhm.zoom.us/rec/share/WtYnkTtzvq--pdA8W5Z2It0PXPcV-G1566WfQJszVruA4zF0qmw2JsWresPrwhBc.sZYoXTNURmyUo9NB
Password: tMv=#4?f

(Content actually begins at about 2:20 mins in)

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3 replies
nanmargaret | @nanmargaret | May 21, 2021
In reply to @nanmargaret "Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the..." + (show)
@nanmargaret

Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the webinar live and requested a link for the recording. Here it is for those of you who would like to view it.

Please see the following link with the webinar recording:
https://jhjhm.zoom.us/rec/share/WtYnkTtzvq--pdA8W5Z2It0PXPcV-G1566WfQJszVruA4zF0qmw2JsWresPrwhBc.sZYoXTNURmyUo9NB
Password: tMv=#4?f

(Content actually begins at about 2:20 mins in)

Jump to this post

*The above link is for the 2nd Webinar, held May 14, 2021

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JK | @contentandwell | May 22, 2021
In reply to @nanmargaret "Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the..." + (show)
@nanmargaret

Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the webinar live and requested a link for the recording. Here it is for those of you who would like to view it.

Please see the following link with the webinar recording:
https://jhjhm.zoom.us/rec/share/WtYnkTtzvq--pdA8W5Z2It0PXPcV-G1566WfQJszVruA4zF0qmw2JsWresPrwhBc.sZYoXTNURmyUo9NB
Password: tMv=#4?f

(Content actually begins at about 2:20 mins in)

Jump to this post

@nanmargaret I did go to the zoom and if I recall correctly, they asked if anyone who was able to get a third vaccine would get tested both before and after for their studies. That is correct, yes?
I'm wondering how I can do that without being deceitful! I really am not good at deceit but I would love to get a third shot. I would feel so much more protected than I am now.
Thanks.
JK

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 22, 2021
In reply to @contentandwell "@nanmargaret I did go to the zoom and if I recall correctly, they asked if anyone..." + (show)
@contentandwell

@nanmargaret I did go to the zoom and if I recall correctly, they asked if anyone who was able to get a third vaccine would get tested both before and after for their studies. That is correct, yes?
I'm wondering how I can do that without being deceitful! I really am not good at deceit but I would love to get a third shot. I would feel so much more protected than I am now.
Thanks.
JK

Jump to this post

3rd doses and not approved for distribution in the US.
There is currently consideration of a possible booster in the future.

My understanding is that there is not sufficient information about how or whether a 3rd dose is going to be needed.

The JH webinar did not intend to infer that anyone should seek out a 3rd dose.

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1 reply
JK | @contentandwell | May 22, 2021
In reply to @rosemarya "3rd doses and not approved for distribution in the US. There is currently consideration of a..." + (show)
@rosemarya

3rd doses and not approved for distribution in the US.
There is currently consideration of a possible booster in the future.

My understanding is that there is not sufficient information about how or whether a 3rd dose is going to be needed.

The JH webinar did not intend to infer that anyone should seek out a 3rd dose.

Jump to this post

@rosemarya I thought they said if anyone was able to obtain a third dose that they should let them know so a blood test could be done before and after.
JK

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1 reply
nanmargaret | @nanmargaret | May 23, 2021
In reply to @contentandwell "@rosemarya I thought they said if anyone was able to obtain a third dose that they..." + (show)
@contentandwell

@rosemarya I thought they said if anyone was able to obtain a third dose that they should let them know so a blood test could be done before and after.
JK

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Yes, I listened again to Dorry Segev's response to 3rd dose question at approx. 33:00-39 mins.
- 3rd doses for tx patients have been approved in France
- 3rd doses NOT approved here, but some people are receiving them, he doesn't know how
- IF you have or plan to get a 3rd and are in the study, a "real world observational study", they want to follow whatever is happening with study participants so please let them know date and they would like to test you before and after
- ALWAYS GET APPROVAL for additional vaccine doses or changes to dosing of immunosuppressants with your transplant doctors.

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 23, 2021
In reply to @nanmargaret "Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the..." + (show)
@nanmargaret

Hi, I am a participant in the JH Vaccine Study. I wasn't able to watch the webinar live and requested a link for the recording. Here it is for those of you who would like to view it.

Please see the following link with the webinar recording:
https://jhjhm.zoom.us/rec/share/WtYnkTtzvq--pdA8W5Z2It0PXPcV-G1566WfQJszVruA4zF0qmw2JsWresPrwhBc.sZYoXTNURmyUo9NB
Password: tMv=#4?f

(Content actually begins at about 2:20 mins in)

Jump to this post

@kohlgryl079, Here is the link to the Webinar recording. Be sure to copy the password. You can access the post thru the blue "Reply to' at the beginning of this message to you.

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jeanne5009 | @jeanne5009 | Jun 3, 2021
In reply to @contentandwell "@estrada53 I thought the conference was excellent despite them acknowledging that it was not great news..." + (show)
@contentandwell

@estrada53 I thought the conference was excellent despite them acknowledging that it was not great news so far.

I too am on sirolimus and prednisone.

I requested the antibody tests used by Johns Hopkins from Mass General but for some reason, the person who fields all of the portal messages said they were not doing that. I thought if they requested that maybe my insurance would pay for it whereas if I self-referred it would not so I went to get the test anyway. It turned out that they can only do those tests with a doctor's lab request. Since I had already paid a fee I went ahead and got the regular antibody test and I did test positive for antibodies. That test does not tell you just how much immunity you do have though. I asked my PCP for a lab request and she called today and has faxed one to the lab so I will go for that tomorrow. I will be very interested in seeing what my immunity will be. I am sure I will have the results next week. When I do I will let everybody know how I fared.

@livertex I suspect you had the same test I had. It just shows positive and negative, not how many antibodies you have.
JK

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I got an invite for a clinical trial study of vaccine recipients. They sent me a script about 3 mo after my last vaccine for bloodwork at my lab. Then, they sent a letter showing I had positive antibodies. They will continue to test for 1 year..
No charge.

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jeanne5009 | @jeanne5009 | Jun 3, 2021
In reply to @rosemarya "I registered, and I received a confirmation but cannot find how to view it today. Anybody..." + (show)
@rosemarya

I registered, and I received a confirmation but cannot find how to view it today. Anybody have a solution for how/where to view it today?

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I got a letter so I don't know where to look.

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1 reply
jeanne5009 | @jeanne5009 | Jun 3, 2021

Hi! Been awhile...I am still waiting to be on the hot list!
Meld 8 and doing ok. Recent low oxygen in blood has them testing for all kind of things... Have to get used to the new format...😊

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