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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Thank you Terri, I'm going to check those out. I'll also continue to read through these pages to see if I find anything.
Irene, I'm still teaching. I have another 2 years to go until I retire. With all the dust at work, and being in an old school building, I was wondering if that could have been where I got it. Does anyone have any ideas where they might have gotten in.? My Dr said it's a bacteria that's "every where" and I've read some people were saying hot tubs.
I hate to say I'm glad I'm not alone. It was very disheartening when I got my diagnosis and no one I spoke to had ever heard of it. I was very hopeful when I saw this forum and read about so many other people. I wish none of us had it but I'm happy to have found a place to talk about it.
Thank you all.
Gina
Replies to "Thank you Terri, I'm going to check those out. I'll also continue to read through these..."
<br><br><br><br><br>I tried using the 'view & reply' button but it takes me to older posts <br>and I can never find the post I wanted to reply to. It's ok. just know that I <br>LIKE everybodie's posts!<br> <br><br>
Terri, see my response to Maryjo below .. does that help? Hugs Katherine
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https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/?pg=23#post-247625
Windwalker...I am friends on Facebook with the lady who has the double lung transplant...and I see from her posts that she goes to a variety of cities in the USA....CHicago...washington...door county wisconsin....the list goes on and on.terrid
<br><br><br><br><br>YES! Thank you!<br> <br><br>
<br><br><br><br><br>Hello All! I went to my first gym class yesterday. Thought I would start <br>off slow and did the Silver Sneakers class. I was the youngest in there at age <br>58; the others were 65+. I gotta tell you, they kicked my butt! What a fun <br>workout though. Their exercises are designed to work the brain too. I only had <br>to stop twice in the hour and twenty minutes to catch my breath. Look forward to <br>the next one on Monday! -Terri M.<br><br>
@windwalker, Terri that is such a good idea .. anything you can do to build up your body will be nothing but wonderful for your body .. lung transplant or not .. it will be nothing but beneficial!! Hugs! Katherine
Windwalker....I was at Costco today and ran into the Lynn....the woman I told you about who had the bilateral lung transplant. I told her about you ( no name) asking questions re transplant....she asked me to ask you if you want to talk to her or email privately terriD
Terri, that is very thoughtful of you .. I will also message Colleen and see if there is possibly a Forum like our that might be helpful for @windwalker .. Terri .. possibly answer 'pre' questions etc for her. Hugs to both of you!
Thumbs up on beginning the exercise class @windwalker. Do keep us posted on your progress or just reach out when you need encouragement to keep going.
There are two great places about Transplants on Connect.
- To share with others who have had a transplant or are waiting for transplant, follow and take part in the Transplants Group https://connect.mayoclinic.org/group/transplants/
- To read and comment on blog posts by the Mayo Clinic Transplant team, get information about being a recipient and more, follow the Transplant Page https://connect.mayoclinic.org/page/transplant/
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<br><br><br><br><br>Thank you, Terry D!<br> <br><br>