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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Jan 19 10:15pm | Replies (9354)Comment receiving replies
Thank you Terri, I'm going to check those out. I'll also continue to read through these pages to see if I find anything.
Irene, I'm still teaching. I have another 2 years to go until I retire. With all the dust at work, and being in an old school building, I was wondering if that could have been where I got it. Does anyone have any ideas where they might have gotten in.? My Dr said it's a bacteria that's "every where" and I've read some people were saying hot tubs.
I hate to say I'm glad I'm not alone. It was very disheartening when I got my diagnosis and no one I spoke to had ever heard of it. I was very hopeful when I saw this forum and read about so many other people. I wish none of us had it but I'm happy to have found a place to talk about it.
Thank you all.
Gina
Replies to "Thank you Terri, I'm going to check those out. I'll also continue to read through these..."
@windwalker, Terry, LOVE your attitude .. just can't keep that girl down!! Hugs to you! Katherine
<br><br><br><br><br>Thank you Katherine. I appreciate that. I am actually feeling better <br>now than I had in years. I am enjoying the time now. Am grateful to still <br>get around during the day without oxygen. Am grateful I no longer cough. Am <br>learning to pace myself and not over commit. Rest when my body tells me it needs <br>to. I am ok. -hugs, Terri M.<br> <br><br>
<br><br><br><br><br>Haven't learned how to 'Like' people's posts yet. so here it is <br>LIKE!<br> <br><br>
@windwalker, Terri you are too cute! Just click on the 'heart'! Hugs! Katherine
windwalker.....thru a community group l have met a woman....4 years ago she was on Oxygen all the time.....for issues of scleraderma and pulmonary hypertension. Two years ago she received a bilateral lung transplant....and is doing AWESOME....travels alot...involved with many activities....looks and says she feels great!
just wanted you to know terrid
<br><br><br><br><br>When I click on the heart, it brings up a list of favorites from anything I <br>ever liked in my life. I think I do not have the feature to do it or is it <br>because I am returning replies straight out of my mailbox?<br> <br><br>
<br><br><br><br><br>Awe....I really appreciate this note of encouragement. I attend a lung <br>transplant support group at the Mayo and have met other survivors and <br>'Thrivers'. I will meet with them on the 7th. Pretty sure it will be an <br>inevitable step I will have to take some day myself; and I am trying to get <br>myself used to the idea and gain confidence. I joined a gym today to build up my <br>body for the fight.<br> <br><br>
Terri, it must be because you are: " it because I am returning replies straight out of my mailbox?"
It only works if from your email you hit VIEW & REPLY.. then when you read the post inside our Forum .. THEN you hit the heart below the Post.
like I just did at https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/?pg=23#post-247612
<br><br><br><br><br>You mentioned that that woman ended up traveling a lot. That is also <br>encouraging to me because I would LOVE to travel, but don't have the stamina to <br>do right now.<br> <br><br>
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<br><br><br><br><br>I am trying my best to not ever need that transplant. I have made a lot of <br>lifestyle changes. Plus, I try to stay current on medical info too. My journey <br>isn't sad to me anymore, I have gone through the steps and grieved the loss <br>of 2/3 of my lungs, if you met me, you'd have no idea I even had health <br>issues. I still go like a bat out of hell sometimes. (but then I have to <br>rest for two days LOL!)<br> <br><br>