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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Thank you Terri, I'm going to check those out. I'll also continue to read through these..."
@tessie, Tessie,
Hello and Welcome to our Forum! We are so glad you found us! You will find our group a support on our shared journey with an exchange of our experiences and the information we have gathered. We are NOT doctors but if you read past pages of our post you will learn a LOT about MAC and Bronchiectasis .. unfortunately sometimes more than many doctors are aware of.
My thoughts .. first I would recommend you read through the past pages of our Forum .. you will really educate yourself to your MAC disease .. you will feel SO much better by educating yourself .. more in power of your journey ... better able to advocate for yourself AND your medical choices. As you educate yourself .. you MUST become your own best advocate!
BECAUSE NO ONE knows how ANY single one of us got MAC. There are LOTS of theories .. but there is little research for our disease .. so no definitive decision. Truthfully .. just THINK of the MILLIONS of dollars thrown at cancer research .. still not all the answers yet. SO my dear .. do NOT put your energy in asking WHY .. put your energy into educating yourself .. THEN getting the very best medical care possible! THAT is my opinion! Sending you a hug at this tough time! Please keep coming back .. we will be here for you! Katherine
Thank you Colleen! Colleen gave me a good link to add to our pages in case you or anyone you want to suggest Mayo Clinic Connect to for any/all situations .. I know I've made a note for my Personal File Cabinet! The link for it is:
MAYO CLINIC CONNECT-GROUPS AVAILABLE
https://connect.mayoclinic.org/groups/
Hugs! Katherine
Thanks for writing Katherine. You have forgotten me. I realize you're well known here and it's difficult keeping track of everyone. Note though, I've been online almost a year now with this same Mayo Clinic group. I really appreciate the discussions and participation.We are bitter cold here in Toronto with sunshine. Have a wonderful day.still on meds,thanks!Tessie
@tessie Tessie you are SO right! Not only did your photo look familiar .. but your name looked familiar but I can ONLY claim age .. AND because our wonderful group has become so large .. some months ago I began a 'list' of names so that I would NOT miss a newcomer .. but NOW you 'old timers' are paying the price as you reappear! So sorry my dear .. so glad you are STILL with us! Keep coming back .. the "the old timers' are a wealth of hints/knowledge/help for all the newcomers! Again, please accept my apologies!
SO ,, you other 'old timers' .. if I do this to you also .. an apology in advance! I'm just doing my best with our wonderfully growing community of MAC folks .. a community that continue to support each other and newcomers .. we will all continue to grown and learn together! Together we get stronger and healthier on this our shared MAC and Bronchiectasis journey! Hugs not only to our 'old timer' Tessie but to all our 'old timers'! Katherine
<br><br><br><br><br>Oh,WOW! That would be great! Please private message me, we can <br>exchange phone numbers from there. Thank you so much for keeping me in your <br>thoughts. I hope you are doing well. Hugs -Terri M.<br> <br> <br>
<br><br><br><br><br>AGREED!<br> <br><br>
Hi @windwalker, please note that I removed your private email from the public discussion. We recommend using the private message function to exchange personal contact information. We don't want you getting unwanted spam email. 🙂
<br><br><br><br><br>ok, thank you.<br> <br><br>
While I continue to carry on with 3-antibiotics, I wish they knew where/how I got MAC. Please tell me research is still ongoing. There is no guarantee I won't get MAC again. I read more and more cases have occurred. Maybe airborne - I have no idea.