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John Hopkins Webinar on transplant recipients and vaccines
They said after first shot 17 out of 800+patients had only a minimal antibody reaction .Also being on mycophelonate reduces effect of vaccines.WHATS GOING ON ??????
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Antibody Response to 2-Dose SARS-CoV-2 mRNA Vaccine Series in Solid Organ Transplant Recipients. John Hopkins Study
https://jamanetwork.com/journals/jama/fullarticle/2779852
Their conclusion "Although this study demonstrates an improvement in antispike antibody responses in transplant recipients after dose 2 compared with dose 1, these data suggest that a substantial proportion of transplant recipients likely remain at risk for COVID-19 after 2 doses of mRNA vaccine. Future studies should address interventions to improve vaccine responses in this population, including additional booster doses or immunosuppression modulation."
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3 ReactionsWill be interesting to see results as time passes. Guess our hope is in “herd immunity”…
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2 ReactionsOr what my doctors say - "community immunity" 🙂
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2 ReactionsThanks for posting the "real" link. We still have work to do regarding the vaccines and must continue to protect ourselves. But this time others will not be protecting themselves at our same level. Others may think it's okay not to mask up and social distance, so it's a bit of a balancing act for us! So happy to have this website to share this info!
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5 ReactionsVery helpful information, which concerns me.that im.not hearing more from.Mayo itself as to some of these studies. I will.admit I keep hearing the same mantra, "We are following the CDC and WHO recommendations" which is not telling us much. I have always respected the opinion of my Doctors directly but lately it seems they are just quoting the mainstream media as to what to say. Im told we should not listen to erroneous sources but when information is wanted and your primary sources are quiet it makes it hard to not listin to what appears to be good information for people who are some bodies Doctors talk about all aspects of the information available. I'm really having a hard time dealing with the lack of data from Mayo Doctors these days. I just sent a request to my team about getting an antibody test since I did come in contact with individuals who had confirmed covid but after the fact. I did not have any symptoms but based on some of the information out there I could have been asymptomatic and not know it. The response I got was a basic We are following CDC and WHO recommendations and are suggesting all patients follow those guidelines. Which really upset me since I've come to relay on the opinions of my Mayo Doctors not what CDC says. What are we paying them for? It's really got me concerned as to what is driving the current campaign about vaccinations. Oh well I'll just keep to the original advice I received during my transplant. Mask up during virus seasons, wash my hands and take precautions. Until I feel the information im getting is from my doctors and not from the government.
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2 ReactionsThank you, Rosemary
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1 Reaction@danab- I hear you, my friend. I think that the problem is more that your doctors, whether Mayo doctors or a clinic doctor somewhere in the deep woods, just can't answer your questions because they simply don't know. Their egos won't let them admit it. Some doctors have huge egos as you know. It's so frustrating not to have answers to matters of such importance. I know that you have struggled with this a lot so the time might be to just go ahead and decide, one way or the other until there are more answers and answers that make your doctors appear smart!
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2 ReactionsThe drive for vaccination is probably the only thing that will eventually bring protection for us transplant patients. We were told that it would be likely our immunosuppressed systems would not develop the antibodies from the vaccine to provide full protection. And, the research certainly proves that. So, we are going to have to keep being masked and cautious until more people are vaccinated and the virus continues to wane.
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5 ReactionsI am patiently awaiting further research to give some answers.
In the meantime-
I have already decided to continue being extra cautious because, even before this pandemic and restrictions, that is what I was accustomed to doing. Since before-my-transplant, I was informed of my higher risk immunosuppressed status and that I would need to maintain my safe distance, hand washing, and to avoid shaking hands, especially during flu season. And now I plan to continue wearing my mask in public, too.
-To any Newer Transplant Recipients and families and friends, Here is a discussion that was active before the pandemic. I invite you to discover tips where members discuss and share: hand washing and germ prevention, eating out; attending public events; daily medicine reminder……Practical living ideas, and handshaking alternatives.
Living Life after your Transplant
https://connect.mayoclinic.org/discussion/living-life-after-your-transplant/
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3 ReactionsAgreed. I was diagnosed with both my autoimmune disease that caused Stage 3 liver cirrhosis in the summer of 2019. That October, I had internal bleeding and TIPS. Recovered from that and along comes Covid and continued health decline. I had my transplant last August, so have been “masked, sanitized, largely isolated, and cautious” for over a year now. I’m sure I’ll have to remain so for awhile and possibly indefinitely during flu season. But in Vermont 40% of adults are fully Covid vaccinated and more than 60% have their first shot. Spring is here, so I remain vigilant, but certainly more hopeful!
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