Burning Mouth Syndrome. I have it very severe.

Has anyone had success with medical marijuana

I’m 68 years of age and suffer from BMS. I have seen many medical specialists and tried many things. I use a small amount of eatable marijuana in the late afternoon
after any “driving chores” are done. It gives me back some mucous lining in my raw mouth, calms me down, and makes me feel less sorry for myself. Take a tiny bit to see how it effects you and don’t have any alcohol as that magnifies the effect. I find it stays in my system for quite a number of hours so be careful not to use more until it has worn off - don’t drive until next day. If I’ve had a very quiet day sometimes don’t take again ‘TIL second day. It also makes my lips feel less tight and hurtful. It doesn’t “cure” for sure but gives relief for a few hours when you can’t take it anymore. I don’t use any other meds regularly except vitamin B12 and vitamin D3. Hope this assists someone. - B

I’m 68 years of age and suffer from BMS. I have seen many medical specialists and tried many things. I use a small amount of eatable marijuana in the late afternoon
after any “driving chores” are done. It gives me back some mucous lining in my raw mouth, calms me down, and makes me feel less sorry for myself. Take a tiny bit to see how it effects you and don’t have any alcohol as that magnifies the effect. I find it stays in my system for quite a number of hours so be careful not to use more until it has worn off - don’t drive until next day. If I’ve had a very quiet day sometimes don’t take again ‘TIL second day. It also makes my lips feel less tight and hurtful. It doesn’t “cure” for sure but gives relief for a few hours when you can’t take it anymore. I don’t use any other meds regularly except vitamin B12 and vitamin D3. Hope this assists someone. - B

Glad it does something !
I have BMS....3 miserable years of hell and counting. Nothing works,not even clonazepam.
Please check, and test for these causes of BMS.
1) -HSV- 1, HSV-2 blood test and 24 urine study.
2) HEAVY METALS blood test with 30 days on and 30 days off all types of seafood, and WHITE RICE.All can contain mercury.
3) Test for viral infection.
4)test for yeast infection
5)reflux testing.
6)Full range of test for allergies.
All my testing was negative.However, these can cause this condition.
Stu

@ ristu I have BMS for 3-4 years, with none of those conditions, and like you, nothing works. The most significant fact here I think is that the medical profession has no idea what causes it. Thanks for info.

I just joined the group today. I have had BMS for over a year. I have also been diagnosed as having Sjögren’s syndrome and celiac disease. I follow a gluten free diet and take a low dose of prednisone and hydroxychloroquine. I use Biotene toothpaste and mouthwash. I tried pilocarpine but hate the side effects. Any suggestions?

I have had severe acid reflux for many years. It has progressed from esophagus to mouth to nose causing burning sensations. I also have Sjogrens that exasperates this condition. I take Protonix bid and Zantac at bedtime and use biotene in all its forms. This has been the most helpful for me and may help you.

I have had BMS for the past 3 to 4 years and I’ve recently tried this GABA product- One spray sublingual when the burning is worse mid afternoon. But this is just a supplement to my amitriptyline which I take 10 mg first thing in the morning, another 10 mg around noon and 20 to 30 mg just before bedtime.