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Burning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Nov 6 10:38am | Replies (564)Comment receiving replies
Thank you so much for the input! Excellent idea about the toothpaste... I will do that immediately. We are in a Rehab Center (due to hubby's nutrition being severely impacted by a swollen, painful tongue) and they do have him on Magic Mouthwash... and I think it does help. As to the oral surgeon... we did go to one and he said he doesn't treat TMJ or BMS ... then referred us to another dentist that bills himself as a "maxillofacial pain pathologist" ... very expensive and takes no insurance. Since we were already with a TMJ "specialist" who is willing to treat the BMS we didn't go to the "pathologist" yet, but we may HAVE to soon. Not only is BMS starving my little hubby of nutrition, but it's eating into our life savings also! Again... thank you for answering me. It's so good to know there are others out there going through the same thing. I don't feel quite so alone. God Bless you!!!
Replies to "Thank you so much for the input! Excellent idea about the toothpaste... I will do that..."
Please esplanade the system to me again. What is the user name. Sorry all this modern tech stuff is new to me. I would like to reconnect with someone.
Thanks
Connielaine
I'd be pleased to explain. When you signed up for Connect you put your name to identify you as Connielaine. My name here is sandytoes14. If you wanted to write back to me you would come to this page, click the reply button and then type@sandytoes14 and your message. Keep in mind that what you type is public, everyone on Connect can see it. So please do not give your phone number or email address in your post
You are doing great!
Jen
Sorry I hit wrong letter.
Do not let anyone tell you,that you are crazy..This is a debilating condition,and Dr's won't tell you,but there is no cure.
I have been to Beth Isreal hospital, Tufts cranial facial pain clinic.Brigham & Womens hospital, and Mass General Hospital. .I also many years ago seeked treatment at Lahey Clinic..
If you take a look.at some liturature, from the Trigeminal,Burning mouth pain clinic,you will find, there is nothing they can do..Unless you decide to have your tounge nerve killed,then for the rest of your life,you will have no feeling,possibly a sagging face,and could bite off your tounge.As one Dr. put it,that wears thin as well.I'm so sorry for you and many o
ther who face this debilitating condition.
I'm 67 now,and I have no Golden years.
My days are spent in bed,most of the time in p.j's..I'm worn down from all these years if suffering. My mind and body are tired.I can also tell you all the different types of meds I have taken
I also had seen 3 healing priests,and several treatments of acupuncture. .
If I can answer some questions, please feel free to ask.
I'm sure I've done the whole route..
God bless, and to all the other people,who live hell on earth.
My user name is sheetrock0131
Thank you, but I could not figure out how to connect. I do suffer with severe bms and have posted ideas as to using very thin bite plates to relieve the pain. Sorry I am so lacking in using my iPad in detail.Connielaine
You answered perfectly @connielaine. Just keep doing what you're doing. Your messages are being posted to the message board.
Hello, @adkhs3333. just wanted to touch base and see how things are going with your husband. How is it going with the burning mouth syndrome? Did you get the help you were looking for?
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Hello @maggie45 and @connielaine I'd like to share a tip with you for using Mayo Connect
When you want to get someones attention type this sign @ and the username You will get a notification of the reply!
Have a good night!