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DiscussionBurning Mouth Syndrome. I have it very severe.
Skin Health | Last Active: Nov 6 10:38am | Replies (564)Comment receiving replies
Replies to "Thank you so much for the input! Excellent idea about the toothpaste... I will do that..."
Have had bms 25 years-no real relief. Do believe it is strictly nerve problem-.try small plastic night guard during the day-removes the pain immediately. Believe it keeps certain affected nerves apart.
Connielaine, could you describe in more detail what this night guard is like? I wore one for years, but the dentist that made it retired. I can't find another dentist that knows how to make it. I really feel it made a great deal of difference in how I was able to function. Thank you so much for your help. I have also had bms for about 20 years.
Hi, the bite guards I have are wafer thin and small, so more comfortable. I got them many years ago, but sort of forgot about the help they provide. I Halppen to know a man who is in charge of dental department at a local small university.
He just recently made me 6 of them-two upper and 4 lower-not to be worn together, but to pick and choose. The material is very thin and he told me to trim them to my comfort, which I have been doing a little at a time.
He thinks by something between teeth it keeps nerves from connecting. Anyway when I have one in I feel NO pain. Even though they are thin sometimes feel a little bulky.
Anyway perhaps you could locate a dental college where they could make you a mold and a few plates. My friend tee he's students to make false teeth, crowns, etc.
Maybe you could check your computer for city college and ask about dental students.
Where do you live-I am in Miami.
Keep in touch, please.
Hi Connielaine,
Thanks so much for the prompt reply. Your description is very helpful. I will pass it on to my dentist, who also is a faculty member at a university.
We live in part-time in the Denver area so I will see what my dentist has to say. If I recall correctly, you also have trouble with your jaw. I have also been diagnosed with TMJ/TMD and see a chiropractor who is very helpful. He has consulted with a friend who specializes in neuro issues, and this has given him new ways to treat me. Some chiropractors I've seen have been no help because they don't understand this condition. Sound familiar? He uses a special technique, and I will find more information about it if you are interested. He uses a computer at each session and makes small adjustments according to the image. I also have arthritis around the jaw area. Previously, I went to another chiropractor who was making me worse, so its very important to find the right one. I'm very interested in complementary therapy. I hope you stay in touch as well! lauren123
I have found that the only toothpaste that works is Biotene. There is the fresh mint and the Gentle Mint. I think the Gentle Mint in the green tube is by far the most tolerable. I also use the mouth wash several times a day when I feel throbbing or burning. Another option is TheraBreath Dry Mouth Lozenges for flare-ups. I hope this helps. My issue is gum pain, so this might not be the right suggestion. Best wishes.
I really do not have tmj problems. My bms is located in rear mouth, but no pain when chewing. It gets stiff by pain area, so I take Ativan 3times daily. Hope you can obtain some of these tiny bite plates-if they feel tight you can trim them easily. You could check wherever they are studying to make false teeth and/or other types of dental needs.
Again keep in touch.
Connielaine
Thank you very much... We have used the mouth was and the mouth spray and it is quite helpful to my husband. You can bet I will be getting him some of the toothpaste and the lozenges asap!!! Again... thank you!
Hi Connielaine,
I know it has been some time since I've communicated- mostly because I am so discouraged and disheartened by all the dentists and neurologists I've seen that can't help- and don't seem interested in trying. I am still trying to find someone locally who could make the bite guards you described but when I show them what you wrote they look at me like I'm crazy. I know this is a long shot but if you are still in touch with the person who did this for you, could you get his email and find out if he's o.k. with someone from the Buffalo area (assuming I can find someone) contacting him to learn more about how he did this, i.e what is the material he used to make the plates. Again, as always anything you could do would be greatly appreciated. I hope you are all doing better; I have no real good days, just occasional pain free moments which I relish. I just can't imagine spending the rest of my life living with the never ending pain. Blessings to all,
Maggie45
This my third attempt to answer you. Each time something interferes and all writing is gone. I will call my friend tomorrow night and ask him a few questions. I saw the sheets of plastic he uses (4"by4". He made mine clear plastic. Did you ever have a hard night bite plate made. Some are made for people who grind their teeth. If so any dentist can order those. Same idea but mine very thin and very small. Plastic flexible enough for mr to trim a little off. Before I remembered my dental friend I went to cvs and bought their least expensive guard, which I used a few times, but it protruded and made. It visible from front. But possible you might want to try one of those to se if holding the jaw open with that would bring you comfort. I do not know how to get back to you but I will try. I am not too good with this iPad. Please get back to me. I will try to reach you morrow after I speak to Mauricio.
Good Luck.
<br><br><br><br><br>For some reason Colgate is the worst for me.check ingredients- I think it is the sodium lauryl sulfate that causes me to react. Biotene mouth gel at night may be helpful as well.<br><br>