I've been told that these won't work for me either. Have you tried Klonipin and cymbalta, along with ambien and doxipin to sleep? These seem to work best for me, as long as I get enough sleep and do a lot of yoga. As someone mentioned, we all have to be careful we don't have too high a dosage. Some people have reported that Lyrica is helpful, but of course, everyone seems to respond differently. I hope you are doing better.

Lauren,i had been on clonazepam for years.I also am currently being weened off cymbalta,as i feel it is not helping.I have recently been put on alprozalam,generic for zanax..I take 1mg twice p.day..I have also been on gabbapentin,and many other medications including seziure meds.(not helpful)I am so desperate for help,i went to three healing priests,and have blessed water from Lourdes in France..Clonazapam or zanax gives little relief,until it wears off..Today is a bad day,as our weather is very rainy and damp,so my mouth is raging with burn..As always i take pleasure intalking with you..Hope your having a good day..

Sheetrock, I'm sorry to hear that you've not gotten significant relief from these meds. If you don't mind sharing, what dosage of Clonazapam are you taking?
My doctor just told me to start taking it in a form that dissolves under the tongue.
Are you sleeping okay? Edluar dissolves under the tongue as well, and I have found it to be helpful since I wasn't really sleeping until I went on this med. Best wishes for finding some help. How about meditation or yoga? It helps me stay focused on something other than the pain.

Hi Lauren,I took the pill that dissolves also,for some reason the clonazapam seem to help me the best.I am currently on 0.5 mg 2times per day.I usually wake up during the night.It is very hard to get to sleep when your mouth is burning..I plan to take Yoga classes,i have heard many sufferes find help with Yoga.I have to push myself to go,i am always so depressed with this awful condition,it holds me back from doing much..Please feel free to write back..Thanks for your concern..Take Care..

Hi Sheetrock, I also take the dissolving pill as well. However, I take a third dose of .50 about an hour before I go to bed. Along with the Edluar, I am able to sleep. The lack of sleep could really be complicating your condition. Perhaps you should speak to your dr. about it. I hope you keep up with the yoga. I have developed a home practice since I can't always make it to classes, although I love the support I get from a group atmosphere. I also pull back from activities which is very characteristic of this condition. I do think that ALA helps as well.

Hope to hear back from you soon.

Hi Laure,what is Edular?Maybe i could run it by my Dr. I can relate to pulling back from activities,i also hold back.There are days that i stay in bed.You are right about the lack of sleep,and stress can also heighten my bms..Today was a bad day,woke up with burn,and pain on side of the face and behind my eye.My throat also has been on fire all day as well..I enjoy talking to you..Please stay in touch....

Edluar is similar to Ambien. According to my dr., because it dissolves under the tongue, it does not have to be broken down through the liver. The best part for me is that it is very fast acting, so sleep comes quickly. I tend to be much more active during the day now, since I know that I will sleep at night. Also, my doctor has me on 25 mg. of doxipin which I take right before I take the Edluar.
You might want to look up these drugs on the internet. I'm interested to hear what your doctor says about these drugs.

My doctor is a dentist, an MD and an anesthesiologist. He helped me more than all the others put together. Sadly, he is no longer "my" doctor as he told me just last week that he is closing his practice and will be running a pain clinic for the Dept. of Defense. I know these returning soldiers need his kind of help , but I am now without a pain doctor. I hope that anyone who knows of someone around the Denver area who deals with facial pain issues will respond with some options.

Let's all keep talking.

Hi Lauren,I'll be sure to run this by my Dr.It amazes me how the best in Boston,have'nt a clue on how to treat this condition.The neuro,at Tufts wanted me to take 4omeprazoile a day.He was sure it was coming from acid in my stomach.The drugest could not believe how much he wanted me to take..My insurance would'nt pay for 4per day/they said it would kill all the acid,and we are suppose to have some acid.there are over a million people who suffer from this dreadful condition..I'll keep you posted.Have a good Memorial weekend.

Thanks Sheetrock. Any word from your doctor?

Your rendition about the man in the nursing home goes against your belief that dental work - extractions - caused BMS as he had it before the extractions.