1. < Fibromyalgia
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fibro

Posted by momma73 @momma73, Jul 20, 2011

i been diagnoised with fibromyalgia. Would like meet others with same.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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birdntroutlady | @birdntroutlady | Apr 27, 2012
In reply to @motanurse "Anyone w/fibro will tell you that it's not particular,Young old thin heavy,makes no difference,it's very painful,I'll..." + (show)
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Anyone w/fibro will tell you that it's not particular,Young old thin heavy,makes no difference,it's very painful,I'll be glad to shre about it.

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You need to find a doctor. I see a neurologist and he started me on gabapentin. I only take 600 mg/ day and some of his patients are up to 3600 mg! I am exercising and getting some water therapy also. That gabapentin really gave me hope. I had thought I might have bone cancer I hurt so badly. Just wanted to stay in bed or on couch. Pray and hang in there.

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birdntroutlady | @birdntroutlady | Apr 27, 2012
In reply to @77goingon35 "Have you ever been diagnosed with Fibromyalgia? Perhaps you should see a Reumatologist." + (show)
Profile picture for 77goingon35 @77goingon35

Have you ever been diagnosed with Fibromyalgia? Perhaps you should see a Reumatologist.

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A good neurologist will help with the diagnosis also.

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birdntroutlady | @birdntroutlady | Apr 27, 2012
In reply to @momma73 "they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im..." + (show)
Profile picture for momma73 @momma73

they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im on visrtil...all it does is knock me out doc not sure wat to do. and no im not able to work

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I make sure I do a daily Bible study, do one also in a small study group and make it to Sunday school and church. Prayer can help if you do so continually. Watch funny shows on TV, find 1 relaxing thing to do for yourself each day and don't try to plan too much to do in 1 day. Sometimes all I can get done is shower and cook supper and that's not been much lately and I used to bake bread and pies for family a lot. They're adjusting. Days I wash clothes, I cook an easy meal or my husband brings home food for us to eat. I add fruit to that and we seem to make it fine. I'm praying for you.

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birdntroutlady | @birdntroutlady | Apr 27, 2012
In reply to @momma73 "they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im..." + (show)
Profile picture for momma73 @momma73

they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im on visrtil...all it does is knock me out doc not sure wat to do. and no im not able to work

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It took me some time to adjust, but I'm doing much better now. I take 300 mg in morning and 300 mg at bedtime. It really helps.

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birdntroutlady | @birdntroutlady | Apr 27, 2012
In reply to @momma73 "Hi Bugs38 I was diagnosed with Fibro about 9 months ago. I have 2 cousins with..." + (show)
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Hi Bugs38
I was diagnosed with Fibro about 9 months ago. I have 2 cousins with Lupas and a couple family members with the fibro. I know from my experience that nothing works as of yet. I am being sent to a orthopedic cause doc is conceren of what else is wrong.I have horrible problems with my ankles and it does affect me in every way...DRIVING is a disaster most the time.So i limit to how far i do drive.

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Water therapy is good also or swimming/exercise in a heated pool.

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Roxie43 | @roxie43 | Apr 27, 2012
In reply to @momma73 "Hi Bugs38 I was diagnosed with Fibro about 9 months ago. I have 2 cousins with..." + (show)
Profile picture for momma73 @momma73

Hi Bugs38
I was diagnosed with Fibro about 9 months ago. I have 2 cousins with Lupas and a couple family members with the fibro. I know from my experience that nothing works as of yet. I am being sent to a orthopedic cause doc is conceren of what else is wrong.I have horrible problems with my ankles and it does affect me in every way...DRIVING is a disaster most the time.So i limit to how far i do drive.

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BettyAnn every time I see your pic I just think that you are the cutest thing. I also like how positive you are "All good things are possible". I agree wholeheartedly.
Rox

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birdntroutlady | @birdntroutlady | Apr 27, 2012
In reply to @debbieclark1 "I was diagnoised with fibromyalgia about 14 years ago. I tried everything from anti-depressants, anti-inflammatory meds..." + (show)
Profile picture for Debbieclark1 @debbieclark1

I was diagnoised with fibromyalgia about 14 years ago. I tried everything from anti-depressants, anti-inflammatory meds to natural remedies and herbs. At times I would feel so desperate I hated being inside this body. After a couple of years of being inactive because of the pain and being depressed because I couldn't enjoy life the way I use to.I gained alot of weight. I had come to accept that fact that I was going to have to live with the pain because there was nothing I could do about that but I could try to control my weight. I started taking phentermine and to my suprise after the first week I was amazed at how I was feeling. The pain was going away, I was getting my energy back, I was feeling normal again and not down in the dumps. I was able to go dancing again and do activities that I thought I would never be able to do again. I was back!!! I don't know what it is about the phentermine that works but I am living proof. I have been taking phentermine off and on again for the last 12 years. I don't have any bad side effects from it. I am 50 years old and happy with a full life. I do have some rough times when I am not on the phentermine. But I have learned to take control of my life and deal with the discomfort and when it gets too bad I just go to get back on the phentermine. I don't know if anyone else out there with fibromyalgia has tried phentermine but if you haven't I would advise you to give it a try. Just keep a watch on your blood pressure because it can increase it. I am on blood pressure medication but I have been on it for years. If anyone else has had an experience with phentermine could you please send me a message and let me know Thanks. Debbie

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Insist on it or get another doctor.

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constantina09 | @constantina09 | Apr 30, 2012
In reply to @constantina09 "Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently..." + (show)
Profile picture for constantina09 @constantina09

Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently I am 20 years old and was diagnosed with Fibro when I was 16. For about 6 years prior to being diagnosed I went from doctor to doctor being told that nothing was wrong with me and I just needed to stop making things up. (That obviously did not help with the depression that I was already facing.) When I was a senior in high school I decided to do a presentation for one of my classes on Fibro because I wanted people to understand what people with Fibro go through. I did not want any sympathy from the kids that I went to school with I just wanted them to understand that just because I look normal and act normal does not mean that I am. The psychologist that I go to took my presentation to a meeting she was talking at and wanted to share it with other psychologists. I understand what you guys mean when you say that doctors don't always know what Fibro even is. That part really SUCKS!!!!!!! I have tried Lyrica in the past but it did not work well for me so currently I am not taking anything to manage the Fibro, which once again SUCKS!!!!!! I am praying for you all and hope that relief comes to everyone dealing with this.

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How long have you been on the Gabapentin? They put my grandfather on this medication and it made him really tired and he slept a lot. I don't know if that is a good comparison to make because he had also had a stroke and some heart problems. Is this a problem for you? Oh the "heated" pool sounds really nice! It is important to know that it is ok to ask for help, and to know what your own limits are. God bless you!!! I also believe that praying is a big help! God knows better than any doctor what we need. May the Lord bless you and your family.

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constantina09 | @constantina09 | Apr 30, 2012
In reply to @constantina09 "Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently..." + (show)
Profile picture for constantina09 @constantina09

Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently I am 20 years old and was diagnosed with Fibro when I was 16. For about 6 years prior to being diagnosed I went from doctor to doctor being told that nothing was wrong with me and I just needed to stop making things up. (That obviously did not help with the depression that I was already facing.) When I was a senior in high school I decided to do a presentation for one of my classes on Fibro because I wanted people to understand what people with Fibro go through. I did not want any sympathy from the kids that I went to school with I just wanted them to understand that just because I look normal and act normal does not mean that I am. The psychologist that I go to took my presentation to a meeting she was talking at and wanted to share it with other psychologists. I understand what you guys mean when you say that doctors don't always know what Fibro even is. That part really SUCKS!!!!!!! I have tried Lyrica in the past but it did not work well for me so currently I am not taking anything to manage the Fibro, which once again SUCKS!!!!!! I am praying for you all and hope that relief comes to everyone dealing with this.

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I am just know seeing your post. I will try to locate my presentation. I did have it saved on my computer, but of course my computer has been giving me problems and a lot of my files were deleted. I know I gave a copy to my psychologist for her to use with some of her other patents I will see if I can get her to make me a copy and I will send it to you as soon as I can.

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birdntroutlady | @birdntroutlady | Jul 23, 2012

Gabapentin and water execise help me a great deal. Prayer also helps.

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