I was diagnoised with fibromyalgia about 14 years ago. I tried everything from anti-depressants, anti-inflammatory meds to natural remedies and herbs. At times I would feel so desperate I hated being inside this body. After a couple of years of being inactive because of the pain and being depressed because I couldn't enjoy life the way I use to.I gained alot of weight. I had come to accept that fact that I was going to have to live with the pain because there was nothing I could do about that but I could try to control my weight. I started taking phentermine and to my suprise after the first week I was amazed at how I was feeling. The pain was going away, I was getting my energy back, I was feeling normal again and not down in the dumps. I was able to go dancing again and do activities that I thought I would never be able to do again. I was back!!! I don't know what it is about the phentermine that works but I am living proof. I have been taking phentermine off and on again for the last 12 years. I don't have any bad side effects from it. I am 50 years old and happy with a full life. I do have some rough times when I am not on the phentermine. But I have learned to take control of my life and deal with the discomfort and when it gets too bad I just go to get back on the phentermine. I don't know if anyone else out there with fibromyalgia has tried phentermine but if you haven't I would advise you to give it a try. Just keep a watch on your blood pressure because it can increase it. I am on blood pressure medication but I have been on it for years. If anyone else has had an experience with phentermine could you please send me a message and let me know Thanks. Debbie
I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no reason I should need any type of pain pills. It has been a hard battle with him as it is the family doctor. The arthritis specialist; whose partner diagnosed the fibryo; I have been seeing (the specialist) since may 2005.....i have had the fibryo symptoms for 2 years before being diagnosed. The specialist doesnt want to be the one responsible for prescribing any meds beyond what she gives me to treat the arthritic sarcoidosis......(My husband calls me a medical nightmare!!!). In July I had xrays taken due to major pain in spinal area ..... i was told I have bone spurs in neck and thoracic spine area.....I also have degenerative discs in my nexk and back....yet he still doesnt want to give me anything more than hrydocodone 7.5...I am taking that as well as cymbalta. Anyone else out there having same doctor problems....don't want to start "doctor shopping" for pain meds, but am REALLY tired of having pain 24/7....it has severly affected my life style....I used to be extremely active...now I dont want to do anything. Any advice would be great.
I just learned in Feb I have FM. Doctor says "Keep moving". I am going to start water therapy when I get rid of the urinary tract infections and then they'll give me some exercises to do. I am also taking 200 mg of gabapentin (neurontin) nightly. Some relief. You may need to get a reduced amt of medication. I am 65 yrs. old and retired thankfully. Think I had FM earlier and just didn't recognize it. Good luck to you and hang in there.
Hi there, Momma73!
I have had (its hasn't had ME) Fibro for almost 20 yrs before they even had a label for it.
The most important (IMO) thing you can do is to STAY POSITIVE... I had to learn to artfully dodge all posts and expressions of doom and gloom and hopelessness...I guarantee you they do not help. Once you realize 'others' go through the same or similar (or not!) symptoms... you THEN need to concentrate on positive aspects and KNOW your condition will NOT 'progress' even though you might have some lousy days. I had to drop two sites because dwelling on other's miseries was making ME worse! I don't mean to sound mean or unsympathetic... and yes, sometimes 'sharing' can be good. But you have GOT to be choosey and watch what your mind is doing.
Good healing, guided meditation tapes and Louise Hay's "You Can Heal Your Life" are excellents examples.
If you so choose, stay away from Rx meds... Opt for 'natural' things such as MSM with glucosamine, and many other things you will find by Googling for 'natural alternative help for fibromyalgia'....
PLEASE remember: ALL good things are possible. Sending you love and good wishes!!
Hi there, Momma73!
I have had (its hasn't had ME) Fibro for almost 20 yrs before they even had a label for it.
The most important (IMO) thing you can do is to STAY POSITIVE... I had to learn to artfully dodge all posts and expressions of doom and gloom and hopelessness...I guarantee you they do not help. Once you realize 'others' go through the same or similar (or not!) symptoms... you THEN need to concentrate on positive aspects and KNOW your condition will NOT 'progress' even though you might have some lousy days. I had to drop two sites because dwelling on other's miseries was making ME worse! I don't mean to sound mean or unsympathetic... and yes, sometimes 'sharing' can be good. But you have GOT to be choosey and watch what your mind is doing.
Good healing, guided meditation tapes and Louise Hay's "You Can Heal Your Life" are excellents examples.
If you so choose, stay away from Rx meds... Opt for 'natural' things such as MSM with glucosamine, and many other things you will find by Googling for 'natural alternative help for fibromyalgia'....
PLEASE remember: ALL good things are possible. Sending you love and good wishes!!
Hi there, Momma73!
I have had (its hasn't had ME) Fibro for almost 20 yrs before they even had a label for it.
The most important (IMO) thing you can do is to STAY POSITIVE... I had to learn to artfully dodge all posts and expressions of doom and gloom and hopelessness...I guarantee you they do not help. Once you realize 'others' go through the same or similar (or not!) symptoms... you THEN need to concentrate on positive aspects and KNOW your condition will NOT 'progress' even though you might have some lousy days. I had to drop two sites because dwelling on other's miseries was making ME worse! I don't mean to sound mean or unsympathetic... and yes, sometimes 'sharing' can be good. But you have GOT to be choosey and watch what your mind is doing.
Good healing, guided meditation tapes and Louise Hay's "You Can Heal Your Life" are excellents examples.
If you so choose, stay away from Rx meds... Opt for 'natural' things such as MSM with glucosamine, and many other things you will find by Googling for 'natural alternative help for fibromyalgia'....
PLEASE remember: ALL good things are possible. Sending you love and good wishes!!
Hi there. MSM stands for methyl-sulfonyl-methane which is a blend of naturally occuring compounds in the body ... If you Google 'what is MSM' you will come up with all kinds of sites. Just use a good brand. I use Natural Factors (the one with Glucossmine. It seems to help some people with arthritis, too. There are a couple of popular 'joint blends' out on the market that are very expensive that have the same iangredients as MSM with Glucosamine and Chondroitin... (can't think of the name of the one right now but it costs at LEAST $25 per bottle) What I use really isn't very expensive, I don't think. When needed I take 2 caps twice a day with Vit C...
Hi there, Momma73!
I have had (its hasn't had ME) Fibro for almost 20 yrs before they even had a label for it.
The most important (IMO) thing you can do is to STAY POSITIVE... I had to learn to artfully dodge all posts and expressions of doom and gloom and hopelessness...I guarantee you they do not help. Once you realize 'others' go through the same or similar (or not!) symptoms... you THEN need to concentrate on positive aspects and KNOW your condition will NOT 'progress' even though you might have some lousy days. I had to drop two sites because dwelling on other's miseries was making ME worse! I don't mean to sound mean or unsympathetic... and yes, sometimes 'sharing' can be good. But you have GOT to be choosey and watch what your mind is doing.
Good healing, guided meditation tapes and Louise Hay's "You Can Heal Your Life" are excellents examples.
If you so choose, stay away from Rx meds... Opt for 'natural' things such as MSM with glucosamine, and many other things you will find by Googling for 'natural alternative help for fibromyalgia'....
PLEASE remember: ALL good things are possible. Sending you love and good wishes!!
I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no reason I should need any type of pain pills. It has been a hard battle with him as it is the family doctor. The arthritis specialist; whose partner diagnosed the fibryo; I have been seeing (the specialist) since may 2005.....i have had the fibryo symptoms for 2 years before being diagnosed. The specialist doesnt want to be the one responsible for prescribing any meds beyond what she gives me to treat the arthritic sarcoidosis......(My husband calls me a medical nightmare!!!). In July I had xrays taken due to major pain in spinal area ..... i was told I have bone spurs in neck and thoracic spine area.....I also have degenerative discs in my nexk and back....yet he still doesnt want to give me anything more than hrydocodone 7.5...I am taking that as well as cymbalta. Anyone else out there having same doctor problems....don't want to start "doctor shopping" for pain meds, but am REALLY tired of having pain 24/7....it has severly affected my life style....I used to be extremely active...now I dont want to do anything. Any advice would be great.
Very smart idea...sometimes docs overlook possibility of bone spurs and they can cause IMMENSE pain... much more than 'regular' fibro. Thanks for this tip.
Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently I am 20 years old and was diagnosed with Fibro when I was 16. For about 6 years prior to being diagnosed I went from doctor to doctor being told that nothing was wrong with me and I just needed to stop making things up. (That obviously did not help with the depression that I was already facing.) When I was a senior in high school I decided to do a presentation for one of my classes on Fibro because I wanted people to understand what people with Fibro go through. I did not want any sympathy from the kids that I went to school with I just wanted them to understand that just because I look normal and act normal does not mean that I am. The psychologist that I go to took my presentation to a meeting she was talking at and wanted to share it with other psychologists. I understand what you guys mean when you say that doctors don't always know what Fibro even is. That part really SUCKS!!!!!!! I have tried Lyrica in the past but it did not work well for me so currently I am not taking anything to manage the Fibro, which once again SUCKS!!!!!! I am praying for you all and hope that relief comes to everyone dealing with this.
Ask your doctor to let you try Gabapentin (Neurontin). I can't believe how much relief I got. I am also currently having some water therapy and that helps also. When that stops I am going to a nearby indoor "heated" pool for exercise. Moist heat really helps. Work some, get some rest and work some more if you can. I pray daily about this and I really think that helps also. My husband has been a big help. Someone comes to do my heavy cleaning now like vacuuming, mopping and dusting. I realize I have my limits to avoid the pain. Good luck to you and peace be with you and your family as they will deal with this with you also.
Hi there, Momma73!
I have had (its hasn't had ME) Fibro for almost 20 yrs before they even had a label for it.
The most important (IMO) thing you can do is to STAY POSITIVE... I had to learn to artfully dodge all posts and expressions of doom and gloom and hopelessness...I guarantee you they do not help. Once you realize 'others' go through the same or similar (or not!) symptoms... you THEN need to concentrate on positive aspects and KNOW your condition will NOT 'progress' even though you might have some lousy days. I had to drop two sites because dwelling on other's miseries was making ME worse! I don't mean to sound mean or unsympathetic... and yes, sometimes 'sharing' can be good. But you have GOT to be choosey and watch what your mind is doing.
Good healing, guided meditation tapes and Louise Hay's "You Can Heal Your Life" are excellents examples.
If you so choose, stay away from Rx meds... Opt for 'natural' things such as MSM with glucosamine, and many other things you will find by Googling for 'natural alternative help for fibromyalgia'....
PLEASE remember: ALL good things are possible. Sending you love and good wishes!!
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I can't get dr to let me try it. Have you seen any literature on this I can show him? I'm desperate
I had to see a pain specialist to get the meds I need for the pain. Yes I agree with all. Fibromyalgia sucks.
I just learned in Feb I have FM. Doctor says "Keep moving". I am going to start water therapy when I get rid of the urinary tract infections and then they'll give me some exercises to do. I am also taking 200 mg of gabapentin (neurontin) nightly. Some relief. You may need to get a reduced amt of medication. I am 65 yrs. old and retired thankfully. Think I had FM earlier and just didn't recognize it. Good luck to you and hang in there.
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2 ReactionsHi there, Momma73!
I have had (its hasn't had ME) Fibro for almost 20 yrs before they even had a label for it.
The most important (IMO) thing you can do is to STAY POSITIVE... I had to learn to artfully dodge all posts and expressions of doom and gloom and hopelessness...I guarantee you they do not help. Once you realize 'others' go through the same or similar (or not!) symptoms... you THEN need to concentrate on positive aspects and KNOW your condition will NOT 'progress' even though you might have some lousy days. I had to drop two sites because dwelling on other's miseries was making ME worse! I don't mean to sound mean or unsympathetic... and yes, sometimes 'sharing' can be good. But you have GOT to be choosey and watch what your mind is doing.
Good healing, guided meditation tapes and Louise Hay's "You Can Heal Your Life" are excellents examples.
If you so choose, stay away from Rx meds... Opt for 'natural' things such as MSM with glucosamine, and many other things you will find by Googling for 'natural alternative help for fibromyalgia'....
PLEASE remember: ALL good things are possible. Sending you love and good wishes!!
Bettyann, what is MSM?
Hi there. MSM stands for methyl-sulfonyl-methane which is a blend of naturally occuring compounds in the body ... If you Google 'what is MSM' you will come up with all kinds of sites. Just use a good brand. I use Natural Factors (the one with Glucossmine. It seems to help some people with arthritis, too. There are a couple of popular 'joint blends' out on the market that are very expensive that have the same iangredients as MSM with Glucosamine and Chondroitin... (can't think of the name of the one right now but it costs at LEAST $25 per bottle) What I use really isn't very expensive, I don't think. When needed I take 2 caps twice a day with Vit C...
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1 ReactionStay strong and remember that we are all routing for each other.
Rox
Very smart idea...sometimes docs overlook possibility of bone spurs and they can cause IMMENSE pain... much more than 'regular' fibro. Thanks for this tip.
Ask your doctor to let you try Gabapentin (Neurontin). I can't believe how much relief I got. I am also currently having some water therapy and that helps also. When that stops I am going to a nearby indoor "heated" pool for exercise. Moist heat really helps. Work some, get some rest and work some more if you can. I pray daily about this and I really think that helps also. My husband has been a big help. Someone comes to do my heavy cleaning now like vacuuming, mopping and dusting. I realize I have my limits to avoid the pain. Good luck to you and peace be with you and your family as they will deal with this with you also.
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1 ReactionThanks for the info. I once was using glucosamine with chondroitin, but stopped and now I don't know why!