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momma73
@momma73

Posts: 5
Joined: Jul 20, 2011

fibro

Posted by @momma73, Jul 20, 2011

i been diagnoised with fibromyalgia. Would like meet others with same.

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Bugs38
@bugs38

Posts: 17
Joined: Jul 16, 2011
Posted by @bugs38, Jul 20, 2011

Hi,
I, too have Fibro. I was diagnosed in ’96 or ’97 with what they called Chronic Fatigue Syndrome & Immune Deficiency Disorder. I’m not sure that Fibromyalgia was even a diagnosis back then. I was diagnosed with Fibro just a few years ago with possible involvement of Lupus and/or Rheumatoid Arthritis along with the Fibro. How long have you been diagnosed?

Posted by @ssparks5402gmailcom, Aug 3, 2011

Hi, I have Fibro since ’92 & Chronic Fatigue. Just started on Savella, but it’s too soon to tell if it’s effective. Just got off of morphine which I was on for years. Glad I am off of that. I am going to try a warm water basic stretching class. ssparks

Liked by abc0921


abc0921
@abc0921

Posts: 4
Joined: Aug 03, 2011
Posted by @abc0921, Aug 3, 2011

I was on savella but had to go to a different antidepressant. It seemed to work for me some but not a big difference. I hope you have better luck Are you still able to work?


janechaz11
@janechaz11

Posts: 4
Joined: Aug 03, 2011
Posted by @janechaz11, Aug 4, 2011

Low-carb diet seems to work well for the pain of fibro. It does in my case.


Nerak
@nerak

Posts: 7
Joined: Aug 16, 2012
Posted by @nerak, Aug 19, 2012

Does anyone have advice on how to find a fibro support group? My mother in law is in wabasha mn and I’m not really sure how to help her find one in her area. Thanks!


momma73
@momma73

Posts: 5
Joined: Jul 20, 2011
Posted by @momma73, Jul 22, 2011

Hi Bugs38
I was diagnosed with Fibro about 9 months ago. I have 2 cousins with Lupas and a couple family members with the fibro. I know from my experience that nothing works as of yet. I am being sent to a orthopedic cause doc is conceren of what else is wrong.I have horrible problems with my ankles and it does affect me in every way…DRIVING is a disaster most the time.So i limit to how far i do drive.

Liked by abc0921


Bugs38
@bugs38

Posts: 17
Joined: Jul 16, 2011
Posted by @bugs38, Aug 8, 2011

Oh I’m sorry. I have recently (6 months or so) found relief with a cocktail of medications mixed with massage, exercise and epidural steroid shots to my back. I don’t think one thing will ever be enough to deal with it but I have found SOME relief. I hope you do, soon. I take muscle relaxer, sleep aide, meloxicam, cymbalta, ….the list goes on and on. I hate taking them but my choices are limited. Am I the only one on the double digit medications?


Grandmachipmunk
@grandmachipmunk

Posts: 3
Joined: Aug 18, 2011
Posted by @grandmachipmunk, Aug 18, 2011

Hi Momma 73~ I was reading your Entry and So I joined and wanted to share with you,, I to was told for years I was too fat etc. My Pain was Really bad, Finally a Dr. told me I Had Fibromilgia , Never heard of it~ well I read about it and cryed for days , yes that is what it was, The releif to know what was wrong, So I found an answer for me, I Take 5000MG of MSM at a time Some times four times a day when it is kicking up, <It stops the spasums for me in about 10 minutes,, I also Drink Yarrow tea. a wild plant and it helps too, Another thing I did Acupunture and that helped a bit.. they say extersize is good ~Well The more I do the more I hurt, I work full time here on our little farm so I don’t do extra exersize.. You can Buy MSM At any Drug store. Not expensive. I hope this will help someone. I have and do suffer untold Hell with this and Yo find relief is a miricle.


janasr
@janasr

Posts: 17
Joined: Jan 08, 2012
Posted by @janasr, Jan 15, 2012

They have me on 5 or 6 medications. Only thing that seems to help for the pain Is narcotic pain relievers. I hate taking them but have no choice. Can’t take the pain


birdntroutlady
@birdntroutlady

Posts: 24
Joined: Mar 27, 2012
Posted by @birdntroutlady, Apr 27, 2012

Water therapy is good also or swimming/exercise in a heated pool.


Roxie43
@roxie43

Posts: 1744
Joined: Nov 20, 2011
Posted by @roxie43, Apr 27, 2012

BettyAnn every time I see your pic I just think that you are the cutest thing. I also like how positive you are “All good things are possible”. I agree wholeheartedly.
Rox


abc0921
@abc0921

Posts: 4
Joined: Aug 03, 2011
Posted by @abc0921, Aug 3, 2011

i have been diagnosed with fibro for 5 years. it started 2 years earlier with migraines. my m.d. sent me to neurologist for testing. i am unable to work and retired last year. is anyone else still trying to work or has this monster taken over your life as well.

Posted by @charlotte5660gmailcom, Nov 8, 2011

I was diagnosed about 13 years ago and have tried everything. I am still working but it is taking everything I have to do so. The hardest part of having Fibro is trying to make others understand your pain. I don’t sleep well … Up and down several times a night and always in pain. I also have multiple tarlov cysts running the entire length of my spine so yes, pain is a constant and I hate to think about how I will feel in another 10 years!!!!


janasr
@janasr

Posts: 17
Joined: Jan 08, 2012
Posted by @janasr, Jan 15, 2012

My fibromyalgia was diagnosed 6 mos ago after a surgery. Before that I had migraines,back pain, and achy and tired all the time. I am still working and love my job. It is not physically demanding. Just a desk job. I have been worried lately that I won’t be able to work much longer. Anyone had success w disability payments? We can not get by without my paycheck.


momma73
@momma73

Posts: 5
Joined: Jul 20, 2011
Posted by @momma73, Aug 4, 2011

they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im on visrtil…all it does is knock me out doc not sure wat to do. and no im not able to work

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