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fibro

Posted by momma73 @momma73, Jul 20, 2011

i been diagnoised with fibromyalgia. Would like meet others with same.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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tired of pain | @tiredofpain | Oct 9, 2011
In reply to @deewebb50 "Hi; the most irriating part wass the first 5 years when my doctor kept telling me..." + (show)
Profile picture for deewebb50 @deewebb50

Hi; the most irriating part wass the first 5 years when my doctor kept telling me it was all in my head. He almost had me believing him butt I couldn't even walk how could that be in my head. Then finally 9 years ago I was diagnosed. I have the chronic fatigue also. I'm depressed all of it. But I don't take any meds. I'm afraid to touch lyrica. I have plenty of morphine for my back I may take 1 once in a while but they don't help. I get shots. In my hips. And it helps sometimes for a little while. But i'm so sore it hurts to get out of bed terribly. I notice lately even my wrists hurt. It hurts so bad sometimes I can't help but cry. And it's hard not to be depressed. I understand everyone of you. But ppl without it. Have no idea. When I first had it most drs. Didn't even bekieve it was real. Lol. Well I was just diagnosed oday with acute kidney failure also. Very low working kidneys not looking good. So. Adds to the depression. But as it is written. God doesn't give us mor that we can handle. Oh I pray for all of us. Amen. Hugs everyone

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Glad to know that I am not the only one that cries from this horrible pain. I feel like my depression got worse after I was diagnosed. When you said God doesn't give us more than we can handle, I think I have given my fair share and this diagnoses just puts the cherry on top. I had to give him my twin boys six months apart, raise my oldest son by myself even though I was married to his father. I got no support from my ex-husband when I buried my children. When I buried the second twin Shelby I really got depressed and his response was they are dead get over it. I have other issues in my life to where I thought I was paying my dues but when I was finally diagnosed it was the tip of the iceberg. I became so angry and still am because I think I have given plenty and then getting diagnosed with a non-curable disorder doesn't make me to happy.

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Debbieclark1 | @debbieclark1 | Oct 12, 2011

I was diagnoised with fibromyalgia about 14 years ago. I tried everything from anti-depressants, anti-inflammatory meds to natural remedies and herbs. At times I would feel so desperate I hated being inside this body. After a couple of years of being inactive because of the pain and being depressed because I couldn't enjoy life the way I use to.I gained alot of weight. I had come to accept that fact that I was going to have to live with the pain because there was nothing I could do about that but I could try to control my weight. I started taking phentermine and to my suprise after the first week I was amazed at how I was feeling. The pain was going away, I was getting my energy back, I was feeling normal again and not down in the dumps. I was able to go dancing again and do activities that I thought I would never be able to do again. I was back!!! I don't know what it is about the phentermine that works but I am living proof. I have been taking phentermine off and on again for the last 12 years. I don't have any bad side effects from it. I am 50 years old and happy with a full life. I do have some rough times when I am not on the phentermine. But I have learned to take control of my life and deal with the discomfort and when it gets too bad I just go to get back on the phentermine. I don't know if anyone else out there with fibromyalgia has tried phentermine but if you haven't I would advise you to give it a try. Just keep a watch on your blood pressure because it can increase it. I am on blood pressure medication but I have been on it for years. If anyone else has had an experience with phentermine could you please send me a message and let me know Thanks. Debbie

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Dusty14 | @dusty14 | Oct 13, 2011
In reply to @momma73 "they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im..." + (show)
Profile picture for momma73 @momma73

they have me on requip,lyrica and for the depression im on cymbalta,buspar,and as a breakthrough im on visrtil...all it does is knock me out doc not sure wat to do. and no im not able to work

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I was diagnosed in the early 90's but they didn't call it fibromyalgia then, I also take gabapentink and hate it ........I am sooopp groggy in the morning that I can't do any morning app'ts I have to wait till it wears off a bit so I can go out How does it affect you?

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Looselinks | @looselinks | Oct 24, 2011
In reply to @sacott0079 "I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no..." + (show)
Profile picture for sacott0079 @sacott0079

I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no reason I should need any type of pain pills. It has been a hard battle with him as it is the family doctor. The arthritis specialist; whose partner diagnosed the fibryo; I have been seeing (the specialist) since may 2005.....i have had the fibryo symptoms for 2 years before being diagnosed. The specialist doesnt want to be the one responsible for prescribing any meds beyond what she gives me to treat the arthritic sarcoidosis......(My husband calls me a medical nightmare!!!). In July I had xrays taken due to major pain in spinal area ..... i was told I have bone spurs in neck and thoracic spine area.....I also have degenerative discs in my nexk and back....yet he still doesnt want to give me anything more than hrydocodone 7.5...I am taking that as well as cymbalta. Anyone else out there having same doctor problems....don't want to start "doctor shopping" for pain meds, but am REALLY tired of having pain 24/7....it has severly affected my life style....I used to be extremely active...now I dont want to do anything. Any advice would be great.

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Before you shop for pain med doc read about Mayo's Pain Rehabilitation Center. Besides fibromyalgia I also have Ehlers- danlos Syndrome which also has chronic pain. I've had 18 surgeries in joints. Here's my unsolicited advice. Pain meds are not a long term solution for pain. Period! Opioids and benzodiazepines are very temporary. As time goes on your body will become more dependent and the effectiveness will wear off requiring more drug to achieve results. I started on hydrocodone and said no more when i was up to liquid oxycontin and 2mg ativan. Trust what I say is from 2 decades of pill pushers (docs who don't know what to do to help you except to give you drugs). I never abused drugs but used them. Many other alternatives. No quick fixes.

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charlotte5660@gmail.com | @charlotte5660gmailcom | Nov 8, 2011
In reply to @abc0921 "i have been diagnosed with fibro for 5 years. it started 2 years earlier with migraines...." + (show)
Profile picture for abc0921 @abc0921

i have been diagnosed with fibro for 5 years. it started 2 years earlier with migraines. my m.d. sent me to neurologist for testing. i am unable to work and retired last year. is anyone else still trying to work or has this monster taken over your life as well.

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I was diagnosed about 13 years ago and have tried everything. I am still working but it is taking everything I have to do so. The hardest part of having Fibro is trying to make others understand your pain. I don't sleep well ... Up and down several times a night and always in pain. I also have multiple tarlov cysts running the entire length of my spine so yes, pain is a constant and I hate to think about how I will feel in another 10 years!!!!

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Linda L. | @lindal | Nov 14, 2011
In reply to @sacott0079 "I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no..." + (show)
Profile picture for sacott0079 @sacott0079

I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no reason I should need any type of pain pills. It has been a hard battle with him as it is the family doctor. The arthritis specialist; whose partner diagnosed the fibryo; I have been seeing (the specialist) since may 2005.....i have had the fibryo symptoms for 2 years before being diagnosed. The specialist doesnt want to be the one responsible for prescribing any meds beyond what she gives me to treat the arthritic sarcoidosis......(My husband calls me a medical nightmare!!!). In July I had xrays taken due to major pain in spinal area ..... i was told I have bone spurs in neck and thoracic spine area.....I also have degenerative discs in my nexk and back....yet he still doesnt want to give me anything more than hrydocodone 7.5...I am taking that as well as cymbalta. Anyone else out there having same doctor problems....don't want to start "doctor shopping" for pain meds, but am REALLY tired of having pain 24/7....it has severly affected my life style....I used to be extremely active...now I dont want to do anything. Any advice would be great.

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Hello I was diagnosed with fibro when no one had ever heard of it. I just had a good dr. 16 years later and a lot of other health problems, but we have found combination of Tramadol, Valium, cymbalta, lortab and more rest seems to keep under control. Trust me I rejected drugs for many years but had no life, take what helps!

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Fibro-sufferer | @fibrosufferer | Nov 22, 2011
In reply to @sacott0079 "I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no..." + (show)
Profile picture for sacott0079 @sacott0079

I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no reason I should need any type of pain pills. It has been a hard battle with him as it is the family doctor. The arthritis specialist; whose partner diagnosed the fibryo; I have been seeing (the specialist) since may 2005.....i have had the fibryo symptoms for 2 years before being diagnosed. The specialist doesnt want to be the one responsible for prescribing any meds beyond what she gives me to treat the arthritic sarcoidosis......(My husband calls me a medical nightmare!!!). In July I had xrays taken due to major pain in spinal area ..... i was told I have bone spurs in neck and thoracic spine area.....I also have degenerative discs in my nexk and back....yet he still doesnt want to give me anything more than hrydocodone 7.5...I am taking that as well as cymbalta. Anyone else out there having same doctor problems....don't want to start "doctor shopping" for pain meds, but am REALLY tired of having pain 24/7....it has severly affected my life style....I used to be extremely active...now I dont want to do anything. Any advice would be great.

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I was diagnosed in June 2011...have seen 4 specialists...won't give pain meds...I'm only 29..I have 3 kids and husband works out of town all the time!! I know what you mean about the simplest task feeling like a marathon!!! FIBRO SUCKS!!!

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Fibro-sufferer | @fibrosufferer | Nov 22, 2011
In reply to @catherineb "Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They..." + (show)
Profile picture for CatherineB @catherineb

Hi I have applied for Social Security benefits because of Fibromalgia, COPD, CHD and depression. They have arranged for me to see a Mayafacial Pain Syndrome Specialist this coming Tuesday. Any suggestions regarding how to explain the chronic aches and sometimes screaming pain would be appreciated. Every Doctor I've seen has told me to "lose weight, exercise and stop complaining". Is that realy all I can do? I do not have insurance, but I am in a pain study program through our PCP's office Would really like someone to talk to who knows what I'm talking about.

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Lyrica is not for everyone!! It did not help my Fibro and it made me very hostile!! 🙁 Cymbalta didn't help either!!
All that helps me is occasionally taking a Vicodin...and bc of the idiots that abuse this drug...I'm not able to get a regular perscriptions for it 🙁 I HATE CHRONIC PAIN!!!

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Fibro-sufferer | @fibrosufferer | Nov 22, 2011
In reply to @mandy "Try lyrica! It helps, I take it for my fibromyalgia." + (show)
Profile picture for Mandy @mandy

Try lyrica! It helps, I take it for my fibromyalgia.

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I took Lyrica...it did nothing but made me hostile!
🙁
Didn't help with pain!!
Have you tried using a hot tub? I find that it helps for a short time.

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Fibro-sufferer | @fibrosufferer | Nov 22, 2011
In reply to @77goingon35 "Have you ever been diagnosed with Fibromyalgia? Perhaps you should see a Reumatologist." + (show)
Profile picture for 77goingon35 @77goingon35

Have you ever been diagnosed with Fibromyalgia? Perhaps you should see a Reumatologist.

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It's not in your head!!!
I feel some of the same symptoms!! 🙁
Have you tried using a hot tub??

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