I also have pain but not tremendous. No one seems to know much about causes...just the mysterious "auto-immune" cause. How does your son get relief?

Yes please👏

Interested in knowing the symptoms of fructose malabsorption?? I am tracking causes of my gut problems. I have very frequent diarrhea, from loose stools to watery explosions many times in a day or throughout the night. I take a lot of Immodium which is helpful and use Metamucil daily. I am not a sweets fan and have no diet sodas, very few colas, cookies, candies, cakes, syrups, etc. and nothing with artificial sweeteners. Cannot tolerate iceberg lettuce, but romaine and most other raw greens are ok. Cooked greens are no problem. I never know what I have ingested that sets it off and nothing is identified as always a culprit. At times, walking into a store and smelling chemicals such as "sizing" can send me rushing to the restroom. I have been tested for most of the usual conditions, with negative results. I have had an Interstem device implanted to control stimulation of anal muscles. No luck. Probiotics have not done much for me although I subscribe to the idea that they must be live culture. I fear that none or very few of my meds or supplements are being metabolized for the needed benefit. I very often see them in whole form in the toilet after a bm. My nails and skin & hair are in awful condition, nails peeling, splitting, crumbling. I am leaning toward the possibility of "leaky gut". If you have experience or symptoms such as these, I would appreciate your comments and possible suggestions.

Yes!

I believe ‘fructose malabsorption’ is something causing my IBS (irritable bowel syndrome) although I’ve not heard it termed that way. I tested positive for SIBO in the breath test and went through the FODMAP elimination diet about 6 months ago. I found the things that exacerbate my symptoms (diarrhea, pain, intermittent constipation) are gluten, dairy (lactose), onions, garlic, spicy foods. I’m slowly trying out things at home, like a red sauce with garlic at the end of the ingredient list, so that I can more comfortably eat in restaurants. So far it hasn’t caused the explosive diarrhea I’ve experienced in the past but I took L-glutamine this morning to hopefully soothe a riled up gut that can get out of control quickly. I’m interested in the paths people with similar situations are taking and what, if any, success stories emerge.

Try Atrantil...

Have you been tested for EPI?
(Exocrine Pancreatic Insufficiency)?
Worth requesting since it is often misdiagnosed as IBS.
The medication for it is an entirely different protocol.
I was misdiagnosed for 30+ years, now my life has completely changed for the better with the correct medication.

I was hoping there was a medication specifically for fructose malabsorption but that doesn't seem to be the case.
Any diet suggestions?

Thank you for your response. Could you share the names of the digestive enzymes you take?

I am very sensitive to FODMAPs and much more. For carb issues, like fructose, I take Intoleran's Fructase enzyme supplement (I actually take all of their supps, I am so sensitive).

Check out intoleran.com