Uterine clear-cell carcinoma, chemo treatment unknowns

@starko, how often did you have the treatments? In other words, how were they spaced out? Are you starting to recover your balance and energy again or is it too soon to ask?

Colleen,
My radiation treatments were spaced two per week. I had another option of receiving all the treatments during one session, but because it involved my cerebellum, we decided it would be too risky. It has been a week since my last treatment and the side effects are diminished, not so foggy, better balance, more alert!
I am guessing radiation in other parts of the body would be less.severe.

Sounds like a challenge but you are accepting well! thank you for sharing!! I saw some older posts here. I will be having 25 pelvic radiation treatments and 2 brachy starting in the next week or so. Seems like the right plan for clear cell that was in one lymph node. I am worried most about fatigue. I am really worn out right now after my 6th chemo 2 1/2 weeks ago. most of my chemo was just not that bad but maybe catching up with me now! Thank you Colleen for soliciting posts. everyone's story is helpful. Eileen

How nice to hear from Lviv. My father is from there and my cousin is head of cardiology at a local hospital in Kviv, Dr, Yuri Starko.

Hi @ejohn, how are you? May I ask you what exact drugs for chemo did you get? How was it? I'm asking for my mum, she has a similar diagnosis and has radical hysterctomy as well. Also how long after surgery did you start the first chemo round? Did you have any issues with deep vein thrombosis? Sorry for the very specific questions, feel free to ignore it If I asked too much. Thanks

@erikas Thanks for adding the relevant information for me! Unfortunately, she can't get chemo treatment at the same place so we are looking for facility options. And it's a bit hard because different places offer different options for treatment.

Hello @vika, I am sorry I didn't reply sooner. I had 6 rounds of carboplatin and taxol. It was just not too bad for me. I had bone pain that was the worst with the first treatment. I had fatigue that progressively increased with treatment but wasn't too bad. there were days I couldn't stand for more than 10 minutes, but it was all okay, I just got prepared it would get worse. i had very little nausea, mostly after the last treatment. That is usually a big side effect. I still have numbness and tingling in my fingers and toes but am hopeful for continued improvement. I didn't start chemo for about 5 weeks. I have to look. i was in a hurry but you also want to make sure the wound is healed, and that is mainly the internal vaginal cuff. I did not have deep vein thrombosis. Please feel free to ask, I would be glad to help in anyway I can. Eileen

I had my practice radiation today and start tomorrow. Planned for 25 tx plus 2 brachy to the vaginal cuff. Ready for the next step and closer to being healed.

Hello @vika, I am sorry I missed your posts and did not reply sooner. I am wondering if your mother did start chemo already? I had 4-5 weeks in between but maybe with hers they are pushing on since it sounds like it was outside the lymph nodes. My previous reply to your post to me explained why they had me wait a few weeks. I had one positive lymph node but everything else was clear. I hope it is going well and decisions are clear. Eileen

Thanks for sharing this. I just had my fourth round o carboplatin and taxol. More tired and sores in mouth started. I was wondering what to expect