Uterine clear-cell carcinoma, chemo treatment unknowns

Posted by vika @vika, Mar 20, 2021

Hi there! My mum has been diagnosed with Carcinoma of uterine body pT3bN1aM1 (Metastases of clear cell carcinoma in one of the ovaries, uterine tube, the greater omentum, lymph nodes). On 1st of March she had surgery: radical hysterectomy, lymph node dissection along the iliac blood vessels, omentectomy (Kyiv, Ukraine). She was discharged from the hospital and recommended chemotherapy. In different clinics in Kyiv we were offered 4 or 6 rounds of Carboplatin + Paclitaxel. Is it a right (internationally proved) schema?

One complication for choosing treatment is deep vein thrombosis (DVT) in her legs. In one clinic we were told to wait 2 weeks taking Rivaroxaban 20 mg until starting the chemo. In another clinic, we were told to start chemo next week because it’s dangerous to wait in the long term. I’m very concerned about different suggestions, considering and thinking about the long term and short term risks...
I'll really appreciate it if you could share any useful info/share your experience... Thanks!!

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

bruges | @bruges | Mar 20, 2021

Hello, I am new here.
Beginning of the year I received my uterine clear cell carcinoma diagnosis. It is a very rare cancer and I was wondering if there were other women here who have the same diagnosis.

Colleen Young, Connect Director | @colleenyoung | Mar 20, 2021

In reply to @bruges "Hello, I am new here. Beginning of the year I received my uterine clear cell carcinoma..." + (show)

Welcome to Connect, @bruges. Uterine clear-cell carcinoma is very rare. @kate123 has also posted on Connect about this rare type of cancer. And there are several members are discussing ovarian clear-cell carcinoma here:

- Rare cancer: ovarian clear cell carcinoma https://connect.mayoclinic.org/discussion/rare-cancer/
- Endometrial Carcinoma: Rare, aggressive, hard to treat but don't worry https://connect.mayoclinic.org/discussion/rare-aggressive-hard-to-treat-but-donthe-worry/

Bruges, while we wait for others to join the discussion, let's get to know more about you. When were you diagnosed? What treatments are you or have you had? How are you doing?

starko | @starko | Mar 20, 2021

In reply to @cichocki06 "I am having 3 radiation treatments the end of the month. Any recommendations?" + (show)

Hi
Just finished 4 brain radiation treatments. Brain cancer was the result of ovarian cancer spreading to the brain - unusual occurrence! Be prepared to feel fatigued and out of sorts - tipsy!
Don't drive, be careful walking - you might be off balance. Also, I lost some hair. The good news is that radiation did not hurt! Soon it will be over!

Fluffy06 | @cichocki06 | Mar 20, 2021

In reply to @colleenyoung "@ejohn and @cichocki06, I invite you to join the Zoom support group tonight facilitated by Mayo..." + (show)

Colleen Thank YOU -
Group was very informative.
Will you send me a Zoom link for April meeting I think I heard it meets
every month ??

Colleen Young, Connect Director | @colleenyoung | Mar 20, 2021

In reply to @bruges "Hello, I am new here. Beginning of the year I received my uterine clear cell carcinoma..." + (show)

@ejohn and @cichocki06, I invite you to join the Zoom support group tonight facilitated by Mayo Clinic oncology social worker, @michellewalsh. I'll be there too and we can hopefully connect you with others who have had radiation.

Here are the meeting details.
Women of S-Teal Jax: Candid Conversations about Gynecological Cancers

Zoom Support Group Meeting
Monday, March 8, 2021
5:30 to 6:30 p.m. EST (find your timezone https://www.timeanddate.com/worldclock/converter.html)

Topic:
“Resources and Support” with Michelle Walsh, LCSW and Colleen Young with Mayo Connect

Register in advance:
https://mchealth.zoom.us/meeting/register/v5Erf-qprjooihuuDnHMnXBRD6IxvLlgJA
After registering, you will receive a confirmation email containing information about joining the meeting.

ejohn | @ejohn | Mar 20, 2021

In reply to @colleenyoung "Hi @ejohn and @cichocki06, I'm wondering if you decided to have radiation and have you started?" + (show)

I have my consult with the radiologist tomorrow. Would love to hear others experiences.

Fluffy06 | @cichocki06 | Mar 20, 2021

In reply to @bruges "Hello, I am new here. Beginning of the year I received my uterine clear cell carcinoma..." + (show)

I am having 3 radiation treatments the end of the month. Any recommendations?

Colleen Young, Connect Director | @colleenyoung | Mar 20, 2021

In reply to @bruges "Hello, I am new here. Beginning of the year I received my uterine clear cell carcinoma..." + (show)

Hi @ejohn and @cichocki06, I'm wondering if you decided to have radiation and have you started?

Fluffy06 | @cichocki06 | Mar 20, 2021

In reply to @bruges "Hello, I am new here. Beginning of the year I received my uterine clear cell carcinoma..." + (show)

I have just had a total hysterctomy and dr is now recommending radiation now What are pros and cons How does that affect the pelvis bone, bladder and colon?

ejohn | @ejohn | Mar 20, 2021

In reply to @bruges "Hello, I am new here. Beginning of the year I received my uterine clear cell carcinoma..." + (show)

Hello, I am looking to hear more about Uterine Clear Cell cancer. I had a radical hysterctomy last fall with clear cell in 1 lymph node, making it stage III for me. I am about to have my last chemo and then consult with the radiologist. Interested to learn more about the radiation treatments others had, where, the side effects and results. How long to feel you were recovered from chemo and radiation. Thank you

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