Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I have small fiber in my feet which has been mostly dormant but have developed new aggressive flare in same left arm I got the shot in by about day 3. I received Pfizer. It's been 10 or 11 days now and it's creeping into my right hand. Came here to see if it was a coincidence or something others are experiencing.

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Post-Vaccination Inflammatory Neurological Symptom Update: Moderna

Day (9)

Muscle spasms have decreased, none for the past 2 days.
Pinpricks have reduced significantly.
Numbness in the left foot still present, but an improvement from the initial complaint.
Pinpricks in Rt foot still present and have not gotten worse.
Cranial nerve spasms are now gone.
Mild weakness in bilateral hamstrings still noted, but not getting any worse. it appears that it has plateaued.
Neurological facial itching has resolved, discontinued the gabapentin.

New onset of fatigue noted for the past day, could possibly be due to not sleeping well.

Balance and coordination still remain undisturbed and intact.
Walking has never been an issue.

Plan:

Will proceed with scheduled appointments to the neurologist.
Continue to monitor and think positively.
Will hope this will spontaneously resolve on its own.

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Profile picture for hebcrowell @hebcrowell

I have small fiber in my feet which has been mostly dormant but have developed new aggressive flare in same left arm I got the shot in by about day 3. I received Pfizer. It's been 10 or 11 days now and it's creeping into my right hand. Came here to see if it was a coincidence or something others are experiencing.

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hello,

I had some sort of Post-Vaccination inflammatory process with neuropathy. I have posted my symptoms every other day. Symptoms came on the same night of my first vaccine, got worse then plateaued. I just posted my day (9) symptoms. I have noticed an improvement, but some issues are stubborn.

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Thank you for replying. I am glad at least to know I'm not imagining a connection, though frankly it's the last thing I expected as a side effect.

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Hello @hebcrowell and welcome to Mayo Clinic Connect. I am glad to see you reached out to members in this discussion regarding your symptoms. It is always helpful to realize you are not alone or imagining things.

Have you considered journaling your experience until either things improve or in the event that you need to make an appointment with your neurologist?

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Profile picture for hebcrowell @hebcrowell

I have small fiber in my feet which has been mostly dormant but have developed new aggressive flare in same left arm I got the shot in by about day 3. I received Pfizer. It's been 10 or 11 days now and it's creeping into my right hand. Came here to see if it was a coincidence or something others are experiencing.

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Hello. I’m sorry to hear this. Yes, several in the group have had the same reaction. My neuropathy was also dormant but emerged with a vengeance all over my body hours after the first dose of moderna. That was Jan 5 and it hasn’t resolved but it’s not as constant as it was. I didn’t get the 2nd dose. I encourage you to report your reaction in the vaers system. Physicians are reluctant to consider a causal relationship because it’s not a reported or expected side effect. Best of luck.

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Profile picture for mawagner13 @mawagner13

Hello. I’m sorry to hear this. Yes, several in the group have had the same reaction. My neuropathy was also dormant but emerged with a vengeance all over my body hours after the first dose of moderna. That was Jan 5 and it hasn’t resolved but it’s not as constant as it was. I didn’t get the 2nd dose. I encourage you to report your reaction in the vaers system. Physicians are reluctant to consider a causal relationship because it’s not a reported or expected side effect. Best of luck.

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Thank you! Guess it's time to find a new neurologist.

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Profile picture for Amanda Roe @amandajro

Hello @hebcrowell and welcome to Mayo Clinic Connect. I am glad to see you reached out to members in this discussion regarding your symptoms. It is always helpful to realize you are not alone or imagining things.

Have you considered journaling your experience until either things improve or in the event that you need to make an appointment with your neurologist?

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Good suggestion. My neuro left town so I will do that while I get in line for a new doctor. Thank you!

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Profile picture for mawagner13 @mawagner13

Hello. I’m sorry to hear this. Yes, several in the group have had the same reaction. My neuropathy was also dormant but emerged with a vengeance all over my body hours after the first dose of moderna. That was Jan 5 and it hasn’t resolved but it’s not as constant as it was. I didn’t get the 2nd dose. I encourage you to report your reaction in the vaers system. Physicians are reluctant to consider a causal relationship because it’s not a reported or expected side effect. Best of luck.

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How do you keep your Neurpathy under control? Nothing is helping me & I was just wondering what you were doing to feel better? Thanks
Genie

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Profile picture for ess77 - Elizabeth @ess77

Hello, @sunnyflower, @avmcbellar, @athenalee, @artscaping , @everyone else....I'm so sorry you've had a tough response to the 2nd shot, Sunny. I did too. I wrote about it in Feb after I got the 2nd Moderna shot and had a very rough 18 hours. It began after about 4-6 hours, with extreme fatigue, all over pain, bones/muscles/head......everything hurt pretty badly. I was purely miserable for 18 hours, with a fever for several hours. I got so ill I went back to bed, which I never do unless I'm really not feeling well. I slept for several hours, sweat profusely and woke up fever free and almost pain free. It took me a day or so to regain my strength and be able to function somewhat normally.

I hope you have far less reaction and it gets better NOW! No fun, but I reminded myself this was for my health, my body was making antibodies to help me stay healthy and beat any possible Covid19 infection. That thinking helped me get through those hours. My good friend just got her 1st shot, Phizar, has some arm discomfort, feels drained and fatigued, resting, no fever. I had no 1st shot reaction.

Sunny....I will love you forever, my friend! I just ordered and have ready to put together my very own posh, hot pink, rollater w/black and white zebra pattern seat bag and back bag!!!! I've been looking for this for years!!!! I refused to use a walker forever, but when forced to get one, it had to be red. all they had was burgundy, and now everyone has one.....and it's boring~ I'm up town, hot mama now, my friend. Love it. AND, got glasses w/prisms for double vision. Kate Spade, big black w/red roses, sunglasses.....Tiffany black weird shape with silver glitter on bottom and gold arms. Am I investing in a fun rest of my life? I had to let you know since we seem to be sisters in bling!

Blessings, feel well and be safe and look stunning as we toddle around! elizabeth

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Hello Elizabeth, so sorry it took me so long to get back to you! 😔 I've now had over 600 emails from the Neuropathy group. I 'm also a member of other groups too.

I' m so happy to hear you bought and love your new walker!! I hope it makes your life easier and more safe as you will be lifting it. Pretty amazing only 11#! Yep, now you will be glam and hip as you roll in style!

The akate Spade sunglasses sound very glam

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