Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

I had my second jab of Pfizer yesterday. I have pins and needles at night and last night it was, one a scale of 1-10, 7-8 while it is normally at 5.

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Profile picture for pkagarwal @pkagarwal

I had my second jab of Pfizer yesterday. I have pins and needles at night and last night it was, one a scale of 1-10, 7-8 while it is normally at 5.

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I posted on this thread a couple weeks ago about increased neuropathy symptoms after receiving both Covid vaccine shots. My symptoms have improved somewhat, but haven’t returned to the level pre-vaccine. I had my first visit to a neurologist today. When I asked him about it, he said he wasn’t surprised at all since so many neuropathies are related to autoimmune diseases and that the vaccine is designed to boost our immune response to fight Covid. Makes perfect since now that I think about it. Too bad no one warned us...

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Profile picture for Jim, Volunteer Mentor @jimhd

Hey, everyone. I've been lying low for a few months, and just came across this discussion. My memory is lousy, but I remember someone was getting a stimulator implant, around the same time as getting the vaccine.

I had an Abbott spinal cord stimulator implant in June of 2017. It was wonderful for the first year. The burning pain in my feet was reduced by 75%. The only medication that had been helping was morphine sulfate contin. I reduced the dosage (big mistake), because the stimulator was helping so much. Year two, I had to have it adjusted by the rep every 3 months. Year 3, it just wasn't doing much.

LastSeptember I had surgery for severe spinal stenosis,, and after recovery, I had the rep recalibrate the stimulator, and it started helping a little, though far from the original 75%. I've been fighting to get the morphine dosage raised back to the pre SCS level, but have only been given a token increase. I'm in the process of finding a way to get a pain pump implant, but the doctor who does it, at OHSU , in Portland, said I need to do a trial of a dorsal root ganglion stimulator first. Yay! Another surgery. But constant pain, at a 5 on a good day, at 8 or 9 on days like today, is a big contributor to the depression and anxiety I've been living with for 20 years.

It's time to let my dog out for her nightly business, and rub lidocaine cream on my feet in bed. I do want to say that I hadn't thought about any possible negative connection between my sfpn and autonomic polyneuropathy and the covid vaccine, which my wife and I are scheduled to have at the end of this month. I'm sure I'll be talking with my therapist about the effect this will have on my mental health at my next session on Wednesday. When you struggle with anxiety disorder, along with depression and PTSD, everything changes. I was never one to worry or to be depressed the first 50 years of my life, so sometimes I'm a stranger to myself.

I hope each of you will stay in touch, so we can be a support team for one another.

Jim

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Hi Jim, I'm considering a DRG, by Abbott. I'm sorry to hear that the DRG is losing or had lost it's effectiveness. Are you considering to have it removed? I to have burning in my toes from 2 prior surgeries. The burning and occasionally shooting pain in my toes is about a 3 before 12 noon but later in the day it goes to a 6 or 7.

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Profile picture for mawagner13 @mawagner13

Hello. I’m sorry to hear this. Yes, several in the group have had the same reaction. My neuropathy was also dormant but emerged with a vengeance all over my body hours after the first dose of moderna. That was Jan 5 and it hasn’t resolved but it’s not as constant as it was. I didn’t get the 2nd dose. I encourage you to report your reaction in the vaers system. Physicians are reluctant to consider a causal relationship because it’s not a reported or expected side effect. Best of luck.

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Hi .I had facial neuropathy five years ago as a result of chemotherapy. It took months and months to resolve itself to 99%, I received the first shot of the pfizer vaccine feb 23. the neuropathy came back slowly on my face, it was really evident three weeks from the vaccine, I also have burning in my thighs and some needles everywhere else. i have postponed the second shot twice,i have an appointment for friday but I'm still not sure if to keep it. There won't be much time left after this appointment if I don't keep it.Very worried that the second shot will make it much worse.
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Hello @chezpl69 and welcome to Mayo Clinic Connect. I am sorry to hear about your return of symptoms following your first shot. I am sure this decision to follow up with the second shot is challenging for all the obvious reasons.

Have you reported your symptoms following your vaccine? Have you connected with your Neurologist for recommendations?

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Profile picture for athenalee @athenalee

I posted on this thread a couple weeks ago about increased neuropathy symptoms after receiving both Covid vaccine shots. My symptoms have improved somewhat, but haven’t returned to the level pre-vaccine. I had my first visit to a neurologist today. When I asked him about it, he said he wasn’t surprised at all since so many neuropathies are related to autoimmune diseases and that the vaccine is designed to boost our immune response to fight Covid. Makes perfect since now that I think about it. Too bad no one warned us...

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Hi. Did your neuropathy increase with the first or the second shot? Mine came back after five years with the first shot and didn't go away yet. I am do for the second shot friday( I have already postponed twice) Not sure what I'll do.

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Hi chezpl69, I'm sorry you are having the same experience as we are. Yes, neuropathy came on after the first Moderna shot. The same night actually. One of my first symptoms was left foot numbness then both feet and pinpricks all over with some bouts of weakness. I am 15 days out and it did get better then worse again. Was seen by primary care then neurology. Neurology has decided to monitor at this point hoping that this will go away. He did not recommend the second shot for me at this point. He did say we will see the extent of what is going on in about six weeks. Hoping for the best.

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@ronmartin76. I hope the best for you too. Please keep us posted

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Yes to the first question and having a virtual appointment tomorrow with my neurologist. I wasn't able to get an in office appointment right now.

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Profile picture for ronmartin76 @ronmartin76

Hi chezpl69, I'm sorry you are having the same experience as we are. Yes, neuropathy came on after the first Moderna shot. The same night actually. One of my first symptoms was left foot numbness then both feet and pinpricks all over with some bouts of weakness. I am 15 days out and it did get better then worse again. Was seen by primary care then neurology. Neurology has decided to monitor at this point hoping that this will go away. He did not recommend the second shot for me at this point. He did say we will see the extent of what is going on in about six weeks. Hoping for the best.

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Good luck to you. . I Most likely will not get the second shot but I'll see what the neurologist recommends tomorrow.

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