1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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bustrbrwn22 | @bustrbrwn22 | Feb 26, 2021
In reply to @joeyd5641 "Hi. I have a history of nueropathy that was dormant the last few years. the pfizer..." + (show)
@joeyd5641

Hi. I have a history of nueropathy that was dormant the last few years. the pfizer vaccine brought it back the next day. it went away after a week from the first shot, but like an idiot i went for the 2nd shot and it came back even worse,11 days out and its constant burning and itching.

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@joey5641. How is your neuropathy now after the 2nd covid shot and if you are feeling pain, where is it? Thanks much. Jen

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1 reply
mawagner13 | @mawagner13 | Feb 26, 2021
In reply to @kathleen123 "I have (small fiber) non-length dependent neuropathy. I had my first Pfizer Covid-19 vaccination 2 1/2..." + (show)
@kathleen123

I have (small fiber) non-length dependent neuropathy. I had my first Pfizer Covid-19 vaccination 2 1/2 weeks ago. It exacerbated my neuropathy symptoms. I’m scheduled for my 2nd shot on Wednesday but I don’t know whether to get it since the 2nd shot is much more likely than the first to have significant adverse effects. I called Pfizer and they claim that Covid-19 vaccination is not related to any neurological side effects although I have read elsewhere it can exacerbate PN. My internist says there is just no data to know whether the 2nd shot is likely to make my symptoms worse.

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This happened to me too. I developed neuropathy 2 yrs ago after taking Levaquin. It improved after about a year and I was no longer on any medication for it. Other than occasional mild flares if I overexerted, it was a non-issue. I got the first Moderna shot Jan 5 and within 6 hrs my feet started to burn. Within 8 hrs it was nearly my entire body and it did not go away. I saw my PCP and said although neuropathy isn't an expected reaction to the vaccine there are too many unknowns to know. She wouldn't advise on the 2nd dose because there are too many unknowns. I ended up not getting the 2nd dose. Unfortunately I still have the neuropathy all over. I've searched my brain to find another variable to blame, but there just isn't one that I can see. I'm now back on gabapentin 3x a day. I did report this through the vaers system. I hope in time things calm and it's not permanent. Every individual is unique and rare doesn't mean impossible, which medical providers often forget. In no way do I want to sway anyone from the vaccine. We all have to choose based on our own health history, risks, etc. My family and friends who received it had no problems. But I did want to share my experience.

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7 replies
Moderator
Amanda Roe | @amandajro | Feb 26, 2021

Hello @mawagner13. I'd like to welcome you to Mayo Clinic Connect. Thank you for sharing your experience and I am certainly sorry that you had to endure a reaction and set back with your neuropathy. How is your health now?

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1 reply
helennicola | @helennicola | Feb 26, 2021
In reply to @faithwalker007 "Any effects which are not considered normal vaccine effects or were not provided to you by..." + (show)
@faithwalker007

Any effects which are not considered normal vaccine effects or were not provided to you by the provider giving the vaccine MUST BE REPORTED TO THE PROVIDER WHO GAVE IT TO YOU FOR LOGGING INTO THE VAERS.

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You also able to file a VAERS report yourself, that is what I was told to do by Duke where I received my shots. Helen

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sunnyflower | @sunnyflower | Feb 26, 2021
In reply to @lorirenee1 "I have foot neuropathy, had my first covid vaccine with no problems whatsoever. just thought I..." + (show)
@lorirenee1

I have foot neuropathy, had my first covid vaccine with no problems whatsoever. just thought I would tell everyone. LoriRenee

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Yay! Let us know how your 2nd goes. I'm scheduled to have my 2nd on Sunday. It was originally supposed to be last Sunday but they didn't have enough. I spoke w/ my Rheumatologist yesterday who confirmed I should wait 14 days after for the full immunity takes place before resuming visits w/ my family but that I still need to take precautions such as mask and distancing. Let us know how your 2nd dose goes. @kyc117 Warmest wishes, Sunnyflower

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mawagner13 | @mawagner13 | Feb 26, 2021
In reply to @amandajro "Hello @mawagner13. I'd like to welcome you to Mayo Clinic Connect. Thank you for sharing your..." + (show)
@amandajro

Hello @mawagner13. I'd like to welcome you to Mayo Clinic Connect. Thank you for sharing your experience and I am certainly sorry that you had to endure a reaction and set back with your neuropathy. How is your health now?

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Thank you Amanda Although it’s been nearly 2 months since my first and only dose, the neuropathy hasn’t lessened or resolved. Meds make it manageable but as those with neuropathy know, “manageable” doesn’t mean your quality of life isn’t impacted. Taking supplements. Hoping time is the tincture and 1 dose efficacy proves long term.

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3 replies
Hank | @jesfactsmon | Feb 27, 2021
In reply to @sunnyflower "Ditto!! @jesfactsmon" + (show)
@sunnyflower

Ditto!! @jesfactsmon

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@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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4 replies
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Feb 27, 2021
In reply to @jesfactsmon "@sunnyflower @bustrbrwn22 Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there,..." + (show)
@jesfactsmon

@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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Good morning Hank @jesfactsmon. Welcome to a sunny day in Minnesota! I am wondering why you have expectations of having worse side effects from the second dose? Is that because it is the Moderna version or something else we should know?

May you have happiness and the causes of happiness,
Chris

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sunnyflower | @sunnyflower | Feb 27, 2021
In reply to @jesfactsmon "@sunnyflower @bustrbrwn22 Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there,..." + (show)
@jesfactsmon

@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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Keep us posted on your and Linda's 2nd dose. Here's hoping! My 2nd is tomorrow. Take care, Sunnyflower

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