COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@jesfactsmon

@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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Good morning Hank @jesfactsmon. Welcome to a sunny day in Minnesota! I am wondering why you have expectations of having worse side effects from the second dose? Is that because it is the Moderna version or something else we should know?

May you have happiness and the causes of happiness,
Chris

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@jesfactsmon

@sunnyflower @bustrbrwn22
Hi Jen & Sunny, Linda gets her 2nd on 3/12 so no report there, but I can tell you, my 74 y.o. sister had the Moderna 2nd dose on Tuesday. Her reaction was no reaction for the rest of Tuesday. She woke up Wed. feeling extremely fatigued. Fatigue continued all day Wed. Then she woke up Thursday feeling fine, back to normal. BTW, I had my first shot on Tues. (Moderna) and I have felt nothing, totally nothing, not even a tiny bit of soreness, but I expect to a bit worse for my second. Best, Hank

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Keep us posted on your and Linda's 2nd dose. Here's hoping! My 2nd is tomorrow. Take care, Sunnyflower

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we had our second Pfizer vaccine yesterday — only effects so far: sore arm, and maybe a bit of tiredness

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I wish I had an answer for you but I have the same concerns. I have neuropathy in my hands and feet due to chemo therapy for stage IV Lung Cancer. I'm still receiving chemo treatments until I either go in remission or reach max toxicity level. I asked my oncologist about getting the vaccine and he said it's ok for me to get it when it becomes available to people with pre existing conditions but I'm still nervous. I'd love to hear if anyone has been vaccinated with neuropathy and if you experienced any adverse side effects.

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@happyhippie68

I wish I had an answer for you but I have the same concerns. I have neuropathy in my hands and feet due to chemo therapy for stage IV Lung Cancer. I'm still receiving chemo treatments until I either go in remission or reach max toxicity level. I asked my oncologist about getting the vaccine and he said it's ok for me to get it when it becomes available to people with pre existing conditions but I'm still nervous. I'd love to hear if anyone has been vaccinated with neuropathy and if you experienced any adverse side effects.

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vaccinated with a nueropathy that had all but gone away over the years with b12 and PeaPure, but it came back and is raging after the covid vaccines

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@mawagner13

Thank you Amanda Although it’s been nearly 2 months since my first and only dose, the neuropathy hasn’t lessened or resolved. Meds make it manageable but as those with neuropathy know, “manageable” doesn’t mean your quality of life isn’t impacted. Taking supplements. Hoping time is the tincture and 1 dose efficacy proves long term.

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sorry to hear this. it went away after my first dose and i stupidly got the second dose and now have raging burning and itching .

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@kathleen123

I have (small fiber) non-length dependent neuropathy. I had my first Pfizer Covid-19 vaccination 2 1/2 weeks ago. It exacerbated my neuropathy symptoms. I’m scheduled for my 2nd shot on Wednesday but I don’t know whether to get it since the 2nd shot is much more likely than the first to have significant adverse effects. I called Pfizer and they claim that Covid-19 vaccination is not related to any neurological side effects although I have read elsewhere it can exacerbate PN. My internist says there is just no data to know whether the 2nd shot is likely to make my symptoms worse.

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Hi. Has your nueropathy flare resolved ? did you get the second shot?

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@helennicola

Hi Joey, my symptoms worsened after my first shot along with a sore arm; it lasted for a week then back to normal. My second shot no sore arm but some new symptoms appeared, nothing drastic but I think (hope) are fading. I think anything that impacts our immune system is usually going to have some minor effect; it could even be for the better! 😊 Helen

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hi. did your nueropathy clear up after the 2nd dose? mine is raging 3 weeks after the 2nd dose. It was dormant before the first dose.

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@kathleen123

Had my 2nd Pfizer shot yesterday. My arm neuropathy had died back to maybe a 4 before but it’s now a 6 or 7. Hopefully it will dial back again. Last night both my husband and I soreness in our shoulder blades and between them. No other side effects except pain in and near the injection site.

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hi. what has your nueropathy done in the 2 weeks since 2nd shot and acting up? Mine 3 weeks out is getting worse. I am being interviewed by my local newspaper about this adverse effect.

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@bustrbrwn22

@joey5641. How is your neuropathy now after the 2nd covid shot and if you are feeling pain, where is it? Thanks much. Jen

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it is very bad. feet mostly and a terrible itch in my nose. 3 weeks out and no relief. I am kicking myself for getting the 2nd shot after the 1st caused temporary neuropathy. I was all but dormant before my first shot after 5 years of suffering. Cant believe I did this to myself.

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@mawagner13

This happened to me too. I developed neuropathy 2 yrs ago after taking Levaquin. It improved after about a year and I was no longer on any medication for it. Other than occasional mild flares if I overexerted, it was a non-issue. I got the first Moderna shot Jan 5 and within 6 hrs my feet started to burn. Within 8 hrs it was nearly my entire body and it did not go away. I saw my PCP and said although neuropathy isn't an expected reaction to the vaccine there are too many unknowns to know. She wouldn't advise on the 2nd dose because there are too many unknowns. I ended up not getting the 2nd dose. Unfortunately I still have the neuropathy all over. I've searched my brain to find another variable to blame, but there just isn't one that I can see. I'm now back on gabapentin 3x a day. I did report this through the vaers system. I hope in time things calm and it's not permanent. Every individual is unique and rare doesn't mean impossible, which medical providers often forget. In no way do I want to sway anyone from the vaccine. We all have to choose based on our own health history, risks, etc. My family and friends who received it had no problems. But I did want to share my experience.

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same thing happened to me. It was dormant and then the 1st shot brought it back for a week,and went away..So i got the 2nd shot stupidly and now 3 weeks later, raging neuropathy everywhere. MOstly an intense itch in the nose and burning in the feet. Let me know if yours resolves.

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@joeyd5641

same thing happened to me. It was dormant and then the 1st shot brought it back for a week,and went away..So i got the 2nd shot stupidly and now 3 weeks later, raging neuropathy everywhere. MOstly an intense itch in the nose and burning in the feet. Let me know if yours resolves.

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@joeyd5641, you may be interested in this podcast with Dr. Gregory Poland, Mayo Clinic infectious diseases expert.
– Tackling the latest COVID-19 topics https://connect.mayoclinic.org/page/podcasts/newsfeed-post/tackling-the-latest-covid-19-topics/

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