COVID vaccines and neuropathy
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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Interesting. My neuropathy symptoms have increased as well over the past week and a half since I got my first dose. I figured it was just the continuing onslaught of Tacrolimus. I wish us both a positive non-symptomatic response to the second shot!
@athenalee please keep us updated
Thanks for sharing
Hank, thanks for posting; it’s very interesting but above my pay grade! I guess if we had more time maybe a vaccine with no possible side effects at all would be possible? Probably not, flu shots have proven to be worthless in the past and have even caused serious health issues. And then all drug co.s would have been in a race to come in first. Oh well, it is what it is, take it or leave it, but it does seem my symptoms have worsened since getting the 2 shots but maybe that’s just coincidental and temporary. 🙄😁 Helen
Oh it's not just your pay grade that it's above, believe me! Maybe someone with a modicum of the right scientific know how will read it and explain it to us, Helen.🤞 Best to you, Hank
@athenalee I wonder how many that have noted increased neuropathy symptoms after COVID vaccine live in areas of the country that have been experiencing freezing, freezing weather. Does your neuropathy get worse when its cold?
Hello @athenalee and others in this discussion group.
Last year, Sept. 2020, I had Shingles. I was in a great deal of pain for several weeks. By the end of the month, I didn't need to use any more Gabapentin for the pain and felt back to normal. After my first COVID vaccination (Pfizer) in January of this year, I had a slight return of the Shingles-like pain and it was in the same area where my Shingles had been the year before.
I contacted my neurologist and she said that it could be that the Shingles virus (which remains in your body) might have been activated by the COVID vaccine. She said that while this neuropathy pain was not mentioned as a specific side effect of the COVID vaccine the hospital has had other patients reporting these same types of symptoms.
After my second COVID vaccination, I had some similar discomfort but it didn't last very long and I feel back to normal again. I feel that the discomfort was worth the protection I hope to have as a result of the vaccine.
Hi Teresa @hopeful33250 thank you for sharing your post. Glad to hear your exacerbated symptoms were temporary. We don’t have full knowledge yet about the virus or the medications to tell how much protection we really get and for how long. In fact, wearing protective equipment is still required after receiving the second dose. I would consider the risks of contracting the virus first before determining what to do. Thanks again for your helpful information. Wish you well.Toni
Certainly a possible supposition. Though I’m here in Vermont, where we haven’t seen above freezing in quite a while. But I’ll let you know when we thaw out in a few months!
Thank you for sharing. I’m glad that you’re symptoms returned to normal. I got my vaccine through Lahey where I got my transplant. So, I’m going to contact my nurse to see if others have reported worsening neuropathy symptoms after the vaccine. It is certainly uncertain territory as more of us with illnesses receive the Covid vaccine.
I had shingles about 10 years ago
….a severe case. I felt rotten after my 1st CoVid vaccine. Getting the 2nd tomorrow..Moderna. I will let you all know my experience. I also have mild asthma and of course, the 5 yr. stable end stage cirrhosis.