COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

This is a pattern that needs to be reported.. Has anyone's gotten worse after the vaccine then gotten better again?

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@joeyd5641

This is a pattern that needs to be reported.. Has anyone's gotten worse after the vaccine then gotten better again?

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Any effects which are not considered normal vaccine effects or were not provided to you by the provider giving the vaccine MUST BE REPORTED TO THE PROVIDER WHO GAVE IT TO YOU FOR LOGGING INTO THE VAERS.

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@joeyd5641

This is a pattern that needs to be reported.. Has anyone's gotten worse after the vaccine then gotten better again?

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Hi Joey, my symptoms worsened after my first shot along with a sore arm; it lasted for a week then back to normal. My second shot no sore arm but some new symptoms appeared, nothing drastic but I think (hope) are fading. I think anything that impacts our immune system is usually going to have some minor effect; it could even be for the better! 😊 Helen

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I am not sure of the type of neuropathy I have. It is in my feet and now moving to my hands. I received both shots (Moderna) and I felt a little sore and very fatigued for 2 days after the first shot, and had a low-grade fever, chills, and fatigue for three days after the 2nd shot. I did notice that after the second shot my sugars ran high for about 12 days. So far, so good. On a side note, I am getting a spinal stimulator put in my back on Monday to help with the foot neuropathy. Hopefully, it helps!

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@fortinclan

I am not sure of the type of neuropathy I have. It is in my feet and now moving to my hands. I received both shots (Moderna) and I felt a little sore and very fatigued for 2 days after the first shot, and had a low-grade fever, chills, and fatigue for three days after the 2nd shot. I did notice that after the second shot my sugars ran high for about 12 days. So far, so good. On a side note, I am getting a spinal stimulator put in my back on Monday to help with the foot neuropathy. Hopefully, it helps!

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Hello @fortinclan, Welcome to Connect. It sounds like the side effects you had from the Moderna vaccine shots were not too extreme which I think is good news. I've only had my first Pfizer vaccine but am due to get my second one this Friday. My only side effect was a sore arm where I got the shot the first evening then things got better. Since you mentioned you have neuropathy but are not sure of the specific cause - idiopathic link mine - small fiber peripheral neuropathy, you may be interested in learning what other members with neuropathy have shared in a few other discussions on neuropathy and spinal cord stimulators:

- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
- Supplement recommendations: What can help neuropathy?: https://connect.mayoclinic.org/discussion/supplement-recommendations-can-help/
- Spinal Cord Stimulation: https://connect.mayoclinic.org/discussion/spinal-cord-stimulation-2/
- Comparison of Spinal Cord Stimulators from Boston Sci., Nevro: https://connect.mayoclinic.org/discussion/comparison-of-spinal-cord-stimulators-from-boston-sci-nevro/

Hoping for success on getting your spinal cord stimulator implanted and providing some relief for you on Monday. Can you provide an update and share your experience after your appointment Monday?

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@kathleen123

By exacerbate I mean I had very little neuropathic problems in my arms until after the 1st shot when I developed burning, pins and needles, coldness and weakness in my arms. On a scale of 1-10 I’d say it went from a 1 or 2 to about a 5 or 6. It’s been 3 weeks and it hasn’t gone away. I’m going to go ahead and get the second shot on Tuesday.

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Had my 2nd Pfizer shot yesterday. My arm neuropathy had died back to maybe a 4 before but it’s now a 6 or 7. Hopefully it will dial back again. Last night both my husband and I soreness in our shoulder blades and between them. No other side effects except pain in and near the injection site.

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@jeanne5009

I had shingles about 10 years ago
....a severe case. I felt rotten after my 1st CoVid vaccine. Getting the 2nd tomorrow..Moderna. I will let you all know my experience. I also have mild asthma and of course, the 5 yr. stable end stage cirrhosis.

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Response on second vaccine. I had about every side effect ever mentioned.
It ran it's course with a different hot spot for the full 24 hours. Even
the tops of my feet hurt. Nausea but no throw ups, hips hurt like crazy but
the worst was the headache. Felt like a migraine with a root canal. I had
ice packs and tylenol and Gatorade. And just when I thought I couldn't take
much more...it was gone..I mean gone within a half hour.
I am a little sluggish today but functioning well. The 85 yr old man I am
caregiver for had a sore arm....go figure.

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I received both shots. First with pain in arm and developed a lump. Dr said no worries. Second shot slight pain in arm, no other symptoms. I received the Pfizer vaccine.

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@kyc117

I received both shots. First with pain in arm and developed a lump. Dr said no worries. Second shot slight pain in arm, no other symptoms. I received the Pfizer vaccine.

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I have foot neuropathy, had my first covid vaccine with no problems whatsoever. just thought I would tell everyone. LoriRenee

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@jesfactsmon

I too have heard from several sources that it's more likely you will have more serious side effects on the 2nd shot than the first. My wife has PN and got the first shot on 2/5. Just a slightly sore arm for about a day. I hope the 2nd is not awful for her. Best, Hank

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@jesfactsmon Hank please let us know how Linda is doing after her 2nd shot. Wishing the best.

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