Hi @btwest6, You are suffering from an incisional hernia? I have heard those are terribly painful. I know that both @blueve97 and @sickvick have struggled with incisional hernias. Perhaps they can share their story with you.
I had a small incisional hernia on my right side near the end of the incision. About 16 months post tx I had an incarcerated small intestine in that hernia. A very astute surgical resident, moonlighting in the ER (holiday weekend) recognized the problem and its urgency and called his surgical supervisor who was at a holiday party. I was in the OR about 20 min. later.
It was all ok and no damage to my intestine but waiting would have been a problem. My symptoms were slight fever, nausea, pain in the area and very sensitive to palpitations. Dont know if this will help. I was aware of the hernia.
My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.
My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.
@btwest6, I want to drop in and to say that it is OK to contact your husband's transplant team to ask there opinion about your husband's incisional hernia, especially with the tenderness and increasing size. After our transplants, our bodies can respond differently than a nontransplant individual. Not to frighten you, but infections can come on quickly and be serious.
From my own experience and being 800 miles away from Mayo, I think that you should send a message to his nurse coordinator via the patient portal and explain his symptoms.
What are your thoughts?
@cehunt57, How long after your transplant did the incisional hernia develop to when you needed surgery? What signs/symptoms did you experience? Did you return to your transplant center for the procedure?
@cehunt57, How long after your transplant did the incisional hernia develop to when you needed surgery? What signs/symptoms did you experience? Did you return to your transplant center for the procedure?
@rosemarya my pancreas transplant was 11/30/2005. I had an enteric conversion surgery in 02/2006. It was several years before I started to notice a small (golf ball size) bulge at the bottom of the incision. There were no other symptoms. I asked one of my local providers about it and was told it was an incisional hernia. I reported it to my transplant team. They said they could take care of it but that if it wasn’t bothering it would be better to leave it alone since abdominal surgeries were what caused it in the first place. I was told to keep an eye on it for changes in size, shape or any discomfort. In the spring of 2012 I had a siege of gastroparesis & big discomfort; plus the hernia had changed in size & shape (like a very large plum). It landed me in the hospital. I was indeed diagnosed with an episode of gastroparesis plus a small bowel obstruction. A surgical consult concluded that the hernia didn’t require emergency surgery but should be repaired soon. I ended up with the repair in June 2012 by a local surgeon.
My husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.
@btwest6, Happy 1 year transplant anniversary to you and your husband! I hope that you did something special to celebrate the event. My husband and I usually go to dinner, but this year we opted for a carryout instead. It is the happy memories that are the best part.
What has your husband learned anything about whether or not he will need surgery for the incisional hernia, or found any relief?
Hi @btwest6, You are suffering from an incisional hernia? I have heard those are terribly painful. I know that both @blueve97 and @sickvick have struggled with incisional hernias. Perhaps they can share their story with you.
Hello...My liver transplant was in October 2020, I noticed my stomach above my bellybutton
Was getting big and discovered the lump by my liver area about end of January/or first two
Weeks in February. No pain, no other body symptoms. I had an mri and dr who read xray said
I had a Sonoma. Met with my surgeon after she read the disk that is when she told me about
The hernia. I have to wear a tight elastic wide band around my stomach which feels better
Than not wearing one. Needless to say I need surgery but doctor wants to wait till I reach my 6 mo mark. Not happy to think I need to go back.
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Hi @btwest6, You are suffering from an incisional hernia? I have heard those are terribly painful. I know that both @blueve97 and @sickvick have struggled with incisional hernias. Perhaps they can share their story with you.
You might be interested in reading this article from UCSF on incisional hernias: https://transplantsurgery.ucsf.edu/conditions--procedures/ventral-(incisional)-hernia.aspx
If you would like a good long read, there is also this study that was published on liver transplant specific incisional hernias: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6689349/
@btwest6, Do you currently have one and are looking into removal? Can you share with us a little more about your story?
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1 ReactionI had a small incisional hernia on my right side near the end of the incision. About 16 months post tx I had an incarcerated small intestine in that hernia. A very astute surgical resident, moonlighting in the ER (holiday weekend) recognized the problem and its urgency and called his surgical supervisor who was at a holiday party. I was in the OR about 20 min. later.
It was all ok and no damage to my intestine but waiting would have been a problem. My symptoms were slight fever, nausea, pain in the area and very sensitive to palpitations. Dont know if this will help. I was aware of the hernia.
-
Like -
Helpful -
Hug
4 ReactionsMy husband is 10 months post transplant and has an incisional hernia. His local doctor looked at it and said it was appropriate to wait until his 1 year visit to Mayo. He has increasingly had tenderness to touch, and seems to be increasing in size. We were just curious about others experience with symptoms and repair.
I developed an incisional hernia after pancreas transplant then enteric conversion surgery.
@btwest6, I want to drop in and to say that it is OK to contact your husband's transplant team to ask there opinion about your husband's incisional hernia, especially with the tenderness and increasing size. After our transplants, our bodies can respond differently than a nontransplant individual. Not to frighten you, but infections can come on quickly and be serious.
From my own experience and being 800 miles away from Mayo, I think that you should send a message to his nurse coordinator via the patient portal and explain his symptoms.
What are your thoughts?
-
Like -
Helpful -
Hug
1 Reaction@cehunt57, How long after your transplant did the incisional hernia develop to when you needed surgery? What signs/symptoms did you experience? Did you return to your transplant center for the procedure?
@rosemarya my pancreas transplant was 11/30/2005. I had an enteric conversion surgery in 02/2006. It was several years before I started to notice a small (golf ball size) bulge at the bottom of the incision. There were no other symptoms. I asked one of my local providers about it and was told it was an incisional hernia. I reported it to my transplant team. They said they could take care of it but that if it wasn’t bothering it would be better to leave it alone since abdominal surgeries were what caused it in the first place. I was told to keep an eye on it for changes in size, shape or any discomfort. In the spring of 2012 I had a siege of gastroparesis & big discomfort; plus the hernia had changed in size & shape (like a very large plum). It landed me in the hospital. I was indeed diagnosed with an episode of gastroparesis plus a small bowel obstruction. A surgical consult concluded that the hernia didn’t require emergency surgery but should be repaired soon. I ended up with the repair in June 2012 by a local surgeon.
-
Like -
Helpful -
Hug
2 Reactions@btwest6, I am checking on your husband. Have his symptoms changed?
@btwest6, Happy 1 year transplant anniversary to you and your husband! I hope that you did something special to celebrate the event. My husband and I usually go to dinner, but this year we opted for a carryout instead. It is the happy memories that are the best part.
What has your husband learned anything about whether or not he will need surgery for the incisional hernia, or found any relief?
-
Like -
Helpful -
Hug
1 ReactionHello...My liver transplant was in October 2020, I noticed my stomach above my bellybutton
Was getting big and discovered the lump by my liver area about end of January/or first two
Weeks in February. No pain, no other body symptoms. I had an mri and dr who read xray said
I had a Sonoma. Met with my surgeon after she read the disk that is when she told me about
The hernia. I have to wear a tight elastic wide band around my stomach which feels better
Than not wearing one. Needless to say I need surgery but doctor wants to wait till I reach my 6 mo mark. Not happy to think I need to go back.