New to living with Mild Cognitive Impairment (MCI)

Posted by Janie @dougjanehaltom, Nov 20, 2020

I have recently been diagnosed with MCI and I'll be attending Mayo Clinic group on this. Each day just seems to bring me challenges. I have days when I get depressed because I feel like I'm being a burden to others. I will be attending MCI seminar at Mayo Clinic in January. I need help and support in this area.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@debbraw

Hi @dorty - Welcome to Connect! I agree with Lisa in terms of watching the condition and investigating causes. My husband was diagnosed with Mild Cognitive Impairment in 2015 and I know from our own experience how frightening that diagnosis can be. It sounds as if your diagnosis was based on the battery of neuropsych tests you just completed. As a follow-up to that, I would encourage you to look at the information and articles on Mayo's website under Mild Cognitive Impairment. Some of the articles and resources were helpful to us. Also, I'm wondering if your neurologist and/or neuropsychologist recommended anything beyond the "wait/re-test" approach? You may consider contacting Mayo to see about your eligibility for participation in their HABIT (Healthy Actions to Benefit Independence & Thinking) program. Here are a couple of links you might find helpful.
https://connect.mayoclinic.org/page/living-with-mild-cognitive-impairment-mci/newsfeed/what-is-habit-healthy-action-to-benefit-independence-thinking/https://www.mayoclinic.org/diseases-conditions/mild-cognitive-impairment/multimedia/vid-20088028

Jump to this post

Wonderfully informative! Thank you.

REPLY
@rachelanne

I have Mild Cognitive Impairment from a Stroke in 2001! I am 58 years young and am very worried about my future, regardless of how and what the information documents reflect, for a person in my age bracket! I would hope, that relearning my skills and engaging in many different projects, classes, Volunteer Work, online Brain Games, etcetera, will help! However, no-one can predict the future, so I am staying busy and doing my part to stave off Dementia later in life!

Jump to this post

You are a strong woman. Thank you for sharing your positive attitude about your diagnosis.

I also have MCI (mild cognitive impairment). After testing my neurologist assured me that I do not have Alzheimer’s. Yet?
I was prescribed Clonazapam for a head tremor. I became dependent on this pharmaceutical..I did not know that it affects memory and mood!
I am now tapering off of Clon with the help of Escitalopram.
I am looking forward to meeting a (referral) psychiatrist who will counsel and manage the decrease in medication. 🙏 please

REPLY

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind --long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety - don't need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example--these are all things I have been really good at -- until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. "not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am "to remain concerned but not consumed over these results", call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

REPLY
@helenfrances

You are a strong woman. Thank you for sharing your positive attitude about your diagnosis.

I also have MCI (mild cognitive impairment). After testing my neurologist assured me that I do not have Alzheimer’s. Yet?
I was prescribed Clonazapam for a head tremor. I became dependent on this pharmaceutical..I did not know that it affects memory and mood!
I am now tapering off of Clon with the help of Escitalopram.
I am looking forward to meeting a (referral) psychiatrist who will counsel and manage the decrease in medication. 🙏 please

Jump to this post

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

REPLY
@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind --long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety - don't need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example--these are all things I have been really good at -- until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. "not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am "to remain concerned but not consumed over these results", call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

Jump to this post

today our children came for my husbands 80th birthday ,our kids are college professors, one 28 year old grandson and his wife. The conversations went like this, "do you remember what's his name? Used to live on what's that street that was just right off highway something" Remember the guitar player that was popular, oh you remember, he had a mustache and we saw him in Nashville" I have taken Xanax for 30 years, three of us take omeprazole, one takes a pill for epilepsy. Docs tell me mine is stress related, I have a brain tumor, my husband never took a pill in his life so I don't worry about it. I asked the doc about omeprazole and she said forget everything they said about it, new studies show it doesn't cause memory loss. Everyday things change.

REPLY
@emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

Jump to this post

Hi, @emyliander - would you consider contacting the medical center for an update on your appointment? How are your symptoms lately?

REPLY
@emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

Jump to this post

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

REPLY
@flind

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

Jump to this post

@flind Clonazepam is one of the benzodiazipines. Medical information for doctors is to reconsider use of benzos for the elderly as they may cause some problems. It is not an order, but something for doctors to consider when deciding what to prescribe. Your doctor or pharmacist should be able to tell you more about any possible side effects.

REPLY
@flind

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

Jump to this post

REPLY
@emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

Jump to this post

Thinking of you, @emyliander, and hoping the doctor's office has called and set up the testing appointment(s) now?

@rachelanne - I'm wondering how things are going for you? Are you noting any MCI symptoms?

@beverlymarks and @lindaburdett - would love to hear from you about how the memory-related symptoms are going.

REPLY
Please sign in or register to post a reply.