New to living with Mild Cognitive Impairment (MCI)

Posted by Janie @dougjanehaltom, Nov 20, 2020

I have recently been diagnosed with MCI and I'll be attending Mayo Clinic group on this. Each day just seems to bring me challenges. I have days when I get depressed because I feel like I'm being a burden to others. I will be attending MCI seminar at Mayo Clinic in January. I need help and support in this area.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@lisalucier

Thinking of you, @emyliander, and hoping the doctor's office has called and set up the testing appointment(s) now?

@rachelanne – I'm wondering how things are going for you? Are you noting any MCI symptoms?

@beverlymarks and @lindaburdett – would love to hear from you about how the memory-related symptoms are going.

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I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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@emyliander

I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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I guess I didn’t wait long enough !

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@emyliander

I guess I didn’t wait long enough !

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I do the same. We are only human 🤝

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@emyliander

Thank you to all that have enquired after me. Yesterday I noticed the “ view more “ box, I was thinking that no one was writing anymore, I should have known. I called the referred Dr’s office weeks ago and was told they do so many referrals a month, guess it hasn’t been my month yet. Now with COVID 19 all appointments we had have been postponed. My memory problems continue, my husband keeps telling me “ you don’t listen to me” trouble is he talks so much, I have a hard time filtering out what I really need to listen to. I have to laugh sometimes at the things I do. I made a meal for a man who’s wife had died and called to ask what time he would like me to bring it. I didn’t hear from him so just took it when it was ready. A few weeks later I was listening to my messages on my cell phone and found the message for the man. Apparently I called from our home phone and left the message on my cell phone, no wonder he didn’t answer. 😬 our house goes on the market in 11 days, we’ve been unable to find a place in NY, complicated by having 2 cats and a dog. Also trying to get our daughter set up with a day program to attend. Some days are better than others.

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I don’t seem to have a very good memory. I marvel at my friends but I have always been a bit that way about details. I self diagnose myself with mild attention deficit disorder at 65. Something in my mind tells me I don’t need that info especially when people get long winded. A lot has to do with my anxiety and being in the present moment. Of course, it is a part of aging. Hope I don’t sound like a know it all. These are thoughts I have regarding me personally. Maybe it can help others. As always, it pays to have a good sense of humor if your issues aren’t extreme.

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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I have the exact same issues. Mine was diagnosed as Multiple Sclerosis. Especially the cognitive deficits and the eye issues are hallmark signs of the disease. It took me 10 years to get the correct diagnosis. If I can help you in any way, please feel free to reach out to me. I wish you the very best.

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@lioness

@helenfrances Yes I found it as we can't get out now so I use it every time I get a new med .

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Many thanks!

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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@helenfrancis . You are so right . Research is most important with any problems . I look it up if the Dr doesn't give me a satisfactory answer . I use the pharmacist for med information and interactions since they have all my meds. Very good source also . Drugs.com is a good one online

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@helenfrances

If I had known( famous last words?) I would have asked for a smaller less frequent script (of Clon)for my head tremor.
After taking Clonazepam for several years, I began to have a memory problem.
Recently I was evaluated by a neurologist ( mild cognitive impairment). He was not the prescriber, was retiring. ..and took me to the office of two new neurologists.
He assured me that I did not have Alzheimer’s and one of these two new neurologists would help me.

My research: MCI(mild cognitive impairment)can lead to AD. I hope I can delay it!

I will let you know about my evaluation.

Please do not see anyone who is not a neurologist (who can answer ALL your questions or calls him self a rehab doctor). I am tritrating from Clonazepam half a tablet decrease each week.

I thank God for my gastroenterologist. She told me that I would have ab pain when I began decreasing this pharmaceutical. I do. The prescriber denies this and says that it is caused by GI issues which are wonderfully under control!! ( I have celiac disease. A diet corrects that!)

Please let me know if you have questions. If I can help anyone titrating off of Clonazapam
I will. I am praying that these new neurologists know of a support group… or perhaps start one!

Look first for research based information on the Mayo website.

All the best!
Ellen
(Write any time)

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I also have Celiac disease controlled by diet. When I asked my family Dr. For a referral to a neurologist she told me that first I should see a Geriatrician and referred me to one. I moved before I saw anyone. Now I am looking for a family Dr. near Albany NY. And then will ask for a referral.
My Psychiatrist who I liked, and prescribed my psych meds knew I had trouble with my memory but never suggested it could be from the Klonopin, I also have trouble with day time sleepiness for which I take Provigil.
Oh what a tangled webb we weave when we practice psych meds !!

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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Hi @emyliander, how are you? It's been awhile since we heard from you.

@helenfrances, I'm so glad you got the technical issues worked out and were able to log back in. Happy to have you back.

@artscaping, let's get this discussion going again. I miss your posts and conversation here.

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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Greetings…welcome to our first reunion, Sarah, @emyliander, and Ellen @helenfrances. It certainly does seem like it has been a long time since we had an update and a timely conversation? Sara, @emyliander, how is your new home? Are you all moved in? I have to ask…..do you have a garden for your flowers? And I hope your daughter is tucked away at her special school or is COVID19 still mandating that she remain with you.

And how about you Ellen, @helenfrances? You, in June, were waiting to complete a withdrawal from Clonazepam and continuing to do research and some shared decision making about your road ahead with your neurologist.

I think in June, we were all talking about how cognitive impairment at the mild stage was affecting our lives. Do our life partners and families recognize our somewhat staggering memories? I think you were looking at a shared support group or class with your husband Sarah. And I was asking you to get a medicine review to make sure those stomach issues were being taken care of.

I will share with you a couple of medical hurdles that I find challenging right now. I found a tiny crunchy nodule on my sternum which ended up being squamous cell carcinoma and was promptly surgically removed. Now I wait like so many others who receive a cancer diagnosis of any kind.

You're not going to believe this one…..I sure didn't until I had spent several days in what I call an itch bomb. It is called neuropathic itch and does its annoying work inside your body. No matter how hard you try you can't scatch it because you can't reach it. So now I am being a guinea pig for different medications to see which might work best without side effects. At the end of two weeks, I make a switch and we see what happens with a new trial.

So…fill me in and fill me up with news and highlights. It seems like things are pretty quiet with the travel restrictions. I must admit I am hungry for a play at the Gutherie. Dinner at Sea Change…..actually sitting in a restaurant might also be nice. Shoot, I would even go to our adopted granddaughter's softball games if I could remember the day. And that is where I will end for tonight. I am noticing greater difficulty with recent memory especially when I am talking and lose my thought. I see people either trying to help me by feeding me the words or looking away as if they haven't noticed.

How are your memories holding up………do you have any tricks or hacks to share? As Ellen says…write any time. And I say…..do it now or you just might forget. My very best to you both……..I would love to hear from you.

May you have peace and ease.
Chris

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