New to living with Mild Cognitive Impairment (MCI)

Posted by Janie @dougjanehaltom, Nov 20, 2020

I have recently been diagnosed with MCI and I'll be attending Mayo Clinic group on this. Each day just seems to bring me challenges. I have days when I get depressed because I feel like I'm being a burden to others. I will be attending MCI seminar at Mayo Clinic in January. I need help and support in this area.

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@emyliander

Hello, as I mentioned I am in my early 70’s, I do not have a diagnosis of MCI but feel that my memory is getting worse all the time. I loose many things, forget many things in a day, read an article in the morning but can’t remember what it was about in the afternoon. I forget appointments and dates with friends. I get busy doing things at home, then go in another room and forget to go back to what I was doing. I forget to eat breakfast until around noon time, then by supper time I’m starving hungry with a low blood sugar. I’ve lost about 15lb give or take a few.
I also have been on Venlafaxine for a number of yrs and needed an increase back in August. Also we are planning to sell our home of 48 yrs and move to NY. So that takes a lot of planning and trying to downsize. So I don’t know what to attribute my forgetfulness to, or if at this time I should do anything about it. Sometimes I can laugh at it, such as when I called someone to ask the best time to take a meal to them and asked them to call and let me know. They didn’t call so I just took it at 5pm. A couple of weeks later I was deleting some calls on my cell phone and heard the message I had supposedly left for my friend, but obviously I used the home phone and left the message on my cell phone. Other times I am reduced to tears and embarrassment.
What do you think I should do. Skylark

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@emyliander – Some of what you've described I've been doing for years – e.g. going into a room and forgetting why I went there, and some of it may be due to stress – e.g. you are selling your home of 48 years. I can only imagine how difficult that must be. I know nothing of MCI, but I do think if you are concerned you should speak to your doctor.

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@debbraw

Hi @dorty – Welcome to Connect! I agree with Lisa in terms of watching the condition and investigating causes. My husband was diagnosed with Mild Cognitive Impairment in 2015 and I know from our own experience how frightening that diagnosis can be. It sounds as if your diagnosis was based on the battery of neuropsych tests you just completed. As a follow-up to that, I would encourage you to look at the information and articles on Mayo's website under Mild Cognitive Impairment. Some of the articles and resources were helpful to us. Also, I'm wondering if your neurologist and/or neuropsychologist recommended anything beyond the "wait/re-test" approach? You may consider contacting Mayo to see about your eligibility for participation in their HABIT (Healthy Actions to Benefit Independence & Thinking) program. Here are a couple of links you might find helpful.
https://connect.mayoclinic.org/page/living-with-mild-cognitive-impairment-mci/newsfeed/what-is-habit-healthy-action-to-benefit-independence-thinking/https://www.mayoclinic.org/diseases-conditions/mild-cognitive-impairment/multimedia/vid-20088028

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Wonderfully informative! Thank you.

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@rachelanne

I have Mild Cognitive Impairment from a Stroke in 2001! I am 58 years young and am very worried about my future, regardless of how and what the information documents reflect, for a person in my age bracket! I would hope, that relearning my skills and engaging in many different projects, classes, Volunteer Work, online Brain Games, etcetera, will help! However, no-one can predict the future, so I am staying busy and doing my part to stave off Dementia later in life!

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You are a strong woman. Thank you for sharing your positive attitude about your diagnosis.

I also have MCI (mild cognitive impairment). After testing my neurologist assured me that I do not have Alzheimer’s. Yet?
I was prescribed Clonazapam for a head tremor. I became dependent on this pharmaceutical..I did not know that it affects memory and mood!
I am now tapering off of Clon with the help of Escitalopram.
I am looking forward to meeting a (referral) psychiatrist who will counsel and manage the decrease in medication. 🙏 please

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@emyliander

I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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I guess I didn’t wait long enough !

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@emyliander

I guess I didn’t wait long enough !

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I do the same. We are only human 🤝

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@emyliander

Thank you to all that have enquired after me. Yesterday I noticed the “ view more “ box, I was thinking that no one was writing anymore, I should have known. I called the referred Dr’s office weeks ago and was told they do so many referrals a month, guess it hasn’t been my month yet. Now with COVID 19 all appointments we had have been postponed. My memory problems continue, my husband keeps telling me “ you don’t listen to me” trouble is he talks so much, I have a hard time filtering out what I really need to listen to. I have to laugh sometimes at the things I do. I made a meal for a man who’s wife had died and called to ask what time he would like me to bring it. I didn’t hear from him so just took it when it was ready. A few weeks later I was listening to my messages on my cell phone and found the message for the man. Apparently I called from our home phone and left the message on my cell phone, no wonder he didn’t answer. 😬 our house goes on the market in 11 days, we’ve been unable to find a place in NY, complicated by having 2 cats and a dog. Also trying to get our daughter set up with a day program to attend. Some days are better than others.

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I don’t seem to have a very good memory. I marvel at my friends but I have always been a bit that way about details. I self diagnose myself with mild attention deficit disorder at 65. Something in my mind tells me I don’t need that info especially when people get long winded. A lot has to do with my anxiety and being in the present moment. Of course, it is a part of aging. Hope I don’t sound like a know it all. These are thoughts I have regarding me personally. Maybe it can help others. As always, it pays to have a good sense of humor if your issues aren’t extreme.

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@emyliander

I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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I had the same thing happen in a text i recurved re cov id 19 and it disappeared from my texts !!! Gov't tech hacking???

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@emyliander

I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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Correction – I've just verified with the sender and it was text only and no picture. I thought the picture disappeared.

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@emyliander

Thank you to all that have enquired after me. Yesterday I noticed the “ view more “ box, I was thinking that no one was writing anymore, I should have known. I called the referred Dr’s office weeks ago and was told they do so many referrals a month, guess it hasn’t been my month yet. Now with COVID 19 all appointments we had have been postponed. My memory problems continue, my husband keeps telling me “ you don’t listen to me” trouble is he talks so much, I have a hard time filtering out what I really need to listen to. I have to laugh sometimes at the things I do. I made a meal for a man who’s wife had died and called to ask what time he would like me to bring it. I didn’t hear from him so just took it when it was ready. A few weeks later I was listening to my messages on my cell phone and found the message for the man. Apparently I called from our home phone and left the message on my cell phone, no wonder he didn’t answer. 😬 our house goes on the market in 11 days, we’ve been unable to find a place in NY, complicated by having 2 cats and a dog. Also trying to get our daughter set up with a day program to attend. Some days are better than others.

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Virus is a scare and docs have cancelled Medicare pts. but the phych doc (who cares) could find another way to see you if you had Skype, for example.
Mild depression following divorce and lack of money and now the Virus, guess poorer people don't count for much.
it's Lonely out here.

why and how do we get picture?

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@emyliander

Thank you to all that have enquired after me. Yesterday I noticed the “ view more “ box, I was thinking that no one was writing anymore, I should have known. I called the referred Dr’s office weeks ago and was told they do so many referrals a month, guess it hasn’t been my month yet. Now with COVID 19 all appointments we had have been postponed. My memory problems continue, my husband keeps telling me “ you don’t listen to me” trouble is he talks so much, I have a hard time filtering out what I really need to listen to. I have to laugh sometimes at the things I do. I made a meal for a man who’s wife had died and called to ask what time he would like me to bring it. I didn’t hear from him so just took it when it was ready. A few weeks later I was listening to my messages on my cell phone and found the message for the man. Apparently I called from our home phone and left the message on my cell phone, no wonder he didn’t answer. 😬 our house goes on the market in 11 days, we’ve been unable to find a place in NY, complicated by having 2 cats and a dog. Also trying to get our daughter set up with a day program to attend. Some days are better than others.

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Hi, @emyliander – so sorry to hear it hasn't been your month yet regarding the referral.

What is your sense of what/how much your husband understands the symptoms you are experiencing at this time with memory, etc.?

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