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Heart Failure
So I'll try to make a long story as short as possible... Over the last 14 months I have had 3 heart attacks and have been in a handful of times for what felt like another one but they say no. During my last overnight that wasn't a heart attack they decided to do a test I hadn't done yet. It showed a "dead spot" as was explained to me. A week later they had me do a 2 day "viability test" which I included the results page from. Basically from what I understand and they way it was explained to me was that there is nothing they can do and that I should expect to deal with the pain for the rest of my life, however long that might be. Hence why I've sought out another opinion from Mayo but wont have my first appointment for a little more then 3 weeks from now. So i came across this group while looking through the website as the suggested during my appointment call and thought maybe somebody here might have some insight into this since looking around online almost requires a medical degree to understand and my current doctor isn't much help beyond there's nothing he can do for it. I spend most days in pain, like it feels like i'm having another and it's getting old fast. So if anyone has any insights or tips on how to alleviate any of it or tricks or can just explain to me in plain english why i should expect to be in pain everyday just so i can justify it to myself and maybe will help. Guess i don't know what to expect, just a way to vent i suppose cause i know the family is already worried enough and don't want to put more on them.
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Were these Mayo Doctors? I don't know where you live but if they are not Mayo physicians, go el pronto to your computer to Mayo clinic.org and request an appointment. Go there! The clinic cardiologists work as a team. I know they can help you. My team helped me.
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1 ReactionNo this wasn't a Mayo doctor. My current doctor. Like mentioned in my post i do have an appointment setup for Mayo but it's not for another 3+ weeks. I'm hoping they will be able to help and that they can figure something out cause this constant pain is getting annoying.
@shawnb2020 I wish you luck pain in your chest is bad I had it before my by pass good luck
I dont have the devices you have but I've heard of people with new equipment like you do have the same issues it just takes time for the devices to work themselves out good luck dave
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1 ReactionI'm new to "Connect" and have a recent synchronization device and defibrillator implanted. I'm curious to find out if others experience a feeling of the heart being in the throat, so to speak. It kind of feels like palpitations, not a feeling of shortness of breath. I also experience times when my heart pumping is visible through my clothing. I have a device check appointment soon, just curious to know if any of this is normal.
Hi @shawnb2020 and @sallygg1, I wanted to welcome you to Mayo Clinic Connect glad you could join us. @sallygg1 as you will see I moved your discussion to the thread that @shawnb2020 created about Heart Failure. This method is to benefit both you and other new members who are suffering with similar problems and give you a chance to connect.
@shawnb2020, I wondered if you asked or if your doctor mentioned at all any type of device to help with the heart failure like Sally has or any medication to slow the process? And you might be interested in this discussion as well - Stiff Heart, diastolic heart failure - https://connect.mayoclinic.org/discussion/stiff-heart-diastolic-heart-failure/
I would like to invite @scottij, @cynaburst, @annierae and @susikelley to the conversation.
@sallygg1, prior to your device did you have any of these symptoms or pain? You might be interested in the following conversation. It has a lot of information. Support Group for pacemaker recipients - https://connect.mayoclinic.org/discussion/pacemaker-recipients/
I would also like to invite @bevh, @susikelley, @danab, @fishinpete, @stubeckj70 and @maddie3211 to the conversation as well.
Good Morning....Last Aug. 2019 I suffered an A-FIB. Just like your describing...my heart was beating out of control and I could feel it. My arms were weightless while my heart was beating like s drum.... I had pain in my neck and thoat. I called the EMT after 2 days of this issue. My physician stated my heart had gone into A-FIB...After several days trying different medications my physician jump started my heart back to normal. My heart responded immediately.
Today, I am on Entresto and my heart feels great once again.
If your heart is beating abnormal take it from me, go to the hospital immediately! The longer you wait the more damage to your heart. This is a life and death situation that needs immediate attention. I learned a valuable lesson. I will never wait two days or an hour to get immediate attention...I love myself to much to allow this to happen again.
Good luck!! Maddie
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2 ReactionsThanks for the vivid description which will help us all recognize it if should happen to us!
Hi, do you have a pacemaker/dyfibulator? Has your ejection factors always been that low...for me my levels were 12% in 2005 and now they are 50%. They did drop to 36% when my heart went into A-FIB but rebounded back.
So, do you have
a whole in your heart? Did not understand completely? Maddie
If this helps don't give up their is a doctor that specializes in this kind of issue. It takes patients to do the research...I know for myself I changed doctors 5 times...and I found the right one....
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1 ReactionHave you considered a visit to Cleveland Clinic? Both Mayo and Cleveland are awesome, but I say start bugging them to get you in.