Weird new symptom possibly connected to Epilepsy

Posted by Leonard @jakedduck1, Jul 13, 2020

Good afternoon,
I was curious if anyone has experienced similar symptoms that I’ve been experiencing recently. About two months ago I was in the grocery store walking along and a weird feeling in the back of my head began. This strange sensation began in the back of my head over the Occipital lobe and worked its way forward as far as my temporal lobe, The pain was mild and I don’t know how to describe it.
Almost immediately after the sensation began my legs became weak. The first time it happened I actually collapsed but I never lost consciousness was never confused. I wondered if they might be some sort of Atonic seizure (drop seizure). My primary care physician thinks my seizures may be evolving or that I may have a migraine syndrome of some sort so I have an appointment Wednesday to see the neurologist. I doubt he’ll know what is going on but he probably won’t admit it, nothing like having confidence in your doctor, lol.
Jake

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CharmYaChicago | @charmyachicago | Jul 18, 2020

POTS possibly.

CharmYaChicago | @charmyachicago | Jul 18, 2020

May be POTS

Leonard | @jakedduck1 | Jul 18, 2020

In reply to @charmyachicago "May be POTS" + (show)

@charmyachicago
Hi there,
Although I don’t claim to be an authority on pots, I don’t believe my symptoms are consistent with that malady. Although I’m not in total agreement they’re consistent with arthritis either.
My blood pressure and heart rate are normal.
My primary doctor recently had me take my blood pressure & pulse before I got up, immediately upon sitting up on the edge of my bed and then while standing. All my readings were well within normal limits not like what one would normally see in pots or at least the type of pots I’m most familiar with. I thought it might be Postural Hypotension, But my knowledge of that is limited as well. My father was a C-5 quadriplegic and he suffered from that nearly every time we got him out of bed. I’m not familiar with Orthostatic hypotension happening after being upright for some time but who knows.
You may be more knowledgeable than I on other types of Pots. Do you think it's still a possibility?
Thank you for your contribution it was very much appreciated.
Take care,
Jake

bigjoe | @bigjoe | Feb 22, 2021

In reply to @mxyzptlk32 "@cindypekarek You keep me on my toes, Syncope - : loss of consciousness resulting from insufficient..." + (show)

im going for a syncope eeg test wondering if nuero thinks i dont have epilepsy

debint | @debint | Feb 22, 2021

Look into POTS. We are currently in hospital for drops and by a fluke, they found it. It is commonly misdiagnosed. My daughter does have epilepsy but when the drops started, her old neurologist assumed they were new seizures. He was wrong!

debint | @debint | Feb 22, 2021

In reply to @charmyachicago "POTS possibly." + (show)

We are in Pittsburgh hospital right now for EEG monitoring for drop seizures. Doc caught heart rate issue and said they are not drop seizures. It is dysautonomia ( POTS). After wasting a few years increasing and changing meds. No wonder they did not work. Glad we found a new team of neuro who caught it the first night inpatient

jeffery | @jeffery | Feb 22, 2021

I went 10 years with controlled epilepsy and started to get aura feelings and small twitches. So changes can happen. I was prescribed a second medication and it helped sort of but didn't stop it all the way and I was referred to Mayo for an extended eeg and they found that I was having a more seizure activity than I even felt.