Anyone else dealing with shingles?

First of all burning started whenever I laid down. From my feet straight up my whole body. Woke me up. Always started 1 -2 hours after going to lay down. Then my legs went. Couldn't keep my balance and hardly could walk. Then panic attacks that lasted all day. Didn't stop. I haven't had a panic attack in years and they never lasted that long. Double vision but not sure if that is related to the vaccine. Started in November and lasted until February then automatically stopped. Can walk now, etc. no panic attacks, or dizziness, no burning. I can't prove it was the vaccine but I'll bet it was. Had all kinds of neurological tests and Monday am going to get the results.

@dablues Oh wow that sounds awful. Im glad it finally stopped for you how hard that was for you I sorry you had this reaction to the vaccine . Let me know your test results if you will . Cant imaging the pain you went through. My pain seem mute to what you had . I know with the burning that ice will help or wherever my body is hot from the burn . I have fibro and neuropathy so I use a cream that helps Topricin it for fibro and neuropathy . Good luck .

Hello All:

I am definitely a newbie to this whole Shingles diagnosis. Was just diagnosed a few days ago and I can say (very literally) that I feel your pain. As my Shingles started on my back laying down and sleeping has become a whole new experience. A lot of you have posted about Shingles on the face (which I'm glad I don't have) but wondering about Shingles on the back. Any pressure I put on my back (including laying down or being propped up in bed) puts pressure on these nerves and really causes problems. Walking tends to be the best position for me right now.

My PCP gave me an anti-viral med which made the sores dissipate completely within a couple of days. I'm wondering,@oldkarl if you have had an anti-viral drug, as you mention that you "oil the lesions?" For me, the anti-viral med worked very nicely to get rid of the lesions. Has your doctor ever recommended such a med?

At the ER last night I was given some prednisone. Anyone else treated with that? I slept for several hours without pain but then woke up and knew the med had worn off. I have several days of a prednisone pack so I hope it will help.

Has anyone been treated with Gabapentin for the Shingles pain? As Shingles pain is nerve pain, I'm going to ask for that next.

By the way, Shingles was not even on my radar as I've had all of the Shingles vaccines that are available including the most recent Shingrex that is given in two doses. I had this a year ago.

Looking forward to hearing from everyone who can help with this. Thanks for your posts so far. Always good to hear from others in the trenches, so to speak.

@hopeful33250 I'm so sorry to hear you have the shingles. I never did but a friend here had it the lesions dried but left him with terrible pain a shirt hurt him to put on Did you have your Shingrex shot If not get it My Dr keeps me up on all my vaccines Praying for you

Thanks for sharing suck a terrible experience! I am sorry. Does the medical community recommend the shingles vaccine for 50 year olds? I know many friends you’ve gotten the vaccine.

Thanks for your post, @lioness. Yes, I had the Shringrex shots last year. I've been told it could have been worse if I had not had it, but nonetheless it is pretty bad! My lesions have dried up with the anti-viral meds, but the pain continues. It is one of the most difficult pains that I've experienced.

You should check with your doctor, @bustrbrwn22. I believe it is recommended at age 60, but that could have changed. Your doctor or pharmacist would probably be the best one to ask.

@hopeful33250 That's what I've been told I hope it won't last long can the Dr give you anything to help with the pain ? My friend had terrible itching also with his

I had the original shot for shingles when I turned 60; however 10 years later I had the worse case of shingles my caregivers had ever seen. Acupuncture and Chinese ointments helped me recover. Now I have itching in one spot on my back and
Once in a while ongoing nerve pain.

Now I wonder if I should get the newer shot? Has anyone had two shots?

Thanks for sharing!