2 years sick, nauseous and dizzy, no answer, please help.

Hey I am 29 years old and have been struggling with extreme fatigue/physically exhausted as well as throwing up well not really throwing up just completely nauseous. Like to the point if I even try to drink a beer I will throw up within minutes. I have lost all sex drive, I require frequent breaks at work just to make it through the day. I have gotten so many tests done, from blood draws to endoscopy/colonoscopy head mri. And they find absolutely nothing. They jump to it has to be depression, which I have tried 3 different anti depressants that have only made me 10x more sad. I feel like the problem is physical but starting to take a toll on me mentally because I have felt this way for three years. I’m so desperate for help I’ve reached out twice to be seen at the Mayo Clinic and have been denied both times, for some reason I have no idea. I’m so exhausted all the time it’s hard to even do basic everyday things, I know something is wrong I just don’t know what. Any advice, or someone who went through something similar with this mysterious sickness that could give onsite would be great. Thank you.

If I were you I would keep trying at the Mayo Clinic. A native Minnesotan now living in Pennsylvania, I ran into a similar problem nine years ago when I was unhappy with the medical advice and treatment my local GP was providng me. I had my last unsatisfactory appointment with my local doctor on Christmas Eve nine years ago and decided that I had to make other arrangements. So I started calling around on Christmas Eve, mind you, to see where I could get an appointment. I called Johns Hopkins in Baltimore (one of my alma maters), the Cleveland Clinic, The University of Wisconsin, The University of Minnesota. Finally on Christmas Eve the Mayo Clinic took my call and gave me an appointmnet in January.2013 I consider myself very lucky because my problem was even more serious than I thought. I had my first consultation in January and received a diagnosis. The Mayo Clinic scheduled surgery for February. 8 years later, I'm happy to report that my condition is stable. Not only was I able to schedule my surgery in 2013, I wound up having three other surgeries at the Mayo Clinic that same year with excellent results. Persistence paid off in my case, I'm happy to say. I visited the Mayo Clinic several times a year for follow ups and I was always happy with the treatment I received. I'm planning to move back to Minnesota soon and hope to be able to use the Mayo Clinic as my primary medical resource.

I’m new here and it was the first group that I thought about, no it’s been three years and the doctors have yet to find anything.

Also have been denied twice now by the Mayo Clinic and I’m not sure why. My doctor said that I need to put an application in but still was told there is nothing they can do

@reganripple You will notice I moved you discussion to a previous discussion that you already started.

I did this so you could have a central location to discuss you health question.

You mentioned in your previous discussion that this started when you were using substances. I know you have stopped using substances but that is only one part of the journey. What you are experiencing is not uncommon. May I ask what kind of substance abuse treatment you have had?

I haven’t had any kind of treatment I quit cold turkey and haven’t used since.

Yes, and was told that could be contributing to you feeling this way, but was never told anything else. What to do etc. Which is why I’m trying to go to another hospital that will help.

@reganripple It sounds like you started to experience these symptoms during substance use and they have continued since.

Members like @caseygirlx0xmv @jdiakiw @jimhd @ellens @equestrian2020 @lolly906 have been part of similar discussions and may be able to offer help and/or support.

Below I have linked a conversation you may find relevant. You may want to scroll through the posts and look for suggestions and supportive members.
- In recovery. Too many symptoms. Autoimmune disorder? HELP! https://connect.mayoclinic.org/discussion/autoimmune-disorder-help/

Below I have linked a relatively generic page title, Drug Addiction (substance use disorder) from the Mayo Clinic Website.
- https://www.mayoclinic.org/diseases-conditions/drug-addiction/symptoms-causes/syc-20365112
At the bottom under complications, it states, "Methamphetamine, opiates and cocaine are highly addictive and cause multiple short-term and long-term health consequences, including psychotic behavior, seizures or death due to overdose."

Mind and body is highly interlinked in addiction. I'm wondering if a provider with an addiction emphasis would be most helpful?

Below I have linked a helpful resource in finding treatment.
- NAMI https://www.nami.org/Home

@reganripple Still no relief! How frustrating.

Back in 2003, I started feeling off, so I talked with my pcp, and told him that what I was feeling could be depression, but I wanted to rule out any possible organic problems. Over the next year, I saw different specialists and found that I had sleep apnea - a cpap machine made a huge improvement. I wasn't totally tired all the time. But I still felt off. A test showed that my gall bladder had less than 10% function, and I felt better after it was removed. So I was back to depression again. It took 2 years to find an antidepressant that helped. I don't know how many I tried, but you have to take them for 6 weeks to tell if they work. I finally landed on Wellbutrin, and I've been taking it since the beginning of 2006.

I have neuropathy, with one symptom being dizzy, along with several other things. It's no fun to live with non-stop issues.

We moved in 2006 - had to retire because I was so deeply depressed and suicidal, and was not able to function at work or anything else. Since then I've had one pcp, and I've been seeing a pain specialist for more than 5 years, trying to find something that to help with my neuropathy pain in my feet and ankles. I wrote that to say that I'm thinking about finding a new doctor who might have a fresh look at how to treat me. My neurologist thought that would be a good idea when I talked with him this week, especially a new pain physician.

So, have you been seen by an endocrinologist or an ENT? Has a doctor ruled out menieres disease? I had those tests long ago, but everything was negative. The crystals in the ears sounds kind of weird, but they actually are there, and can mess with balance. Have you noticed any changes since you wrote about your symptoms last April?

Antidepressants are prescribed for things other than depression. My neurologist started me on Cymbalta a couple of months ago for my neuropathy pain. I think it's helping a little, but I noticed that I have a lot more motivation to do things that I've put off doing for years. I'm much more productive since I started taking it. So, if you do the six week trial of antidepressants, you might find that one of them will treat the nausea and dizziness. My experience has been that when I'm having a lot of pain it affects my mood. Pain and illness tend to work in a vicious circle with depression. So, if you can just find out the cause, I suspect that depression will lessen or disappear, especially because it wasn't a pre-existing condition when you stopped doing drugs.

Has a doctor referred you to Mayo Clinic? That might make the difference in getting them to see you. Keep on advocating for yourself. We'll hope to hear soon that you've diagnosed and are being treated.

Jim

@reganripple You are having multiple symptoms and you have yet to find a cause or treatment.

So that I can direct you to the right discussion and members, may I ask why you posted in Men's Health specifically?