Lung cancer with joints and muscles sore.

Posted by richcolleen @richcolleen, Apr 10, 2020

I have stage 4 lung cancer which has spread before caught. What I’m wondering if anyone has problems with all joints sore? I was on chemo and immune therapy 8 months and since (I quit chemo due to very sick days) been on just immune therapy and felt pretty good until the last week.

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In reply to @shortshot80 "NO, NO PAIN! NANCY" + (show)
@shortshot80

NO, NO PAIN! NANCY

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Nancy- that's good that you aren't in pain.
I got your book finally!

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@merpreb

Nancy- that's good that you aren't in pain.
I got your book finally!

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Nancy- What an adventurous life you have lived! I loved being out to sea, watching whales and dolphins!

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@merpreb

Nancy- What an adventurous life you have lived! I loved being out to sea, watching whales and dolphins!

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THANK YOU, YES I'VE HAD A LOT OF FUN, RAISED FOUR KIDS AND NOT ONE GOT INTO ANY TROUBLE TWO BOYS RETIRED FROM THE SUBMARINES AND COAST GUARD, ANOTHER SON WENT INTO THE SUBMARINES AND STAYED HIS THREE YEARS AND GOT OUT. HE IS THE ONE THAT WE WERE ABLE TO GO ON A DEPENDENTS CRUISE ON THE SUBMARINE. THAT WAS FUN! WE WERE ABLE TO GO ACROSS THE COUNTRY A COUPLE OF TIMES AND GET SALT A PEPPER SHAKERS FROM EVERY WHERE. I HAVE A HUGE COLLECTION. I ENJOY THEM. I THINK THEIR MUST BE WAY OVER 800 OR SO. I HAVEN'T DUSTED THEM FOR QUITE A WHILE. HMMMM NOT ON MY LIST TO DO! NNANCY

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@merpreb

Nancy- that's good that you aren't in pain.
I got your book finally!

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HOPE YOU ENJOY IT. NANCY

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@shortshot80

HOPE YOU ENJOY IT. NANCY

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I finished it and enjoyed it very much. Your grandchildren will cherish this!

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@merpreb

@richcolleen- Good morning. I'm really starting to feel claustrophobic.I think that everyone has spring fever! I have my next scan in mid-June. I really hope that things will be more open by then, for both of us! I'm glad that you are feeling better. It's a very hard call to stop treatments, but your quality of life is more important, I think. Why not try and ask the infusion nurse why you felt so achy? They often seem to know more than Oncologists because they hear complaints and questions more often.

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Ended up calling and they will be running extra test. My joints -(fingers-wrist - arms-Back -neck- breast Legs-) ache all the time know. Taken 400 mg of ibuprofen every 6 hours which help. Praying they can do something for this.

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@shortshot80

Hi am doing pretty good today. Had a doc appt this morning. primary care got a couple shots "tetnus" shingles" shots. check up. more later have to have a ultra ulta sound soon. Nancy

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@shortshot80 Hi Nancy:

I was thinking about you and wondering if you had your ultrasound yet. I hope you are still pain-free.

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@richcolleen

Ended up calling and they will be running extra test. My joints -(fingers-wrist - arms-Back -neck- breast Legs-) ache all the time know. Taken 400 mg of ibuprofen every 6 hours which help. Praying they can do something for this.

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@richcolleen- I'm glad that you called. Do you know what other tests that they will do?

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I am also have joint pain and sore joints... however, oncologist sluffs it off and tells me to contact my family doctor and when I mentioned it again to his nurse.. she says that it is not related to cancer or cancer treatments... I don't believe this as I did not start getting this joint pain till several months after immunotherapy started. I was on nivolumab up till two months ago ... I had 6 infusions to that date... infusions cancelled due to a high rise in covid patients at our local hospital ... the oncologist says it it not the risk of going to the hospital .. he told me I would have 0% chance of survival if I get the virus... not sure why he feels that way.. yes.. I do have stage 4 lung cancer but have no breathing issues and am usually active.. no shortness of breath.. etc.. just had a CAT scan on May 22nd of the Chest.. will get results on June 3rd.. hoping that not getting my infusions did not bring me back to square one with my cancer 🙁

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