Are you getting cancer treatments during COVID-19?

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?
I'd like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

Interested in more discussions like this? Go to the Cancer: Managing Symptoms Support Group.

Very good story to let people know about quarantine and protection. This virus is very contagious. Keep your door close and wash your hands after you take care of your mails.

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@devehf

My dad has his monthly infusion of a monoclonal antibody for multiple myeloma next week at Mayo Jacksonville. We are concerned about being exposed to so many people during this day long treatment. Does anyone know if masks are available at the front door of the Mangurian Building right when you walk in? Or can I go to the pharmacy on the main floor of the Davis building to see if we can buy masks?

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Hi @devehf and welcome to Mayo Clinic Connect. Please visit this Mayo Clinic website with specific information about COVID-19 when coming to Mayo for procedures.
https://www.mayoclinic.org/covid-19
https://www.mayoclinic.org/covid-19/florida Specific info for the Florida campus
https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/cancer Specific questions and answers about COVID-19 for cancer patients

I'm not sure about the availability of masks, but will try to find out. Please note that your father will only be allowed to have one other person accompany him. Will that be you?

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@mom23boys

Hi Leonard. I was just reading thru posts and saw yours. I'm not sure where you are. I'm in rural CO. We have 22 positive cases and 1 death of an 80+ yr old woman with other health conditions....within ours and 2 other counties, total. Trying to self-isolate but it is difficult to get basic necessities and food items to hold over from just one source. Walmart did a $35 or above order for free except that they only filled less than half my order. I ended up going to 5 stores over 10 days (hard to self-isolate when you have to search all over town for what you need to isolate). Very frustrating. I laughed at your candy comment. In trying to get things I need I kept forgetting my comfort candy. I won't bring myself to go out just for that even though it's tempting. You take care.

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@mom23boys I know what you mean about getting half your order . It is because of those who horded items in the first place . I had to go to diff. stores to get all I needed . I couldn't get ground meat from one store so had to wait then I finally found it . Stay safe be patient

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@lioness

@mom23boys I know what you mean about getting half your order . It is because of those who horded items in the first place . I had to go to diff. stores to get all I needed . I couldn't get ground meat from one store so had to wait then I finally found it . Stay safe be patient

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@lioness, we have had similar issues with our local Walmart stores. There are 4 close by and NONE have had most of what we need. Target is the store that we have had the most success with. They have a published self limiting campaign in our local stores to prevent hoarding so that has had a positive effect on availability. I'm sure there are more Walmarts around than Target stores, but guess where I'll continue to shop even more? Capitalism is great, but not at the expense of others who need supplies and food to just survive. Good luck to all. We even cancelled our Walmart pharmacy needs in favor of a CVS located in our favorite Target store. It is not too busy like the Walmarts so exposure is also more limited for safety of all high risk patients.
Take care!

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@lioness and all, Walmart also has store policies that limit vital pain meds that patients need, which I didn't know anything about until trying to pickup an opioid prescription for my wife. We were counting the days before we could have our prescription filled when I stepped up to the pharmacy check out to pick it up. They said it wouldn't be available for 3 more days despite it being 30 days past her last script for the same med. I asked them why and they said the insurance and doctor had approved the script for pick up that day but it was Walmarts policy to extend the refill date the 3 added days. I hope someone can tell me that I'm mistaken because how can any retailer arbitrarily withhold a patients legal script for a controlled substance if it is legal? Someone please tell me I am wrong, or reinforce my experience. Walmart or any pharmacy has no right to do this. This is another reason as I mentioned previously that we moved our pharmacy needs to Target. We picked the script on the next day there, 2 days before we could have at Walmart. My wife simply could not wait as she was suffering with many painful side effects of MM chemo.

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@kandc317

@lioness and all, Walmart also has store policies that limit vital pain meds that patients need, which I didn't know anything about until trying to pickup an opioid prescription for my wife. We were counting the days before we could have our prescription filled when I stepped up to the pharmacy check out to pick it up. They said it wouldn't be available for 3 more days despite it being 30 days past her last script for the same med. I asked them why and they said the insurance and doctor had approved the script for pick up that day but it was Walmarts policy to extend the refill date the 3 added days. I hope someone can tell me that I'm mistaken because how can any retailer arbitrarily withhold a patients legal script for a controlled substance if it is legal? Someone please tell me I am wrong, or reinforce my experience. Walmart or any pharmacy has no right to do this. This is another reason as I mentioned previously that we moved our pharmacy needs to Target. We picked the script on the next day there, 2 days before we could have at Walmart. My wife simply could not wait as she was suffering with many painful side effects of MM chemo.

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Oh geez- so glad you were able to get the meds at Target- how horrific what Walmart did- doc covered the basics and they still delay- I feel this should be addressed to the Attorney General of your area- your Senator - because the Dr was on top of it. Cancer is hard enough without this nonsense .

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@colleenyoung

Hi @devehf and welcome to Mayo Clinic Connect. Please visit this Mayo Clinic website with specific information about COVID-19 when coming to Mayo for procedures.
https://www.mayoclinic.org/covid-19
https://www.mayoclinic.org/covid-19/florida Specific info for the Florida campus
https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/cancer Specific questions and answers about COVID-19 for cancer patients

I'm not sure about the availability of masks, but will try to find out. Please note that your father will only be allowed to have one other person accompany him. Will that be you?

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I will drive and stay in the car. I just want to make sure that masks are available. If that is even recommended. I fear that a surgical mask which is typically available does not limit the spread of this virus. If N95 masks are not available, then I want to find out if they are available for purchase at the pharmacy in the Davis Building.

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@devehf

My dad has his monthly infusion of a monoclonal antibody for multiple myeloma next week at Mayo Jacksonville. We are concerned about being exposed to so many people during this day long treatment. Does anyone know if masks are available at the front door of the Mangurian Building right when you walk in? Or can I go to the pharmacy on the main floor of the Davis building to see if we can buy masks?

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Dave - I had my infusion there on the 20th and no one was wearing a mask. There were no masks at the front door of the Mangurian but a table was set up to ask you 3 questions before you entered. I would not go to the Davis building for any reason! I go tomorrow to the Mayo building for radiation simulation and back on Tuesday for brain radiation. Do you happen to have a bandana your dad could wear?

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I have brain radiation this week at Mayo in Florida. Tomorrow is the simulation (3 hour appointment) and Tuesday is the radiation. I need to take Ativan to keep me still during these procedures which means I need a driver. My neighbor is taking me both days but I am afraid to be so close to him in the car that I will be wearing a mask. I am going to have him stay outside on the campus to keep him safe while I am inside. I did have my labs, PA,infusions last week and no one wore a mask.

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