Are you getting cancer treatments during COVID-19?

Are you getting cancer treatments at the moment? What about diagnostic tests, like blood tests, CT scans, mammography, PET scans etc? Is your surgery going ahead as planned or postponed?

I’d like to hear from you. What is like being in treatment during the COVID-19 crisis? How are you doing?

@marvinjsturing

I have been doing tele-med appointments with my nephrologist for 5 years because of distance. I have recently been diagnosed with a recurrence of my pancreatic cancer. Radiation treatments began last Thursday. I have 5 treatments a week. My wife came with me Tuesday because I met with my doctor after radiation. I heard today that she will no longer be allowed to enter the hospital as a visitor. Only patients will be allowed in.

Jump to this post

@marvinjsturing– Checking up to see how you are doing!

REPLY
@elizm

@merpreb @gingerw @colleenyoung
I've read that PCPs (and probably specialists, as well) are in trouble financially due to the shelter-in-place practice, despite some televisits and email exchanges. This brings to mind the question, do insurance companies and Medicare allow them to bill for such work? Does anyone know?

Jump to this post

@elizm I believe that the one silver lining of this pandemic is that is has forced healthcare systems around the world to fast-track their developments for virtual healthcare. That said, all the kinks are not worked out. I agree with @roch and @gingerw that one should always check with their insurance company and provider about compensation for the service.

REPLY
@drewgrebe

I am so sorry about the return of your cancer. I hope there is more treatment for you. I cannot go with my fiancée to his treatments. I feel so bad cause have always been there. I can’t even see his doctor because of all of this. Keep on smiling and I am praying for you. I believe so much in the power of prayer.

Jump to this post

@drewgrebe Thanks for you prayers. I really appreciate it. Since my wife is not able to come with me to my appointment this week, I used my cell phone and put her on speaker phone so she could hear the discussion with the nurse practitioner and could get her questions answered. I really appreciate today's technology that makes these things practical

REPLY
@merpreb

@marvinjsturing– Checking up to see how you are doing!

Jump to this post

@merpreb I am doing good. I am about half way through my 25 radiation treatments. Started feeling a little nauseous after the 4th treatment so I got a prescription that pretty well takes care of that. My biggest problem is that I miss out on a lot of the TV programs I watch. I fall asleep half way through the program I am watching and wake up half way through the next program. I never know how the conflict was resolved or I don't know how it all started in the first place. Gotta love the weather in the Midwest. Wednesday it was 70 and I sat out on the back patio to have a cup of coffee. Yesterday we had rain, freezing rain and snow. It is supposed to warm up again later in the week.

REPLY

@marvinjsturing– Good morning Marvin. I'm glad that you took care of nausea. It even makes my stomach feel better! 🙂 Fatigue is one side effect that I bet 99% of everyone feels. I'm not sure why it makes us tired but it does. Do you know what kind of radiation you are getting? I don't remember. You are having wacky weather. I'm in southern NE and we have days in the '60s and then it's raw and windy- constant wind- and it dips into the 40's and 30's at night.
Have you considered getting something to tape your show? That would drive me batty.

REPLY

I live in a suburb of Austin, TX. I JUST came up with sciatica, right before we started virtual Dr. visits. My pain doctor told me it was from Piriformis Syndrome. She was wrong. I ended up in the ER , due to unrelenting pain. I had tried SO hard to stay away from there but felt I had no choice. They gave me 4 days of Prednisone, a steroid, and 4 days of Valium 5mg every 8 hrs. That seemed to ease the pain until I woke up the next morning ( I slept for 4 hours straight) and Cried for the few feet I had to walk to go to relieve myself. I, then, had to call EMS to come get me and take me back. I got an MRI that time which shows 2herniated discs causing the pain. I’m supposed to be able to see my pain Dr. virtually. I had to go to a separate lab to have my blood checked. It’s stable. I am blessed. My chemo is by mouth. My prayers go out to those who have more horrible disease wracking their bodies and who must go in for treatments. God bless us all. Here’s hoping I can get some more medication for the terrible pain I’m going tho, but it’s nothing compared to the dilemma others are facing. Godspeed every last one of you.

REPLY
@marvinjsturing

@drewgrebe Thanks for you prayers. I really appreciate it. Since my wife is not able to come with me to my appointment this week, I used my cell phone and put her on speaker phone so she could hear the discussion with the nurse practitioner and could get her questions answered. I really appreciate today's technology that makes these things practical

Jump to this post

Amen to that, Marvin. I’m glad we don’t have to know what things would occur with our technicians. I’m so glad to hear that your wife was able to attend virtually. Pray!!!

REPLY
@marvinjsturing

@drewgrebe Thanks for you prayers. I really appreciate it. Since my wife is not able to come with me to my appointment this week, I used my cell phone and put her on speaker phone so she could hear the discussion with the nurse practitioner and could get her questions answered. I really appreciate today's technology that makes these things practical

Jump to this post

@marvinjsturing– What a wonderful idea! I'm sure that your wife was rellieved that in a way she could be with you! I bet that it was comforting.

REPLY
@merpreb

@seaspray– How are you doing today?

Jump to this post

@merpreb – Thanks for asking, I am doing ok! Have my labs and infusion next Thursday and plan on wearing my own mask to Mayo. My PA sent a message saying our appointment will be either video or phone. But, I will be driving back to Mayo during my visit time so I guess it will be a phone call in the call! Strange times.

REPLY
@seaspray

@merpreb – Thanks for asking, I am doing ok! Have my labs and infusion next Thursday and plan on wearing my own mask to Mayo. My PA sent a message saying our appointment will be either video or phone. But, I will be driving back to Mayo during my visit time so I guess it will be a phone call in the call! Strange times.

Jump to this post

@seaspray– They are indeed strange times! There are a few good things. We can see how fast the medical community is acting to get new medicines out more quickly, how calls are saving time and how a lot of people are more cooperative and warmer and nicer. I think that going through a crisis like people realize that no one is better than the next and it humbles us! What kind of side effects do you have after your infuusions?

REPLY
@texastee59

I live in a suburb of Austin, TX. I JUST came up with sciatica, right before we started virtual Dr. visits. My pain doctor told me it was from Piriformis Syndrome. She was wrong. I ended up in the ER , due to unrelenting pain. I had tried SO hard to stay away from there but felt I had no choice. They gave me 4 days of Prednisone, a steroid, and 4 days of Valium 5mg every 8 hrs. That seemed to ease the pain until I woke up the next morning ( I slept for 4 hours straight) and Cried for the few feet I had to walk to go to relieve myself. I, then, had to call EMS to come get me and take me back. I got an MRI that time which shows 2herniated discs causing the pain. I’m supposed to be able to see my pain Dr. virtually. I had to go to a separate lab to have my blood checked. It’s stable. I am blessed. My chemo is by mouth. My prayers go out to those who have more horrible disease wracking their bodies and who must go in for treatments. God bless us all. Here’s hoping I can get some more medication for the terrible pain I’m going tho, but it’s nothing compared to the dilemma others are facing. Godspeed every last one of you.

Jump to this post

Hi @texastee59, may I ask what cancer you're taking treatment for? Are the spine issues cancer-related or unrelated?

REPLY
@marvinjsturing

@drewgrebe Thanks for you prayers. I really appreciate it. Since my wife is not able to come with me to my appointment this week, I used my cell phone and put her on speaker phone so she could hear the discussion with the nurse practitioner and could get her questions answered. I really appreciate today's technology that makes these things practical

Jump to this post

Even though we get so irritated with the robot calls, etc, our phones are wonderful things in this time of confusion. This is a very good idea, and I will share with my son who is beginning chemo treatments for Stage 4 stomach cancer soon.

REPLY
@merpreb

@seaspray– They are indeed strange times! There are a few good things. We can see how fast the medical community is acting to get new medicines out more quickly, how calls are saving time and how a lot of people are more cooperative and warmer and nicer. I think that going through a crisis like people realize that no one is better than the next and it humbles us! What kind of side effects do you have after your infuusions?

Jump to this post

@merpreb – I don't have any side effects except lousy skin which could be just a combination of lifelong sun, old age and immunotherapy! I agree with what you said about people although I have a few in my neighborhood who have the attitude it won't happen to them. They get angry when I won't let my dog greet their dog and just don't really "get it". We had some severe hoarding going on here on this island but a neighbor came to my rescue today with toilet paper! It is the small things that we become so grateful for!!

REPLY

Not sure if this has been posted, I just saw today and thought I would share:

Specific questions and answers about COVID-19 for cancer patients
https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/cancer
Laurie

REPLY
@roch

Not sure if this has been posted, I just saw today and thought I would share:

Specific questions and answers about COVID-19 for cancer patients
https://www.mayoclinic.org/patient-visitor-guide/covid-19-faqs/cancer
Laurie

Jump to this post

@roch
Hi, Laurie
Such confusing information circulating on face masks. The CDC wants everyone to wear one. Mayo only wants people who are sick or symptomatic to wear one. I guess it's every wo/man for her/his self!

REPLY
Please login or register to post a reply.