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Stenotrophomonas added to my diagnosis

Posted by franthony @franthony, Jan 12, 2020

My doc just added stenotrophomonas to my growing list of lung infections. My MAC results have been coming back negative for a few weeks now, pseudomonas seem calm, but my aspergillus can't be treated while I'm being treated for MAC, This is a never ending thing, I guess. Does anybody else have stenotrophomonasy? This is so frustrating!

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irene5 Irene Estes | @irene5 | May 9, 2020

@fdixon63 Good luck. I think you’ll be ok on the miniocycline. Some people take the Big 3 and do well. Others like you and me struggle with them. Irene

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toni1132 | @toni1132 | May 11, 2020
In reply to @fdixon63 "Hi @franthony. Thanks for sharing your experience. When I first found out about the stenotrophomonas yesterday..." + (show)
@fdixon63

Hi @franthony. Thanks for sharing your experience. When I first found out about the stenotrophomonas yesterday I was a bit down and had a little "pity party." After that I had a talk with myself, prayed to my God, got encouragement from my best friend, felt the support from my husband and renewed confidence in my doctors that they know what they are doing. I pray for you that you will get some good news soon. Knowing we're not alone with these diseases is some comfort. I've learned so much. God bless you. Faye

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Blessings on YOU ! What a wonderful outlook! You are so right. We all have to keep a positive mindset. Prayers, friends, loved ones, medical intervention, all this is there for us and we all need to remembers that it is and we need to utilize all of these options and sources. I truly wish you well !

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2 replies
fdixon63 | @fdixon63 | May 11, 2020
In reply to @toni1132 "Blessings on YOU ! What a wonderful outlook! You are so right. We all have to..." + (show)
@toni1132

Blessings on YOU ! What a wonderful outlook! You are so right. We all have to keep a positive mindset. Prayers, friends, loved ones, medical intervention, all this is there for us and we all need to remembers that it is and we need to utilize all of these options and sources. I truly wish you well !

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Thank you @toni1132. I never knew words from perfect strangers could be so warming. But I say this, "A stranger is just a friend you haven't met yet. Feeling the love from the group.

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Jane S. Brown | @macjane | May 12, 2020

Very nice saying.

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Jane S. Brown | @macjane | May 12, 2020
In reply to @toni1132 "Blessings on YOU ! What a wonderful outlook! You are so right. We all have to..." + (show)
@toni1132

Blessings on YOU ! What a wonderful outlook! You are so right. We all have to keep a positive mindset. Prayers, friends, loved ones, medical intervention, all this is there for us and we all need to remembers that it is and we need to utilize all of these options and sources. I truly wish you well !

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How nice what you have said.

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