Stenotrophomonas

Posted by franthony @franthony, Sun, Jan 12 3:31am

My doc just added stenotrophomonas to my growing list of lung infections. My MAC results have been coming back negative for a few weeks now, pseudomonas seem calm, but my aspergillus can't be treated while I'm being treated for MAC, This is a never ending thing, I guess. Does anybody else have stenotrophomonasy? This is so frustrating!

How frustrating, @franthony. I believe @sayaboleh @sdwiggs and @lindam272 have tested positive for stenotrophomonas maltophilia and may be add some thoughts. I read that S. maltophilia bacteria are resistant to many antibiotics. What are your next steps and treatment options?

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@colleenyoung

How frustrating, @franthony. I believe @sayaboleh @sdwiggs and @lindam272 have tested positive for stenotrophomonas maltophilia and may be add some thoughts. I read that S. maltophilia bacteria are resistant to many antibiotics. What are your next steps and treatment options?

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I saw my ID doc today and she said they are at less than 10%, and often reside in epithelial cells, so at this time we simply watch and continue to get routine (routine for us, right?) sputum cultures.

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Well, now I have added penicillium to the mix. This is infection number five in two years. It is a little depressing. Stenotrophomonas susceptibility tests still running. Meanwhile, I'm in month 20 of MAC treatment, have been treated for pseudomonas three times, and can't be treated for the aspergillus while being treated for the MAC. Sheesh!

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