Low Dose Naltrexone and Neuropathy
Hi everyone. Lori Renee here. I have been on Low Dose Naltrexone for about 2 weeks. It may be too soon to post about this medication, but I thought I would post now, and post again, in about 2-4 weeks. Bottom line is that Low Dose Naltrexone has helped considerably with my foot neuropathy. My pain is sometime gone, and usually only reaches a level 5 or so, sometimes. Usually, it is about a 2-3, kind on a low level foot throbbing. Enough to be annoying, but not enough to want to cut my feet off. Without it, I wanted to cut my feet off. Certain problems do remain, so my feet are far from normal still. I put on shoes, and feel like my socks are bunched up, or that there are pebbles in them. It takes me a long time to find a shoe to wear. The balls of my feet still feet like they have been stuck in cement, but not all the time. My toes still feel stuck together, or too widely spread. All crazy sensations of neuropathy. So Low Dose Naltrexone has not taken all the crazies away. However, the pain is so much lower, that I am amazed. I have only used Kratom once in two weeks, which is remarkable. I have no side effects at all from the drug. It is not covered by my Medicare insurance, but is about 35 bucks a month. Not too bad. Anyway, it really is the best pain killer I have tried, other than Kratom. I don't have to taste the vile Kratom, so that is very good. I suggest that everyone give it a try. I read that it helps approximately 25% to 40% of people that try it. The endorphin rush it produces is loaded with pain fighters. Yes, give it a try. I will post again about it, as I use it more. Love to all, Lori Renee
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@rwinney Oh good Im glad to hear you have tried it like all creams you get relief for a couple of hours then more needed . Not sure when people try my remedies. Thanks for replying Rachael
I am a side sleeper too. My physical therapist told me beside putting a pillow between my legs to have a pillow that I kind of hug. I think what this does is it supports the shoulder that is on top and by adjusting the pillow (a pretty firm pillow) you can sort of push your upper shoulder back relieving the strain on the upper back and shoulder muscles. Try it and see if it helps.
@catcando Thank you very much for your suggestion!
@rwinney Hi Rachel, I’m so sorry for all of your pain. The nerve pain I have is from Parsonage Turner syndrome. It started out as severe pain in my right shoulder. Little did I know at the time that it was more than just shoulder pain. After several weeks I noticed tingling and pain in my arm and eventually it spread to my hand affecting three fingers. After 3 1/2 years I still have pain from my elbow to my hand in my right arm. My left hand has pain, but it is not nearly as bad as my right hand. I have the same pain that you have - burning, tingling, and occasionally shooting pain. Mine is pretty constant, 7 out 10 normally. On bad days it’s an 8. Most any activity I do makes it worse, but I know that after a while it will return to my normal level of pain. I use ice also when the pain is real bad. None of the many creams I’ve tried have helped at all.
As I said compression gloves help a lot. I wear ones with open fingertips because it’s easier to do things with your hands. The brand I mostly use is Isotoner. They are easy to get on and off because they stretch. Ones that are difficult to take off only cause more pain. Another brand I tried recently is ZZCARE. They are very reasonably priced. I like the way they feel when they are on, but are a little more difficult to take off. I find myself wearing a ZZCARE glove on my right hand and an Isotoner glove on my left hand because it’s easier to take off when I need to. As you can tell I’m not fashion conscious!
Rachel, I hope this information will help you.
Patrick
@rwinney Hi Rachel, I would definitely add the compression gloves to your arsenol. They may help. Sometimes I use compression socks for my feet, and that helps at times. Other times, the compression is too great. I also notice that putting heavy pillows on my feet also help, so yes, maybe compression will help you. Oy, this is all so hard. Love to you, Lori
Any specific type of compression glove?
@patrick17 Thank you very much for the detail. Your post not only helped me but, may help others as well. We can never have too many tips to learn from. Thanks again and if I could, I would wish your pain away for you. Take care.
Rachel
Hi patrick17, I am so sorry for the pain you describe here! Really sorry! I have never even heard of Parsonage Turner syndrome so I will look it up and learn about it. I wish for you healing, comfort, support and many, many blessings. Warmest regards, Sunnyflower
@cnn The two brands of compression gloves that I like are Isotoner and ZZCARE. They are on Amazon as well as many others. It’s important to get the right size. They usually show how you should measure your hand for each of the brands. Please see my post to @rwinney from earlier today for more information.
@sunnyflower What a nice name you use! I had never heard of Parsonage Turner syndrome either. It is somewhat rare. I was seen by several doctors before one of them, a neurologist, diagnosed it. I even had surgery on my neck which I probably didn’t need because it didn’t help my condition. I wish I could have a “do over” on the surgery. Perhaps the surgeon had never seen anyone with Parsonage Turner syndrome. Thanks for your kind words and thoughts! I wish you healing as well.
Patrick