1. < Neuropathy
Mentor

Aching legs from Small Fiber Neuropathy

Posted by Rachel, Volunteer Mentor @rwinney, Oct 23, 2019

One of my relentless symptoms from neuropathy is profusely aching legs. Does anyone share this symptom with me? At times I wonder if it could be another issue. They hurt so bad and create pain when walking continuously. Both legs feel heavy, tired and can't get much mileage. When I walk it's as though they are full of lead and they make me go at a turtles pace. If I stop and don't move they may settle a bit but then same old situation as I walk again. Only relief is being elevated and wrapped with heat or soaking in warm water. That buys me maybe a half hour or an hour tops. Same goes for any topicals. A tight wrap feels good almost like a weighted blanket does. Something about tightening the muscles does too.
I appreciate comments or feed back you may have to share on this.
Thanks all,
Rachel

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @lioness "@rwinney Oh I'm so sorry Rachel Can you get in and take a hot shower ?That..." + (show)
@lioness

@rwinney Oh I'm so sorry Rachel Can you get in and take a hot shower ?That always helps me .Epsom salts good for pain Vinegar does the same .Apple Cider though ,heating pad Hope you find some relief Thinking of you Linda

Jump to this post

Hey Linda
Yes ma'am, got in shower but was painful on body. Some days are just a bear and I know I will survive them because I'm stronger than your average bear! Girl, I live with heat packs. They are a huge help to me most days and I recommend heat to many. Thank you my friend for caring. Have a wonderful day.
Rachel

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @lorirenee1 "@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my..." + (show)
@lorirenee1

@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my toes and balls of feet were in a vice today. Stopped the Low Dose Naltrexone for a few days, because I did not think it was helping. I guess it was, because I was in utter agony until I took Kratom. Brought pain down from a 10 to a 6 or so. Considering Dorsal Root Ganglion Stimulation. Just cannot deal with this anymore. Got medical marijuana card, and I am using it more than I like to. Rachel, Rachel, Rachel......this is not fair. From where do we gather strength? How often do you just cry? Tears trickling down my eyes today, as I chugged Kratom. Unbelievable. Had lumpectomy, and wound up with this mess. I am so sorry I am so low. Gotta put the spirit of God inside me. Find the joy...somehow.... Lori Renee

Jump to this post

Hello and so good to hear from you. Been thinking about you as I have not seen you post in a while. Sorry about the LDN. As @artscaping so gently reminds me (and she is absolutely correct), there are no take it all away answers. Once I began to understand that reality, acceptance came my way...sort of. I can not tell a lie...I have my days, and yesterday was one of them! My poor husband. It does break my heart (and I'll get mad about it for you) that once people survive cancer, surgeries, etc...this misery awaits them. Indeed - not fair. But if we sit around playing woe is me, life continues on without us. Damn it All! Such a catch 22. I wish you peace and clarity today. Be well.
Rachel

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @birdierobin "You too Rachel. I don’t take any pain medicine. I take whatever life gives me" + (show)
@birdierobin

You too Rachel. I don’t take any pain medicine. I take whatever life gives me

Jump to this post

Brave soul.

REPLY
lioness | @lioness | Feb 10, 2020

@rwinney I will feel o.k. today tomorrow who knows Yesterday it was my Right hip and groin giving me trouble where do you live Rachel? I live on Calif.all my life I lived in PA. Glad to get out of the snow

REPLY
1 reply
lorirenee1 | @lorirenee1 | Feb 10, 2020
In reply to @rwinney "Hello and so good to hear from you. Been thinking about you as I have not..." + (show)
@rwinney

Hello and so good to hear from you. Been thinking about you as I have not seen you post in a while. Sorry about the LDN. As @artscaping so gently reminds me (and she is absolutely correct), there are no take it all away answers. Once I began to understand that reality, acceptance came my way...sort of. I can not tell a lie...I have my days, and yesterday was one of them! My poor husband. It does break my heart (and I'll get mad about it for you) that once people survive cancer, surgeries, etc...this misery awaits them. Indeed - not fair. But if we sit around playing woe is me, life continues on without us. Damn it All! Such a catch 22. I wish you peace and clarity today. Be well.
Rachel

Jump to this post

@rwinney Rachel, A giant thanks just for being there for me. You get it. You know. Wish I could take a magic wand and make us healthy. We are such vital human beings. So alive, in spite of this. Just a giant thanks for being there. Do not even know what to say...…..God Bless. Lori Renee

REPLY
1 reply
lorirenee1 | @lorirenee1 | Feb 10, 2020
In reply to @lioness "@lorirenee1 I'm sorry to hear your in so much pain today Remember we are Pain Warriors..." + (show)
@lioness

@lorirenee1 I'm sorry to hear your in so much pain today Remember we are Pain Warriors and don't let this pain define us Have you tried soaking your feet in Epsom Salt water may help The magnesium in E.S helps nerves as well as muscles Praying 🙏 for you and all of us in pain today Pray the Holy Spirit will help you today.Linda

Jump to this post

@lioness Hi Linda, Yes, this pain utterly sucks. No description. Coincidentally, I filled my foot spa with Epsom salt today, and soaked. Relieving. Very relieving. Now that my Kratom is wearing out, I will do a few puffs of marijuana, and the day will go by. Thanks for prayers, and they are returned back to you. God Bless, Lori Miller

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @lioness "@rwinney I will feel o.k. today tomorrow who knows Yesterday it was my Right hip and..." + (show)
@lioness

@rwinney I will feel o.k. today tomorrow who knows Yesterday it was my Right hip and groin giving me trouble where do you live Rachel? I live on Calif.all my life I lived in PA. Glad to get out of the snow

Jump to this post

So sorry for your pain. I have the cold luxury of living in NY.

REPLY
1 reply
lioness | @lioness | Feb 10, 2020
In reply to @rwinney "So sorry for your pain. I have the cold luxury of living in NY." + (show)
@rwinney

So sorry for your pain. I have the cold luxury of living in NY.

Jump to this post

@rwinney Oh you poor soul haha I n
Moved out here to help raise my grandson ,glad I did no one left in PA but good friends but family comes first huh You are a good helper with advice Stay strong bear

REPLY
1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @lorirenee1 "@rwinney Rachel, A giant thanks just for being there for me. You get it. You know...." + (show)
@lorirenee1

@rwinney Rachel, A giant thanks just for being there for me. You get it. You know. Wish I could take a magic wand and make us healthy. We are such vital human beings. So alive, in spite of this. Just a giant thanks for being there. Do not even know what to say...…..God Bless. Lori Renee

Jump to this post

Back atcha Lori! I noticed in your bio that you were a teacher. Many thanks to you for your work. Such a needed, underpaid, valuable job.

REPLY
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020
In reply to @lioness "@rwinney Oh you poor soul haha I n Moved out here to help raise my grandson..." + (show)
@lioness

@rwinney Oh you poor soul haha I n
Moved out here to help raise my grandson ,glad I did no one left in PA but good friends but family comes first huh You are a good helper with advice Stay strong bear

Jump to this post

😊

REPLY
View MoreView Less
Please sign in or register to post a reply.