Aching legs from Small Fiber Neuropathy

Posted by Rachel, Volunteer Mentor @rwinney, Oct 23, 2019

One of my relentless symptoms from neuropathy is profusely aching legs. Does anyone share this symptom with me? At times I wonder if it could be another issue. They hurt so bad and create pain when walking continuously. Both legs feel heavy, tired and can't get much mileage. When I walk it's as though they are full of lead and they make me go at a turtles pace. If I stop and don't move they may settle a bit but then same old situation as I walk again. Only relief is being elevated and wrapped with heat or soaking in warm water. That buys me maybe a half hour or an hour tops. Same goes for any topicals. A tight wrap feels good almost like a weighted blanket does. Something about tightening the muscles does too.
I appreciate comments or feed back you may have to share on this.
Thanks all,
Rachel

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Rachel, Volunteer Mentor | @rwinney | Feb 9, 2020

In reply to @tfarrell "Preaching to the gallery. My right calf has just about disappeared, I have trouble getting up..." + (show)

Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now through.my whole body and should n't be on phone but will go crazy if o don't reach out and take away from myself by redirection.. Can't see well from bad eyes and head So forgive me if there are typos.. Calf pain has been so bad it feels like gunshots. It feels like somebody takes their fingers and just rips my skin apart. It feels like knives are slicing them. Brutal.
I'm sorry to vent to a stranger. And I don't mean to do it. Please know you're not alone in your pain. Feel free to post any time. There's always a good support group to help.Be well this evening.
Rachel

jager5210 | @jager5210 | Feb 9, 2020

Hi rwinney,
Sorry to hear about your acute pain. Are you on the FB protocol that John Bishop is on?
Jager

Rachel, Volunteer Mentor | @rwinney | Feb 9, 2020

In reply to @jager5210 "Hi rwinney, Sorry to hear about your acute pain. Are you on the FB protocol that..." + (show)

Thank you. Yes, I am.

ecc79 | @ecc79 | Feb 9, 2020

In reply to @rwinney "Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now..." + (show)

No worries, thanks for the words of encouragement and I hope you are feeling better soon. Take care

Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020

In reply to @ecc79 "No worries, thanks for the words of encouragement and I hope you are feeling better soon...." + (show)

Thank you as well. And I hope you are feeling better soon too. We are stronger than the pain and no matter what, we can not let it defeat us! (I'm too stubborn to let that happen- hah). Have a peaceful day.
Rachel

Robin | @birdierobin | Feb 10, 2020

In reply to @rwinney "Thank you as well. And I hope you are feeling better soon too. We are stronger..." + (show)

You too Rachel. I don’t take any pain medicine. I take whatever life gives me

lorirenee1 | @lorirenee1 | Feb 10, 2020

In reply to @rwinney "Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now..." + (show)

@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my toes and balls of feet were in a vice today. Stopped the Low Dose Naltrexone for a few days, because I did not think it was helping. I guess it was, because I was in utter agony until I took Kratom. Brought pain down from a 10 to a 6 or so. Considering Dorsal Root Ganglion Stimulation. Just cannot deal with this anymore. Got medical marijuana card, and I am using it more than I like to. Rachel, Rachel, Rachel......this is not fair. From where do we gather strength? How often do you just cry? Tears trickling down my eyes today, as I chugged Kratom. Unbelievable. Had lumpectomy, and wound up with this mess. I am so sorry I am so low. Gotta put the spirit of God inside me. Find the joy...somehow.... Lori Renee

lioness | @lioness | Feb 10, 2020

In reply to @rwinney "Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now..." + (show)

@rwinney Oh I'm so sorry Rachel Can you get in and take a hot shower ?That always helps me .Epsom salts good for pain Vinegar does the same .Apple Cider though ,heating pad Hope you find some relief Thinking of you Linda

lioness | @lioness | Feb 10, 2020

In reply to @lorirenee1 "@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my..." + (show)

@lorirenee1 I'm sorry to hear your in so much pain today Remember we are Pain Warriors and don't let this pain define us Have you tried soaking your feet in Epsom Salt water may help The magnesium in E.S helps nerves as well as muscles Praying 🙏 for you and all of us in pain today Pray the Holy Spirit will help you today.Linda