Pain and discouragement

Hello Jim, I just started on Oxymorphone I hate the feeling. Very different from Hydromorphone. I feel confused, very slow, my husband doesn't like what he sees and said I look very drugged, I feel very drugged. He also said, from all these opiates he's frighted it will shorten my life. I'm so scared because I feel the same. My doctor never talks about the side effects, I'm afraid to bring it up because he makes me feel guilty because the pain is so bad. We think he's frustrated with me and he doesn't hide it. Hard to find care because of my diagnosis {drs caused it] HopeI'm making sense?

@kimspr3 I want to thank you for the private message. You really did make my day with your more than glass half full attitude. When I'm in pain and not feeling good it's hard for me to be around family or friends. So when I received your private message with..."Do you have friends and family to visit, laugh with ETC. I seldom am around people but when I am it's like pain medication." it gave me warm fuzzies because I had a few times that I could look back on and put myself in that situation. A positive attitude may not cure us but I really think it helps get us on a road to feeling better.

Have I shared Dr. Amit Sood's website with you? It is my goto site when I need to get myself in a better frame of mind. There are a lot of short videos that not only teach but get you feeling better.

Hoping for a pain free day for all...

John

I did not see Dr. Amit Sood's website, Can you send again if you have a chance?
I did do research on Oxymorphone and I called my Pharmacist. I do have some of the side effects, very anxious, depressed crying constantly. Husband said I look stoned and he does't like it. I told the Pharmacist I was confused she said, not good call dr. on Mon. I hate calling him! With Adhesive Arachnoiditis it effects the Hormones so I need, [good luck] a Endocrinologist who will listen??? I didn't take the Oxy this morning. try not to.

Speaking of socializing with others. We were invited to our friends home today. They are Veterinarians so that is a plus, they have furry friends for me to hug. one is an Akita, very old now not doing well I'm also his God-mother, John, so hard for me to let go of pets. Having PTSD they were my comfort, holding these big dogs I feel safe.
I understand not being around others when in pain, I don't want to go! But I have to get out of my home, I don't want to. I look old and ugly now. I lost what kept me going. I'll stay a short time. Our friends have a great since of humor now, that good for the sole!

My brother died 2013 Pancreatic Cancer and that was my sister-in-law chance to really be the mean person she is and there went my niece and nephews. She used to call my mother "hey you" I miss him I told I wished she had died, she told me she hears that all the you said nothing wrong. We have fewer friends since this happened to me. My poor husband. I have so much guilt. Isn't it nice to belong to Mayo Connect, SMILE

I never tell people how I feel in a social situation, they ask out of courtesy. For me to get out means a new environment, I bit of independence, my choice to go out, get dressed, stay as long as I want, and LAUGH!
Now thats a plus. I hope you can see family or friends even if it's only for an hour. Today I will try and use them as my opiate. Seeing their pets interact is always a funny surprise.

Wishing you a great day!

Hi Jim, I did do some research. Oxymorphone hands shake, can't relax, and more. I have a high sensitivity to drugs now because of my diag. In my research I found from many good sites said I need certain hormones to help the pain. Comes from Johns Hopkins, Dr, Forrest Tennant, Dr. Sara Smith fro UK. I printed it out to show my dr. he just put it down, when I left handed it back to me. I'm afraid when my Pain Management calls me tomorrow evening. He passed a remark to me like, I don't know what to do with you. My husband told him in so many words not to bring that up, thats your job. If I'm scattering I'm so sorry. Forgive me if I replied to you already.

@kimspr3 You hadn't already replied. I think my neurologist and my pain specialist both are coming to the end of what they can do, and I imagine that they feel at times like your doctor, but they wouldn't say it. All of my doctors have referred me to other specialists, for which I'm grateful. I've learned a lot along the way.

I met with a new doctor the other day who is very experienced with stimulator implants, and she was great. She agreed that a dorsal root ganglion stimulator could be the answer, but she is having me pursue a few things before doing that implant. It's reserved for people who have intractable chronic pain and have exhausted every option. It seemed that she was concerned about rushing ahead with it. My spinal cord stimulator isn't doing much for me, so she's going to meet with the Abbott tech and recommend ways to adjust it that he probably doesn't know.

The pain specialist started me on imipramine, gradually increasing the dosage, up to 100mg. I'm going to do a second week at 75mg, as it seems to be reducing my pain. If I still have more pain than I can handle I'll move on up to 100. I'm really hoping it works for me.

Jim

Do you havet to go into hospital to have stimulate r put in? If so how do they know what to put it on?

Hi @kimspr3 -- Here is the website for Dr. Amit Sood - The Resilient Option - https://www.resilientoption.com/

Yesterday I had the opportunity to watch my daughter compete in a crossfit competition where her and two other ladies represented their crossfit gym . It was a hour and half drive both ways and a couple of hours sitting but dad enjoyed every minute of it. Amazed me how strong the ladies are. Now I just have to find a heavy lifting project and invite her and her teammates over for lunch and a workout ☺ There is a lot of truth in the phrase girl power.

I think it's hard for most of us to lose a pet. Two years ago I had to take my daughters cat to be put to sleep that she left with us when she moved away from home. She was quite old and in so much pain you couldn't pick her up with her crying. Now the cat that I adopted when stopping to fix a computer at the local vet hospital is getting close to the end. She's about 13 years old and would sit on my shoulder as a kitten and watch me work on the computer.

Hope all my cyber friends have a pain free day...

Hi @kimspr3 -- Here is the website for Dr. Amit Sood - The Resilient Option - https://www.resilientoption.com/

Yesterday I had the opportunity to watch my daughter compete in a crossfit competition where her and two other ladies represented their crossfit gym . It was a hour and half drive both ways and a couple of hours sitting but dad enjoyed every minute of it. Amazed me how strong the ladies are. Now I just have to find a heavy lifting project and invite her and her teammates over for lunch and a workout ☺ There is a lot of truth in the phrase girl power.

I think it's hard for most of us to lose a pet. Two years ago I had to take my daughters cat to be put to sleep that she left with us when she moved away from home. She was quite old and in so much pain you couldn't pick her up with her crying. Now the cat that I adopted when stopping to fix a computer at the local vet hospital is getting close to the end. She's about 13 years old and would sit on my shoulder as a kitten and watch me work on the computer.

Hope all my cyber friends have a pain free day...