IVIG infusion treatments for Bronciectasis

Posted by kpost2 @kpost2, Jul 29, 2019

After doing my IVIG infusion treatments every four weeks for two years now. I have always wanted to know what is the end game on my treatment. Is this something that I will be taking the rest of my life? My immune system is always low and I know this keeps me from getting sick, but there seems to be no light at the end of the tunnel. Having Bronchiectasis after my Pneumonia has been a pain in the ass. I told my pulminologist and Allergist that I feel like a lab rat and that they don't know how to treat me. All they do is laugh and said this is the step we have to take.

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Granny | @goddard | Aug 6, 2019

In reply to @kpost2 "I live in Nebraska. I have an Appointment today with my Allergist. She is the one..." + (show)

I really recommend Hizentra that you can give yourself once a week. You get smaller dose at time than IVIG but then you don’t get much reaction

kpost2 | @kpost2 | Aug 7, 2019

In reply to @goddard "I really recommend Hizentra that you can give yourself once a week. You get smaller dose..." + (show)

She mentioned Hizentra yesterday also. She sent me a video about it to watch. Haven'[t watched it yet.

Brenda R. | @brigby | Aug 7, 2019

In reply to @kpost2 "I live in Nebraska. I have an Appointment today with my Allergist. She is the one..." + (show)

@kpost2 Hi there, I think you’re the first Nebraskan I have seen on mayoconnect. I live in California, but grew up in Beatrice & Millard. Where are you located? Do you go to NJH for care? Sorry you are in this elite “club”!