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IVIG infusion treatments for Bronciectasis

Posted by kpost2 @kpost2, Jul 29, 2019

After doing my IVIG infusion treatments every four weeks for two years now. I have always wanted to know what is the end game on my treatment. Is this something that I will be taking the rest of my life? My immune system is always low and I know this keeps me from getting sick, but there seems to be no light at the end of the tunnel. Having Bronchiectasis after my Pneumonia has been a pain in the ass. I told my pulminologist and Allergist that I feel like a lab rat and that they don't know how to treat me. All they do is laugh and said this is the step we have to take.

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Granny | @goddard | Aug 6, 2019
In reply to @kpost2 "I live in Nebraska. I have an Appointment today with my Allergist. She is the one..." + (show)
@kpost2

I live in Nebraska. I have an Appointment today with my Allergist. She is the one that my I.V.I.G. treatments are with.

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I really recommend Hizentra that you can give yourself once a week. You get smaller dose at time than IVIG but then you don’t get much reaction

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1 reply
kpost2 | @kpost2 | Aug 7, 2019
In reply to @goddard "I really recommend Hizentra that you can give yourself once a week. You get smaller dose..." + (show)
@goddard

I really recommend Hizentra that you can give yourself once a week. You get smaller dose at time than IVIG but then you don’t get much reaction

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She mentioned Hizentra yesterday also. She sent me a video about it to watch. Haven'[t watched it yet.

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Brenda R. | @brigby | Aug 7, 2019
In reply to @kpost2 "I live in Nebraska. I have an Appointment today with my Allergist. She is the one..." + (show)
@kpost2

I live in Nebraska. I have an Appointment today with my Allergist. She is the one that my I.V.I.G. treatments are with.

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@kpost2 Hi there, I think you’re the first Nebraskan I have seen on mayoconnect. I live in California, but grew up in Beatrice & Millard. Where are you located? Do you go to NJH for care? Sorry you are in this elite “club”!

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kpost2 | @kpost2 | Aug 8, 2019
In reply to @brigby "@kpost2 Hi there, I think you’re the first Nebraskan I have seen on mayoconnect. I live..." + (show)
@brigby

@kpost2 Hi there, I think you’re the first Nebraskan I have seen on mayoconnect. I live in California, but grew up in Beatrice & Millard. Where are you located? Do you go to NJH for care? Sorry you are in this elite “club”!

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I live in Lincoln. I have my appointments at A.A.I. Allergy,Asthma and Immunology Associates.

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bennb023 | @bennb023 | Aug 9, 2019
In reply to @windwalker "@bennb023 I am so glad that you are doing well on the IV treatment. Does that..." + (show)
@windwalker

@bennb023 I am so glad that you are doing well on the IV treatment. Does that alao help ro keep the mac at bay?

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I am not sure about keeping Mac at bay, but I am not currently treating the Mac and doing well.

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