Water at freshwater lake

@rits Hi! I am about to start Arikayce. I have it in the fridge and nurse coming Tuesday. I'm very nervous!!

Gaylewroc. I started Arikayce last Wednesday. My voice is now starting to sound like I have laryngitis. The actual usage takes a day or two get used to, but the nurse was great. Her name was Denise. If you have the same nurse tell her Candy said “hi”. Keep us posted as to how you do with the medication. I’ll be posting my progress as well. Best to you.

Good luck, gaylewrok! I posted on the topic Nervous Arikayce because this topic is on MAC in lakes.

@sounder27 I'm glad you're doing so well..it gives me courage! It might be Denise...sounds familiar. My Doc also started me on a trial drug called Clofazimine a few weeks ago..I was nervous and I seem to be tolerating that well. I'm just going to stay positive!! I was wondering if Manuka honey would help with the throat issues..just a spoonful after treatment? Hang in there and keep us posted.

@rits Thanks!! Will keep y'all posted!

@tinaesims The trip to Puerto Rico sounds like fun. You are on good antibiotics, so you should be just fine. I used to love to snorkel in the Caribbean, but I no longer can due to low lung function. I do not have enough lung power to draw the oxygen down the snorkel tube. They now make personal sized flat rafts with a viewing window at the head, I will have to use that, or hang my face with a snorkel mask over the edge of a floatation device. Well have fun girl! When do you leave to go there?

We leave Christmas Eve and get home New Years Eve.

Sounds wonderful. Jealous!

I also just started on that program and lost my voice after one week of the medication. My Infectious Disease specialist at Cedars told me to stop for a bit and get my voice back. I did and it came back but now I've started all over again and yes - it appears that I'm back to losing my voice again. They tell me that this will pass in time but for now it's killing my business. Hope it at least "kills the MAC"!